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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

For Those Who See Gastroenterologists
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11 posts in this topic

I've considered going to a gastroenterologist. They are most knowledgeable about celiac and gluten issues right? I did a stool test with my family doctor to check for parasites and am supposedly clear. But was wondering what sort of things a gastro could help with besides endoscopy, colonoscopy and upper gi tests. Do they also do stool tests? Do they check for small intestinal bacteria overgrowth and what not? Or is it mainly doctors who are not mainstream who do that?

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I've considered going to a gastroenterologist. They are most knowledgeable about celiac and gluten issues right? I did a stool test with my family doctor to check for parasites and am supposedly clear. But was wondering what sort of things a gastro could help with besides endoscopy, colonoscopy and upper gi tests. Do they also do stool tests? Do they check for small intestinal bacteria overgrowth and what not? Or is it mainly doctors who are not mainstream who do that?

I am seeing a gastroenterologist and she wanted to do a stool sample but I get around by bus and didn't feel comfortable transporting that way. I started out due to stomach pains when I ate anything. She prescribed me Hyoscyamine .125mg to take before eating and whenever pain comes and Prochlorperazine 10mg for nauseau. This helped and led me to believe that I have an issue with wheat/gluten. I will be doing a food allergy test w/ my allergist next month (July) and follow up with my primary and gastro. I hope this helps some.

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I am seeing a gastroenterologist and she wanted to do a stool sample but I get around by bus and didn't feel comfortable transporting that way. I started out due to stomach pains when I ate anything. She prescribed me Hyoscyamine .125mg to take before eating and whenever pain comes and Prochlorperazine 10mg for nauseau. This helped and led me to believe that I have an issue with wheat/gluten. I will be doing a food allergy test w/ my allergist next month (July) and follow up with my primary and gastro. I hope this helps some.

Hopefully you will see this- Celiac is not an allergy so allergy testing won't diagnose it. There are specific blood tests for Celiac disease and any of those docs should be able to order them. You need to be eating gluten to get an accurate test, so don't eliminate it until all testing is completed.

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I've considered going to a gastroenterologist. They are most knowledgeable about celiac and gluten issues right? I did a stool test with my family doctor to check for parasites and am supposedly clear. But was wondering what sort of things a gastro could help with besides endoscopy, colonoscopy and upper gi tests. Do they also do stool tests? Do they check for small intestinal bacteria overgrowth and what not? Or is it mainly doctors who are not mainstream who do that?

I'm curious- if you have never been to a GI, how were you diagnosed with Celiac? So few people have a family doc that feels comfortable diagnosing with just blood tests, symptoms and results. It might be helpful for others to hear your doctor's process.

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Why do you think I think celiac is an allergy and when did I ever say it? I am gluten intolerant and felt better initially gluten free but a whole host of other things began about two or three months in. I've never been to a gastro but could have undiagnosed celiac. Had a history of "irritable bowel" since I was eight or nine that went away once gluten free. If you think I think celiac is an allergy because I've typed about allergies you'd be wrong. Those are seperate issues that recently came up. Just clarifying now so I don't have to do it later.

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I also did enterolab but I know many of you don't accept that but it got rid of those symptoms I was having and my family doctor has celiac listed on their system. Biopsies and blood tests have been known to miss it as well. They can't always get to the area of the bowel most affected. I know I'm not glutening myself just for an "official" diagnosis. I felt too horrible.

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Why do you think I think celiac is an allergy and when did I ever say it? I am gluten intolerant and felt better initially gluten free but a whole host of other things began about two or three months in. I've never been to a gastro but could have undiagnosed celiac. Had a history of "irritable bowel" since I was eight or nine that went away once gluten free. If you think I think celiac is an allergy because I've typed about allergies you'd be wrong. Those are seperate issues that recently came up. Just clarifying now so I don't have to do it later.

I wasn't answering you - I quoted the new person, Monnie. She seemed to need a little info.

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Sorry on my kindle I didn't even notice that. I thought you addressed it because of a couple threads I have regarding histamine etc.

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I am seeing a gastroenterologist and she wanted to do a stool sample but I get around by bus and didn't feel comfortable transporting that way. I started out due to stomach pains when I ate anything. She prescribed me Hyoscyamine .125mg to take before eating and whenever pain comes and Prochlorperazine 10mg for nauseau. This helped and led me to believe that I have an issue with wheat/gluten. I will be doing a food allergy test w/ my allergist next month (July) and follow up with my primary and gastro. I hope this helps some.

Do yourself a favor and get an endoscopy...blood test or even enterolab. THEN go gluten free and see how you feel. I was too chicken to endoscopy at the time. I regret that a year later. Did the diet help? Yes...but...it's nice to have a solid view of what you're dealing with...seriously. The tests could miss it but they might not. If it shows up negative you can always trial the diet anyhow and see if you feel better. 

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Hopefully you will see this- Celiac is not an allergy so allergy testing won't diagnose it. There are specific blood tests for Celiac disease and any of those docs should be able to order them. You need to be eating gluten to get an accurate test, so don't eliminate it until all testing is completed.

I know that celiac is not an allergy, but I have seasonal allergies for ALL seasons (no off season for me) So my 1st thought was to do allergy testing. I immediately stopped eating wheat and felt better then started looking up sites for Gluten Free recipes and came across this site. I have to follow up with my Gastro Dr in Sept. cause I had the appt already and when I tried to get an earlier appt they didn't have any. I have seen that you have to be eating wheat for the testing and am not looking forward to going back to feeling that way.

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Do yourself a favor and get an endoscopy...blood test or even enterolab. THEN go gluten free and see how you feel. I was too chicken to endoscopy at the time. I regret that a year later. Did the diet help? Yes...but...it's nice to have a solid view of what you're dealing with...seriously. The tests could miss it but they might not. If it shows up negative you can always trial the diet anyhow and see if you feel better. 

I will make sure to ask my Gastro Dr about those tests. I also want to know exactly what is wrong, but do not look forward to feeling bad again because I have to eat wheat.

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    • Hi Stephanie, I'm also from the UK, I've found this site more helpful than anything we have!  As already mentioned above, in my experience it could depend on what and where you were drinking. Gluten free food and drink isn't always (not usually) 100% gluten free as you may know, maybe you have become more sensitive to even a trace of gluten that is probably in gluten free food/drink. Is it possible you have a problem with corn, particularly high fructose corn syrup that is in a lot of alcoholic drinks? This was a big problem for me and the only alcoholic drinks I can tolerate are William Chase vodka and gin. I contacted the company last year and all their drinks are 100% gluten and corn free, made the old fashioned way with no additives, so maybe try their products if you like the occasional drink and see how you get on. If you drink out, not many pubs sell their products but I know Wetherspoons do and smaller wine bars may too. l was never a spirit drinker but I must say their products are absolutely lovely! Very easy on a compromised gut too considering it's alcohol. I second the suggestion on seeing a natural health practitioner. I've recently started seeing a medical herbalist, as I've got nowhere with my now many food intolerances since going gluten free last year and I've noticed a difference in my health already. 
    • Sorry for the very late reply and thanks for the replies, I didn't get a notification of any. In case anyone else comes across this and has been wondering the same as I was, I did try a vegetable broth and I did react to it in the same way as if I'd eaten the vegetables.  As for the candida, I've been using coconut oil and am seeing a medical herbalist for this and leaky gut. It's only been a few weeks but I've noticed an improvement all round.
    • What did you drink and where did you drink it?   NOTE if you drink something at a bar using their glasses your asking for trouble BEER IS EVERYWHERE in most bars and a CC hell.   If it was at home and a non grain based liqour then I would be really concerned that it might just be alcohol. I personally can not really drink much of anything any more. I love rum, and I cook with it sometimes in sautes. I also have rum extract/butter rum extract/and rum emulsion I use in shakes, homemade keto pudding/ mixed into dishes. and even add some to drink to give it a rum flavor lol.
    • I can only think of two things, 1 something you put on your potato was contaminated like the butter container could have crumbs in it or something like that as mentioned before, and you could be having a reaction to dairy or what ever was put in it.......IF it was just plain potato and you reacted with bloating and cramping you might have a carb issues, tad rare and most associated with additional auto immune diseases but could be in which case a diet of fats and protein would be your answer much like it is for me now days. What all have you eaten in the privous 8 hours including beverages, condiments, spices and foods?
    • They are gluten-free.  Did you use butter that might have gluten crumbs on it?  For me , it takes more than 2 hours to feel the effect of gluten- maybe something you ate before?  Maybe  stomach virus?
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