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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Can't See A Doctor. What Do I Have?
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7 posts in this topic

Hey guys,

 

So to make a long story short, I tested inconclusive for celiac as a kid but suspect I may have it now. I'm male and 21 years old. Prior to the last few months, I would eat tons of gluten and only have symptoms once a month or so, which included very painful intestinal spasms/inflammation (or what feels like it, I'm actually not sure) and "D" that came in waves and lasted anywhere from 1-3 hours. Starting at the end of March symptoms got much worse. I started to have these attacks every week, sometimes twice/week. I began to loose weight, miss class, etc. My Mom has these EXACT same symptoms. Once she stopped gluten, they got much better (but still didn't go away). So, last month I deciced to completely stop eating gluten and lo and behold my symptoms got much better. I've only had one minor attack since I stopped. Initially after I stopped, my intestines still felt uneasy all the time, however after treatment with probiotics they began to feel a bit better. Now I'm doing alright, much better than before, however I'm anxious about another stomach ache hitting me.

 

My "celiac" has quite a few anomolies: First of all, eating gluten doesn't automatically give me problems. Cutting out gluten just reduced the frequency of them. There is no direct cause and effect relationship between gluten and what I'm experiencing. Secondly, some gluten free products give me the same symptoms that gluten does, for example Udi's bagels (but Glutino bagels are fine). My symptoms are an anomolie, there is no direct link to any food, life event, or environment that triggers them. They're completely random, and it's frustrating the heck out of me. Going gluten free is the only thing that has impacted it.

 

Here's the kicker though: I can't see any Physicians, GI doctors, etc. about this or get any prescription drugs. I'm a civilian helicopter pilot and will be applying for military pilot slots after I graduate from college. Anything on my record about celiac, stomach problems, etc. will automatically disqualify me. I'm not going to get desked over my weak stomach. My symptoms must be managed quietly with OTC meds, alternative medicine, and/or diet changes.

 

Which lead me to my question: any idea what I have? If so any other tips for managing it? What can I take for the pain? Immodium, Pepto, etc. do nothing for my symptoms.

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Have you had other things tested? This was how my friends Crohns started. Just an idea.

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If youre not willing to have any tests done, then you could only hope a dietchange will do the trick. How long have you been gluten free for?

You could start by eliminating a nuber of things, like gluten, wheat starch, eggs, soy, dairy (most celiac patients are lactose intolerant untill their gutt has heald compleatly), nuts, fish, yeast. If this doesent help after 3-4 months then thats not the problem. If it helps, then you can start reintrodusing the foods, one at the time. If any makes you ill then you stay away from it, the ones that doesen't make you ill are fine.

 

You could have celiac or any nuber of intolrase to foods, or something else entirely. As long as you won't seek medical help, you're left guessing and trying, but you still might get it right.

Good luck! I hope the answer for you is in your diet, and that your not somehow sick and don't find out till it's to late...

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Won't it be hard to eat gluten-free in the military?  MREs seem to have a lot of the calories coming from gluten.

 

Something to think about: I would worry that you might not be feeling as good as possible while in dangerous situations.  People's lives may be depending on you.

 

If you have Celiac and are eating some gluten, it will get worse as the months and years go by, not better.

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Or diverticulitis comes to mind... Also diet change

Nothing with nuts or seeds like strawberries

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If youre not willing to have any tests done, then you could only hope a dietchange will do the trick. How long have you been gluten free for?

You could start by eliminating a nuber of things, like gluten, wheat starch, eggs, soy, dairy (most celiac patients are lactose intolerant untill their gutt has heald compleatly), nuts, fish, yeast. If this doesent help after 3-4 months then thats not the problem. If it helps, then you can start reintrodusing the foods, one at the time. If any makes you ill then you stay away from it, the ones that doesen't make you ill are fine.

 

You could have celiac or any nuber of intolrase to foods, or something else entirely. As long as you won't seek medical help, you're left guessing and trying, but you still might get it right.

Good luck! I hope the answer for you is in your diet, and that your not somehow sick and don't find out till it's to late...

 

Hopefully it's nothing too serious. I've had it since I was born and it hasn't killed me yet. Like I said, it's gotten much better after cutting gluten a month ago but has not gone away entirely. My impression of celiac was 100% better forever as long as you don't eat gluten, but I don't know much about this so I could be wrong. I'd say I'm 80% better since cutting it out. I was also under the impression that celiac was "eat gluten -> get sick", where I'm not really like that. I'd had plenty of gluten and been fine for days. There is simply a correlation between gluten and symptoms and a history of gluten intolerance in my family, but no direct link. I'm just wondering if anyone else has had similar experiences with what I've described and how they manage it. I guess I'm waiting for someone to say "Yea, I had that exact same thing. All you have is a Vitamin XYZ deficiency. Take these vitamins and you'll be 100% in no time."

 

Won't it be hard to eat gluten-free in the military?  MREs seem to have a lot of the calories coming from gluten.

 

Something to think about: I would worry that you might not be feeling as good as possible while in dangerous situations.  People's lives may be depending on you.

 

If you have Celiac and are eating some gluten, it will get worse as the months and years go by, not better.

 

The image of a infantry soldier in a fox hole with nothing to eat but an MRE generally does not hold true to the aviation side of the military. I've spoken to a few friends who are currently flying for the Air Force and they said it wouldn't be much of a problem. I've been flying for two years now and can function well under stress, stomach ache or not, so I'm really not too worried about that.

Edited by jimhalpert625
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To recover compleatly after going gluten free when you have celiac can take as much as 1-2 years. So if you feel 80% better after a month of being gluten free I would say you are on to something.

Often people with celiac will lack vit. b12, magnesium and iron, also a good dose of multivits, omega 3 and probiotics will help you recover and heal.

I order stuff like this from iHerb.com, they have grate products and prices. The also have something called Celiac Support (just search for it) that is suposed to help. I have just orderd that for my self a few days ago, but not tried it yet, so don't know if it works.

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