• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Am I Starting Over Everytime Time I Get Glutened?
0

9 posts in this topic

I am 15 and was diagnosed with celiac disease about a month ago and have been gluten free for about 3 weeks until now when i ingested some gluten. I know cuz I started having really bad gas. So my question is everytime i get glutened is it like COMPLETELY starting over with the diet and completely destroy my villi or does it only hurt my progress moderately?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I'm rather new to all this....more so even than you are! :) But, from what I understand, it's not so much that you're starting over. Your body is attempting to heal itself and getting exposed to gluten hinders that. But I don't think it takes you back to square one.

 

I think of it more like, if you have a cut and it's started to heal but then you do something to tear it open a little bit, it takes a little longer for it to heal completely but the healing process doesn't have to start over completely....just has to work harder on that one area for a little bit longer. But, on the same token....if you repeatedly reopen the cut without any time to heal at all...that will set you back to square one and then some because you keep damaging it.

 

Of course...I could be completely off....but that is the way I understand it all at this point. So, I think you only kind of hurt the healing progress a little bit....depending on how bad your body reacts to the gluten.

0

Share this post


Link to post
Share on other sites

I'm rather new to all this....more so even than you are! :) But, from what I understand, it's not so much that you're starting over. Your body is attempting to heal itself and getting exposed to gluten hinders that. But I don't think it takes you back to square one.

 

I think of it more like, if you have a cut and it's started to heal but then you do something to tear it open a little bit, it takes a little longer for it to heal completely but the healing process doesn't have to start over completely....just has to work harder on that one area for a little bit longer. But, on the same token....if you repeatedly reopen the cut without any time to heal at all...that will set you back to square one and then some because you keep damaging it.

 

Of course...I could be completely off....but that is the way I understand it all at this point. So, I think you only kind of hurt the healing progress a little bit....depending on how bad your body reacts to the gluten.

thanks for the info, i think u are right despite me being diagnosed earlier lol, and good luck on your gluten-free diet (:

0

Share this post


Link to post
Share on other sites

I think it is like " Mommy" said.  You wouldn't want to mess up every day or even every week.  Its OK to make some honest mistakes, especially in the first couple of months as you are learning.

 

 

http://www.cureceliacdisease.org/archives/faq/do-i-need-to-have-a-follow-up-test-each-time-i-get-glutened

 

 

"Do I need to have a follow-up test each time I get glutened?

Follow-up tests are intended to test whether there’s significant (and repeated) exposure to gluten. A mistake (or two) may cause symptoms, but they will only activate the disease for a short time, though it must be noted that each celiac responds differently. It’s the repeated exposure for the long-term that keeps the disease active enough to cause damage."

 

 

 

 

 

http://www.cureceliacdisease.org/archives/faq/if-i-accidentally-ingest-gluten-will-it-show-up-in-a-blood-test

 

 

"If I accidentally ingest gluten will it show up in a blood test?

No, accidental exposure will not show up in a blood test. Repeated exposure elevates antibodies in the blood and causes damage in the small intestine"

0

Share this post


Link to post
Share on other sites

I don't think of it as starting over, just more of a hiccup in the road.  The immune process is something that keeps us from being sick due to germs in the environment.  So it isn't a light-wieght kind of system, since there are lots of deadly germs around us all the time.  The immune system has to kill those germs constantly or we become sick.  The autoimmune process is the same thing, it attacks when exposed to a trigger (gluten).  It may keep producing immune cells to attack for quite a while after the initial invaders are gone.  Weeks or even months.  So you may be more sensitive to any stray gluten for a while, because your immune system is already on alert.

 

After a while you get more aware of gluten and can avoid it better.  But it takes time to learn that and get used to how to eat safely.  It's not something we all just know.  Sticking mostly with whole foods is a great way to eat and really makes it simpler to avoid gluten.  It's when we eat processed foods with many ingredients that things get more complicated and risky.

0

Share this post


Link to post
Share on other sites
Ads by Google:


It isn't like starting over.  I made steady progress despite glutenings as I was figuring stuff out.  You will too.  

0

Share this post


Link to post
Share on other sites

I think it is like " Mommy" said.  You wouldn't want to mess up every day or even every week.  Its OK to make some honest mistakes, especially in the first couple of months as you are learning.

 

 

http://www.cureceliacdisease.org/archives/faq/do-i-need-to-have-a-follow-up-test-each-time-i-get-glutened

 

 

"Do I need to have a follow-up test each time I get glutened?

Follow-up tests are intended to test whether there’s significant (and repeated) exposure to gluten. A mistake (or two) may cause symptoms, but they will only activate the disease for a short time, though it must be noted that each celiac responds differently. It’s the repeated exposure for the long-term that keeps the disease active enough to cause damage."

 

 

 

 

 

http://www.cureceliacdisease.org/archives/faq/if-i-accidentally-ingest-gluten-will-it-show-up-in-a-blood-test

 

 

"If I accidentally ingest gluten will it show up in a blood test?

No, accidental exposure will not show up in a blood test. Repeated exposure elevates antibodies in the blood and causes damage in the small intestine"

thanks alot, I understand better now, I am still trying to find the cause of this glutening 

0

Share this post


Link to post
Share on other sites

It isn't like starting over.  I made steady progress despite glutenings as I was figuring stuff out.  You will too.  

thanks, i think that too

1

Share this post


Link to post
Share on other sites

I don't think of it as starting over, just more of a hiccup in the road.  The immune process is something that keeps us from being sick due to germs in the environment.  So it isn't a light-wieght kind of system, since there are lots of deadly germs around us all the time.  The immune system has to kill those germs constantly or we become sick.  The autoimmune process is the same thing, it attacks when exposed to a trigger (gluten).  It may keep producing immune cells to attack for quite a while after the initial invaders are gone.  Weeks or even months.  So you may be more sensitive to any stray gluten for a while, because your immune system is already on alert.

 

After a while you get more aware of gluten and can avoid it better.  But it takes time to learn that and get used to how to eat safely.  It's not something we all just know.  Sticking mostly with whole foods is a great way to eat and really makes it simpler to avoid gluten.  It's when we eat processed foods with many ingredients that things get more complicated and risky.

Yea, thanks for answering, I am getting better and better at this gluten-free diet

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,453
    • Total Posts
      930,635
  • Member Statistics

    • Total Members
      63,877
    • Most Online
      3,093

    Newest Member
    *Allie*
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi! My daughter is 19 was diagnosed at age 16. It took about 12-18 month s for her to fully heal from the damage and feel "normal" again. Also because of the damage done she had reactions to dairy, so you may want to try no or minimum dairy until youre fully healed. Just a suggestion. Hope you start feeling well soon!
    • Hi yall! New to this blog, but really glad it exists because I have lots of questions. First off, I'm Allie! I'm 17 and newly diagnosed Celiac after about 3 years of searching for answers. I initially went gluten-free on the recommendation of a friend, I felt better in about a month and then my pediatric gastroenterologist had me do the gluten challenge, and my symptoms were the worst they have ever been, and ones I barely noticed before became very present. I did the biopsy and was diagnosed, it's been about 2 weeks and my symptoms are still pretty bad, although my diet has no known sources of gluten or cross contamination. Wondering if anyone has any input on healing post gluten challenge, any tips or how long it took for you would be quite helpful! Thanks 
    •   Might want to look into a keto diet, I have UC on top of celiacs and keto is working great Yeah I have major nerve and brain issues with gluten, gluten ataxia with nerve issues and brain issues. Seems to cause my body to attack my brain and nerve system. My brain stumbles fogs, and starts looping, the confusion causes me to become really irritable, I call it going Mr Hyde. Like my mind will start looping constantly on thoughts and not move driving me literally mad, or it used to. Now days it is primary the numbness anger but the gut issues and sometimes random motor loss limit me motionless to the floor now days for the duration of the major anger effects. Used to be a lot more mental then painful gut. I did a mental trauma post on it on while back where I came out about all my mental issues with gluten.  
    • ^^^^^^ good info, tips and tricks^^^^^^^^^ yes, crumbs will make you sick.  also, breathing flour/pancake mix, etc that is in the air because eventually, you're going to swallow some. 
    • Hello I was diagnosed Dec 15 of last year and went totally gluten-free the next day. I actually got worse before I got better - it's a steep learning curve - but now, 4 1/2 months later I'm finally seeing improvement.  Hang in there. 
  • Upcoming Events