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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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I was diagnosed in Oct but I was in some denial for a while. In fact, several months ago, I even posted here how once in a while I would still consume gluten, in the hopes that I would have "gotten over" it, or maybe thinking the dr was wrong and I would be fine. 

 

I am happy to say that kind of thinking is gone and I have been 100% gluten free (aside from accidents) for some time now. 

 

I am diligent and I make sure to ask questions where ever I go. I am not worried about hurting people's feelings when I kindly decline to eat food they have made or brought to parties. I don't worry about participating in eating a group lunch at work. 

 

My friends, family and coworkers understand when and why I decline. Sure, some people still don't get it, some people even still think it is in my head, or that I am over reacting, but I really don't care. They can think what they want, they are not the ones who get sick. 

 

In the beginning, yes, I got sick when I ate gluten but I was so used to it before I was diagnosed that I did it any way. I used to brag about how I wasn't THAT sensitive that a little CC would bother me. It is so different now. I can tell within 30 mins if I had some fries that was cooked in the same oil as say, chicken fingers. Once, I buttered a gluten-free bagel with the butter in the fridge that I CLEARLY labeled as MOM's BUTTER..DO NOT USE! and I was sick an hour later. I found out my husband had used that butter for toast, re-dipping his knife. He really didn't think it would affect me. 

 

I ate gluten-free shrimp scampi at a restaurant and was VERY VERY sick the next day. I called and found out that they cook the gluten-free pasta in the same water as regular pasta! Some places and people simply do not know. 

 

I just came off of a week long migraine after eating at a cookout at my sister's house. It was the worst migraine ever. Even when I am careful, sometimes things happen but I am realizing that this is for the rest of my life and I accept it. 

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Glad to see that you've adjusted! Life shouldn't be lived sick, not when health is so relatively easy. ^_^

 

Yes, sometimes things happen. Meh, life goes on right? This is part of life for us and as time goes on it will happen less and less. Practice makes perfect.

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:) That's great that you have found how to work around celiac (aside from a few accidents) and are in a good place with it.

 

My favourite fortune cookie ever said:

 

"Acceptance is the key to happiness."

 

That's so true for anyone living with a chronic disease.  It's makes life easier if you work with what you've got.

 

I hope you continue to feel better, and manage to avoid future monster migraines.  :)

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