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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Creepy Cassie

Help! I Don't Know What To Eat Anymore.

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I was diagnosed with Celiac disease about a month or two ago.

I am 22 years old, doctor told me back when I was 16 years old I had irritable bowel syndrome. Well come to figure, that  doctor never diagnosed me with IBS. But I had a upper GI and colonoscopy and turns out I have Celiac, and I keep acting like I have IBS too, because it just seems right.

I am not sure what to eat, I have yet to see a dietician and sometimes I only get to eat once or twice a day due to the pain. Its a gassy pain, stabbing, very hurtful pain that almost is like I'm in labor again.

I recently started taking Bentryl for the pain and Gas X, they seem to semi work.

I cut out all dairy now, it seems to make me sick.

I also cut out baked beans now, and tomatoes. I just need help.

I am very weak, so its hard for me to make food, and most gluten-free foods are expensive.

I also can't eat rice.

 

Help? I crave sugar and just real food.

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I'm sorry you've been feeling unwell.  :(

 

Prediagnosis, I used to take a LOT of Gas X for my bloating pains too... but I think there was gluten in my capsules (not sure on that) so I tossed them after my diagnosis.

 

Lots of your symptoms could still very well be due to your celiac disease. I used to get almost random pain, and it often built up towards the end of the day. Now, after a year gluten-free, I still get gassy and bloated every few days. Some of your discomfort could still be caused by celiac disease, but I don't doubt that you have other food intolerances.

 

You have a problem with tomatoes (perhaps your problem with baked beans is the tomato sauce?), rice and gluten. That still leaves you with a fair amount of food options although you'll have to do more food prep, and be a bit more creative, than the average person. Perhaps make wraps with lettuce leaves or corn tortillas. Coconut or almond flour is wonderful for making baked goods with and tends to have more nutrition than the average  gluten-free baked goods. carry nuts or LaraBars around with you so you always have snacks when you are on the go. If you focus on eating veggies, meats and eggs,  and some fruits (minus tomatoes) it will make life easier for you.

 

Also, have you considered milk being a problem for you? Up to 50% of celiacs are lactose intolerant in the first half year gluten-free, I know that I was. Often that goes away as you heal - many board members have reintroduced dairy into their diet after a few months. I personally used to get pain and bloating from dairy, and it is much less now, but I haven't bothered bringing it back into my diet because I see no need and I feel great without it.

 

Hang in there. The first few weeks are the hardest, especially if you experience withdrawal which can throw extra fatigue, headaches, and a bad mood into the mix for a few weeks.

 

Best wishes.

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