• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Sun Sensitivity
0

9 posts in this topic

Recommended Posts

TGK112    7

I was diagnosed close to a year ago. I've been gluten free since, with good results. My six month follow up showed great improvement. Since I was pretty asymptomatic prior to diagnosis, this was good to hear.

However,this summer I have become extremely sun sensitive. After even a very short time in the sun, I break out in a painful and itchy rash. It doesn't look like the pictures of DH, but more like a bumpy sun burn.

Does anyone else out there have sun sensitivity-- and what do you do besides staying covered up or inside?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


alesusy    6

I'm extremely sensitive to the sun and get burned quite easily, with splotchy red patches. The sensitivity did worsen with age - perhaps also because I get less holidays and less time at the seaside and my skin is less accostumed to the sun, but also because it gets drier with age. However I never connected it to celiac disease and in my case frankly I think it is not connected. I can offer however some practical wisdom hoping it won't sound too lame

1) If you are in the sun, put on sunscreen. Sounds stupid and obvious, but it may not be if you are not used to it. Protection 50 will insure that the sun does not touch you at all. Protection 40 or 30 is a good barrier. I prefer milky emulsions to creams, easier to spread and less oily. Even in the city you can put sunscreen on your face and arms (women do it all the time, lots of face creams have an inbuilt sunscreen factor)

2) Use as wide a hat as possible when on the beach and use caps in the city or a stylish Borsalino-like hat

3) Buy and use a sun umbrella when on the beach (I love swimming and being on the beach but I couldn't survive without a sun umbrella)

4) Wear loose cotton or linen shirts and pants if you feel that you have to stay covered.

Share this post


Link to post
Share on other sites
chasbari    70

In the early days of my recovery (and leading up to it for many years) I seemed to have lost the ability to handle any sun exposure. I would burn easily and had to be very cautious. Have they been monitoring your vitamin D levels as you recover? I was put on megadoses of D3 and still my D levels were not adequately recovering. When I added a lot of healthy fats and cholesterol from trusted sources, pastured butter, coconut oil and lots of pastured eggs and stayed away from vegetable fats like crisco, corn oil, canola oil, soy oil, cottonseed oil, my D levels began to rise and I was able to begin tolerating sun exposure once again. I went from being pale and pasty to having a more natural color year round. I don't overdo exposure but certainly tolerate it much better now. The paradox of sunscreen is that you are spreading a toxic substance on the body's largest organ that blocks the body's ability to synthesize vitamin D naturally. The mechanism of producing it requires ample supplies of cholesterol, so if you are trying to eat low fat/low cholesterol it seems you would be setting up the mechanism where you remove the very things that the skin needs sun exposure to make for good vitamin D levels. Vitamin D which is now being understood to be crucial in the prevention of all sorts of disease mechanisms.

Share this post


Link to post
Share on other sites
durrsakja    1

A rash similar to heat rash after a day at the beach was one of the first things I noticed when I started getting sick. I still get a similar rash now if I go to the beach. I am not sure if it is celiac related but I hope with the supplements and gluten-free diet it will eventually go away. I try and stay in the shade as much as possible and put on sunscreen.

Share this post


Link to post
Share on other sites
alesusy    6

You're making me think that my extreme sun sensitivity is not a matter of age but of depleted skin resources due to celiac disease... who knows! It would be a nice thing...

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:


TGK112    7

Thank you for the thoughtful and thorough responses.

 

I've been extra careful to stay in the shade and to load up on sun screen - and the rash has cleared up. I use to be a "sun worship-per" as a teen - and maybe now I am paying the price. 

 

I never had this problem before - so I was wondering if it is a celiac connection. I tend to blame all of my woes on celiac! <_<

Share this post


Link to post
Share on other sites
Calmom    0

I noticed it seemed to be worse the first summer after I went gluten free. I had never had the itchy bumps you described (Polymorphous Light Eruption) pior to that.

I deffinetly belive it is celiac related.

Share this post


Link to post
Share on other sites


Ads by Google:


DeeMiko    0

I had polymorphous light eruption for years, but found after I stopped eating gluten it actually went away. During the PLE my dermatologist had me apply 50+ spf sunscreen Plus a lotion that contained zinc oxide.  This would help keep the rash/hives at bay.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,864
    • Total Posts
      938,375
  • Member Statistics

    • Total Members
      65,762
    • Most Online
      3,093

    Newest Member
    don1938
    Joined
  • Popular Now

  • Topics

  • Posts

    • http://jamanetwork.com/journals/jamadermatology/fullarticle/423327 Found this article that suggests a link between PD and the Mthfr genes (which are also associated with Celiac Disease).    Taking methyl forms of B9 (methylfolate) and B12 (methylcobalamine), and B6 (P5P), makes these vitamins more usable to people with the Mthfr genes.   Celiac Disease causes malabsorption.  Celiacs on a gluten free diet may develop deficiencies.  (Gluten free breads and cookies are not required to be fortified with vitamins like their gluten containing counterparts.)   Perhaps adding these vitamins would be beneficial. Hope this helps.
    • I'm not sure that this is the original study I looked at, but it does describe the different antibodies found circulating in the blood that is specific to DH (anti-eTG, which is analogous to anti-tTG in regular celiac disease). At any rate, it seems that they can test for it, but many labs do not have the ability to do so or doctors do not know to ask for this lab test. So I suppose if one was very interested in a diagnosis, one could go to a research centre where they would likely have the ability to test for its presence! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4435051/
    • Welcome.  You might consider staying on gluten and seeing your doctor for a celiac blood test panel.  You need to be consuming gluten for several  weeks prior to the blood draw otherwise the tests can be invalid.   You could have celiac disease or a gluten sensitivity.   The only way to know for sure is to get tested as there are over 200 symptoms attributed to celiac disease and those can overlap with other illnesses.   Best to rule out celiac disease.  Learn more:  http://www.cureceliacdisease.org/screening/ Celiac disease symptoms are like a chameleon -- always changing.    
    • Yes, you can get diagnosed with biopsies prior to having a celiac (antibodies) blood panel.  That what they did BEFORE the blood test was invented.   Thyroid issues are common with many who have celiac disease.  It was prudent that your doctor ordered these tests.   The lipase test is linked to the pancreas.  Again, a poor result can be attributed to celiac disease.  
    • So where oh where to begin. I read all and everyone's post because as a community I think it's extra special when people have others they can vent to that understand how each other are feeling. Ok enough with the gushy stuff. Down to business. I have been gluten free for almost 9 months October 4 (im counting)  the relief I have felt is diarhea is gone. Another good positive symptom and sign is I'm 5'7 so at diagnosis I withered away to about 108 (very sickly all muscle was gone) I now I got weighed in at 122 today! And I'm literally eating whole foods some extra food maybe some chips here and there but I've always been a chip person. I haven't weighed 122 since I was 18 (Im 29) so that part had me excited. Except for the last few weeks my fatigue has come back with a vengeance. I don't know where it's coming from, i got my thyroid (just tsh until I see endo at end of month when she will check all thyroid hormones) and it was at 3.45 I'm not on thyroid hormone so I wonder if this is causing my fatigue and fast weight gain since I started gaining weight pretty fast (even though I needed it, it happened all at once over a month) I'm also having severe hair loss. I had my iron checked and it's all went up except my ferritin which was at 15 last week's blood test. My symptoms consist mainly of hair loss, shortness of breath, dizziness especially from sitting to standing, really bad raynauds attacks everyday all day (on feet) neck pain (severe) now new symptom started about 4 months ago the back of my shoulder bone to the elbow and clavicle bone are all hurting so so bad. I don't expect anyone to know what's wrong with me I just felt like venting. Also I was prescribed neomycin and xifaxin because a hydrogen breath test showed high methane in my test but normal level hydrogen so the actual SIBO test was negative but she was confused about the high methane and said I may benefit from the antibiotics. I still am waiting to get them from my insurance. I'm a seronegative celiac with positive biopsy. We've already gone through and rules out other scenarios for the villous blunting and IEL's. Any info would help me. I feel so weak some days. And all doctors want to say it's anxiety. I've heard that for far too long I actually went to a hematologist today because I've been freaked out the last year my wbc have been at 3.3 which my lab range is 4.5 and above to whatever the higher limit is. He told me to do a bone marrow biopsy because of the pain in my shoulder and arm and my "low wbc "which he wasn't even concerned about. Is this necessary right now or am I just spooking myself. Is it common to have low wbc. Could it be the extra methane in my breath or whatever. Any help would be great. Listen I have friends and family but they won't listen to all this. They think most of this is in my head. 
  • Upcoming Events