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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Getting Tested Again?
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Hi, 

 

I was diagnosed with Celiac in March 2011. By November of 2012 I finally had gotten my tTg level back down to normal. I've been doing really well since and haven't gotten sick at all. Feeling great.

 

I'm going to lose my current health insurance at the end of September and need to decide if I want to go in for a check up blood test to make sure that gluten isn't sneaking in without me knowing.

 

How often do you get your levels checked if at all? My doctor didn't say anything other than congratulations during our last conversation. 

 

Thanks!

 

Jessica

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My GP won't do any sort of blood check test. Period. I have started seeing another ( nutrition based) doctor and he seems to want to test every two months. I would say that the ideal is every year until you are sure you are healed (negative tests and no symptoms) and then only when you suspect a problem after that.

Congrats inherently negative levels! :D

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Jessica, I would go for the follow up while you have insurance. ;)

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I get mine done every six months. Probably will cut back to annual now that I was diagnosed over two years ago. I agree - definitely go while you still have insurance.

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I was every six months for the first two years until both my celiac panel and nutrients were all good.  Now I get them all annually.

 

I agree with Lisa and Peter -- get them done while you have insurance -- along with any other tests you can think of. 

 

We remain insured but this past few years our coverage has increased at a ridiculous rate which has required our family to change to a catastrophic policy until I am back to work full time.

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Thanks for the advice! Even though my last test was negative, I'm going to schedule another appointment while I can to make sure that I'm still on track even though I haven't gotten sick :)

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First check 6 months after, since those were normal, both myself and my 8 year old only have to go yearly. Forever, according to my GI!

She also checks my iron still, as I'm having trouble getting that up. My 8 year old had normal vitamin levels after diet change, so her pediatrician doesn't need to monitor her nutrients regularly.

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Thanks to everyone who replied. Just got my test results back and my ttg is still normal. Whoop!

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