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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

1 Month :)
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14 posts in this topic

    One month yesterday!! (I just looked it up!) And I feel so much better!! Not 100% but so much better!! I still wake up with leg cramps, but I am NOT running to the restroom all the time and I have more energy, altho I do feel really tired during the middle of the day, like I want to take a nap. In fact I did the other day!! I have NEVER been a napper before.I feel better after the nap. Other than that and a lil constipation I am doing great!! I want to get on some Probiotics , still am going to see the Gastro guy on the 6th. Not sure why at this point but will talk to him. Thank you all for the great support!! I love this place!! :) I am amazed at myself!! I also will go back to the Dr, Because I still have a rash on my back, losing hair and my toe nails and also the white tongue thing. But feeling better is wonderful!! :) 

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Party?

 

Hell Yes!

 

One Month with all that improvement....NICE :)

 

I am so pleased you are improving quickly....you are awesome...hang tough!

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Congratulations. Keep up with the high spirit, and don't get discouraged if some days feel harder again. Healing is through a curve just like learning.

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Thanks !! Yes I am amazed I feel so much better!!! It is such a load off me knowing what my problem is. Now I can go out and eat and not have horrible pains and stuff , I am amazed!! Now I will get to my other issues when I see the Dr. Next week. At least I feel better! I may not be 100% healthy but I feel soooooo much better!! Even my friends can tell the difference! I cannot w8 to talk to my Dr. I have not seen him since I was Dx'd ... His office called and told me, so I have not talked to him about it as of yet .... 

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This is fantastic news:)

Great to hear you are getting improvement so quickly.

Your positive attitude on the board in the last few weeks has been lovely, I am sure you will continue to improve

Mw x

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Thanks everyone! I am so very happy to be here!! I have learned so very much!! Thanks!!

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Congrats!  It is great to be feeling better!

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skidding in late.............been a zombie for a bit there.............congratulations on your one month!  Also add you have been a wonderful fun additional to the board and I am glad you are here and beyond happy to know you are improving quickly!

 

Hip Hip Hooray for You :)

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I am so glad you are feeling better. Isn't it wonderful to feel GREAT?!  :D

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great news!  congratulations!  :D

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Well Thanks e1 :) But sadly now I think I am having a set back! I have had some big "D" problems the last few days!! Like horrible! I am trying to figure out what the problem is!! I am thinking it may be Dairy ??? I just don't know... I have an appt with the GI Dr. The 6th. Hoping to get to a nutritionist , or dietitian or someone to help me.... I have lost 25 lbs in the last month ... But I am still feeling better, I am hoping I get more answers from Dr's ... But until then I will be very careful of what I eat. To tell you the truth, I am afraid to eat anything when I am out. I go to restaurants with my friends and don't order anything. Came home from a Vaca 9 1/2 hr drive and didn't eat anything . This is the same thing I was doing before I was DX'd ... when I am out I won't eat anything. I am supposed to go to  Mackinac Island with a couple of friends for 3 days. I am going to be afraid to eat anything... Not really sure If I should go or not. It is payed for. Maybe talking to the Doc will help. Here I was doing so well!! Just don't know!! I did buy some probiotics today from The Whole Food Store .... :) Trying everything I can :) Thanks for all the support!! :) 

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Well It has been 2 months :) Yay for me!! My set back was from a restaurant I ate from  :( , But I went to Mackinac Island and there was a Pizza place that had Gluten Free pizza!! It was my first time with Gluten free Pizza!! I loved it!! They said they were very careful about how they cooked it and utensils they used. I had no problem!! :) We went back the next night I had a burger with no bun and a salad. I was going to see if the cook could microwave me a tater but all their potatoes came in frozen. I wasn't going to risk that contamination so I got a side salad. So 2 months in I am doing pretty good!! 

I am still suffering from exhaustion tho, I feel like I have worked for a week straight! Hard labor and I am exhausted! Altho I don't work! I hope that gets better soon. Seems I have my good days and bad days. Just try and plug along!! Maby it is from my trip?

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    • Hello and welcome I don't have celiac. I do have several symptoms in common with you and I do have a problem with gluten, so NCGS for want of a better term.  A celiac response to gluten involves the immune system so there certainly can be a delay between ingestion and the body producing the antibodies. That would correlate with your tongue aching progressively through the week. Some of the weirder symptoms of celiac occur because those antibodies that have identified gluten proteins as a problem then attack different parts of the body, maybe that's the more delayed reaction in your case. Last time I was glutened definitely I noticed some reaction in a few hours but it was a couple of days before I was certain. After effects can last for weeks or months even.  Wheat allergy is the one with the instant response, it's IGE mediated and so you can have an immediate surge in histamines and in extreme cases anaphylaptic reaction. NCGS is less well understood, some dispute it's existince or question if gluten is the cause. The symptoms however are similar to celiac as far as I know and that includes response time.  You've been through a miserable time but your still young and you need to decide whether you want to pursue a diagnosis or not. If you do, then it will require a gluten challenge of probably 6-12 weeks. See the links below for more details.  If you don't I suggest you go strictly gluten free, keep a food diary and see if the improvements you noted before continue. I think you've probably found your answer. Best of luck!   Further reading https://www.celiac.com/gluten-free/announcement/3-frequently-asked-questions-about-celiac-disease/
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