• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Doctor Is Suggesting Lupus ?
0

13 posts in this topic

is there anyone on here that knows anything about lupus?

 

is there some kind of connection with celiac/ncgi?

 

ive googled it  and it does seem to cover many of my symptoms including the face rash.just gotta wait for the blood test results now

its odd but im so hoping its positive-coz then at least i,ll have some sort of answer and can start to sort myself out

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


The main link to celiac disease is that they are both autoimmune diseases, and a gluten sensitivity can bother symptoms of lupus/SLE.

I suspected lupus in myself too and my GP agreed. I had 4 of the 11 diagnostic criteria but by time I got into a rheumy, my symptoms had improved so much that I had nothing to show them. My blood tests (besides ANA in the past) were negative too. The rheumy thought my facial rash, arthralgias, fatigue and mouth ulcers were all caused by celiac disease... I hope she is right.

Have you checked the diagnostic criteria? http://www.lupus.org/webmodules/webarticlesnet/templates/new_learndiagnosing.aspx?ArticleId=2241

Good luck with the testing.

0

Share this post


Link to post
Share on other sites

Right now Lupus in on m list of things getting checked out.

 

There are several problems with getting Lupus figured out - it may take awhile for the bloodwork to catch up with the symptoms (ie. you can have symptoms but clear bloodwork). It is the "disease of a thousand faces" - it is quite variable in its presentation.

 

You never said what your symtpoms were, in addition to celiac, but mine include intense joint pain, fatigue, dryness, some muscle pain, etc. It's a long haul and if it is lupus, well heck, that's not great either. Keep at it, keep searching, see who you need to see to get help & live a 'normal' life.

0

Share this post


Link to post
Share on other sites

hi thanks for answering,

 

im not celiac, all my tests have been negative up to yet. i was 99% sure i was so i went gluten and dairy free anyway. i had about 6 weeks feeling fantastic and its been downhill from there. had to give up nightshade veg as well coz i felt they aggravated my joint pain and made my face and palm rash worse.i even had allergy tests and they showed nothing.

 

my symptoms are exactly the same as yours northern elf, the joint pain is the worse. i very rarely have any gastro problems at all. just need some answers now, im getting really fed up.

0

Share this post


Link to post
Share on other sites

Keep plugging along....guess it's really all one can do !!!

I am on my way to a rare blood disorder clinic next month because my IgG levels are low (immunodeficiency). Right now that's all we got to go on. I have been gluten free for 11 years and have had severe, symmetrical joint pain and fatigue issues for almost 3. I have seen 2 rheumatologists and a neurologist. I have also had pneumonia a year and a half ago and several chest infections since, which is why they measuered my immunoglobulin levels.

 

I was reading somewhere that when a doc tells you he has run 'all the blood tests' that's not true.......there are many....what he is really saying is that he has run the common ones.

 

I tested negative for celiac too (bloodwork) but consider myself a celiac because I am very sensitive to gluten, can't eat it without getting quite sick. Celiac or gluten intolerance can be linked to autoimmune conditions like Lupus, Rheumatoid arthritis, etc.

 

I wish you the best of luck - and some answers !

0

Share this post


Link to post
Share on other sites
Ads by Google:


I have a positive ANA and messed up bloodwork.  They tell me I have "sicca" which is dry eyes, skin and mouth along with fatigue and mild joint pain.  It could develop into lupus or scleroderma.  So far what I have read is that I have sjogren's disease until something else changes the diagnosis.

 

Hope you get some answers.  I am on plaquenil and my fatigue is MUCH better. 

 

Renaye

0

Share this post


Link to post
Share on other sites

One of the first things my endocrinologist  did  when I was first referred to her was  ANA testing , it came back positive but negative for lupus  . My hashimoto antibodys were high ( read off the chart .lol)

Both my daughters (both diagnosed celiacs) ANA testing  came  positive but negative for lupus .

0

Share this post


Link to post
Share on other sites




According to my doctor if one has an autoimmune disease like celiac, you are more likely to have another autoimmune disease, although it isn't necessarily so.  Even if you aren't diagnosed as celiac, but did find it helpful for a bit, maybe try sticking to it until you get an official diagnosis. 

 

I'm currently in a similar boat.  Diagnosed celiac, but still sick and waiting for results from ANA testing for lupus. 

0

Share this post


Link to post
Share on other sites

ANA testing is tricky. It can be caused by other AI diseases like thyroiditis and possibly celiac disease, and it's numbers can change. I have had a positive ANA in the past on different occasions but it has been normal for over a year.

A positive ANA is a clue, it is not definitive.

Good luck with the tests.

0

Share this post


Link to post
Share on other sites

kinda got some results, 

 

the nurse rang and said some of the tests are borderline and i need to have tests in 6 months, my b12 is low and i have to have tablets for a month to see if it changes. and they couldnt do all the tests coz they ran out of blood??? so i have to go back on tues to have more blood tests!!

 

so i dont know if this happens a lot or if they are just stalling me,or rechecking some results. who knows!- im trying to chill out and not get too wound up about it. 

0

Share this post


Link to post
Share on other sites




I have a positive ANA and messed up bloodwork.  They tell me I have "sicca" which is dry eyes, skin and mouth along with fatigue and mild joint pain.  It could develop into lupus or scleroderma.  So far what I have read is that I have sjogren's disease until something else changes the diagnosis.

 

Hope you get some answers.  I am on plaquenil and my fatigue is MUCH better. 

 

Renaye

Renaye.....I have Sjogren's, Celiac, Hashi's and Reynaud's Syndrome.  If you have one AI disease, including Celiac, it can raise your ANA.  Most doctors do not know this, as hard as that is to believe.  You sound like you have Sjogren's, most defintely, and having elevated ANA/Sjogren's does not mean in any way you will end up with Lupus or anything worse.  My ANA was ridiculously high and it has been slowly coming down over the past 8 years...funny enough, the longer I am gluten free.  I do not see a Rheumy because too many are Debbie Downer's and act like you will keep popping for AI problems.  I take nothing for my AI diseases except thyroid hormone and Restasis eye drops for the dry eye.  You may want to try it as it does work wonders for the dry eye problem.  It doesn't make it go away but my eyes are 80% better using the Restasis. 

 

Above all, stay positive and don't let them load you up with too many meds.  It will aggravate the Sjogren's.

0

Share this post


Link to post
Share on other sites

Gemini

Thanks for the suggestions. I have a wonderful rhuemmy doctor that believes that my disease was caught early. I am not on many drugs. The plaquenil has helped me get out of bed in the mornings and for a while, I couldn't. I was in such terrible shape for a while, with pain, fatigue, gluten, egg, dairy and peanut intolerances that I was started on an anti-depressant. It is a wonderful thing not to cry every day to work and not worry that you are going to die. I do have symptoms of scleroderma, but no skin hardening so that is always a frightening thing for me to deal with. Generally, I am feeling better than I have felt in 3 years and for me, that is great.

I did try restasis but my eyes swelled up and the doctor took me off of it. So I have eye plugs and they are wonderful.

Thanks and take care!

Renaye

0

Share this post


Link to post
Share on other sites

It's always funny to hear the different reactions that people get from different treatment options.  The eye plugs did squat for me...no difference at all but the Restasis worked wonders.  Go figure!  Glad to hear you feel better but that will happen anyway once you remain gluten-free for a while.  A lot of the symptoms of these issues overlap so figuring it all out can be daunting.  But the fact you notice such a big difference already is a really good sign.  Hope your recovery continues

well!  :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,341
    • Total Posts
      935,591
  • Member Statistics

    • Total Members
      65,004
    • Most Online
      3,093

    Newest Member
    susa
    Joined
  • Popular Now

  • Topics

  • Posts

    •     http://www.takepart.com/article/2014/08/11/coffee-adulterated https://www.thetimes.co.uk/article/how-was-your-morning-coffee-did-it-taste-like-mud-v6rfdmrrr92 http://grist.org/food/coffee-taste-like-dirt-thats-because-it-might-be/ " Using liquid chromatography, which identifies the individual chemical components of a mixture, the Brazilian scientists found wheat, soy bean, brown sugar, barley, corn, and rice commonly interspersed with the grounded coffee they tested. Large amounts of wood and dirt were also prevalent, an issue not only for purists who prefer to drink their coffee black, but for those with potential allergies to the unknown additives. As TIME reports, the scientists are identifying the rogue coffee with increasing accuracy:" http://www.bodyandsoul.com.au/health/health-news/is-there-wheat-hidden-in-your-coffee/news-story/a3d53a7c36b76156f08d89eab6a396b3   -----   I have also read other references to coffee upsetting those with celiac.   Personally I have a family history of officially diagnosed celiac even though I have never been diagnosed myself..then again Ive never been properly tested. My drs just keep saying the following symptoms are anxiety and wont refer me to a gastroenterologist for:   Loss of bowel control, pale coloured stools, severe bloating, passing undigested food, ataxia, vertigo, migraine headaches, feeling feverish, repeated ulcers on my tongue and in my mouth, feeling generally ill and sleep issues (mostly falling asleep when I dont want to but rarely insomnia).   Because they insist its anxiety as routine blood tests are normal they wont refer me to a gut dr. They did do a blood test for celiac once on my request but it came back negative. This does not phase me when it comes to my suspicians that gluten is an issue for me because:   1 I was on a gluten free diet at the time, hence why i was well enough to crawl to the gps office. 2 I have a family history of celiac 3 MY symptoms are alleviated by a gluten free, dairy free, oat free, corn free diet..and lately, coffee free it seems. Coffee has indeed become a problem for me recently. 4 I could not tolerate gluten based baby foods as an infant. I was admitted to hospital as a baby for being underweight because I was vomitting all my food up. They put me on gluten free formula and i was fine, stopped being sick and gained weight. I could have grown out of it but considering the symtpoms i get on a gluten based diet, i really doubt it.   -----   When it comes to the coffee, food manufacturers will do most anything to make profits if they think they can get away with it. We live in a world where money is most important and if they do get caught...they can always claim they have no idea how the barley got in there!    
    • If you have had a sleep study and been diagnosed, you have sleep apnea. It's definitely different than waking up to go to the bathroom. Are you using your cpap every night for The entire night. Naps too? SA can actually cause death so it's very Important for you to use it every time you sleep. Do you follow up with your doctor yearly? Sorry to sound like the SA police, but I know someone who died from it. He wasn't using his cpap anymore, thought it was uncomfortable.     What Is Sleep Apnea?   Sleep apnea (AP-ne-ah) is a common disorder in which you have one or more pauses in breathing or shallow breaths while you sleep. Breathing pauses can last from a few seconds to minutes. They may occur 30 times or more an hour. Typically, normal breathing then starts again, sometimes with a loud snort or choking sound. Sleep apnea usually is a chronic (ongoing) condition that disrupts your sleep. When your breathing pauses or becomes shallow, you’ll often move out of deep sleep and into light sleep.
    • Summer sausage, rope sausage or link sausage? what were the ingredients? Msg makes me dizzy.
    • I found it confusing as to whether this was gluten or free not.  However, I've not had gluten in two weeks now and had Hillshire Farms beef sausage this morning and my head is literally spinning.  I'm going to assume I shouldn't have eaten it.  It was good......but will avoid it from now on.
    • I've suffered with this for a very long time and never knew it was part of celiac. At age 13 I had the very first episode that I can recall.  Much later in life I had the bad peristalsis that accompanies celiac and would suffer for up to an hour after the initial symptoms began accompanying the D.  Mine would courteously wait until later in the mornings as I would get up at 4AM to get ready for work, and then it would burst upon the scene at about 7:30 AM with a vengeance.  Finally, 17 years ago, I did a search on my computer for causes for D and learned it could be caused by wheat, or celiac most likely.  Afterward I visited my MD who poopoo'd the idea that an adult could possibly have have celiac, her words "That's a children's disease".  She then sent me to gastro for a Sigmo, and it was then labeled IBS.   The symptoms continued until I got all the glutens out of my diet and then there was mostly quiet in my gut.  Then 10 years ago she sent me back to gastro to have a look at why it kept happening, had both upper & lower GI and the old Doc could not confirm anything as by then there was healing. Had it been caught back when I was 13, sure the food choices would have been plain foods instead of the cool pies and cookies offered at home, but better health. BUT, yes Night D does accompany celiac disease.
  • Upcoming Events