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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Constipation. Anyone Want To Give Me Some Advice?
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To start, this is my first time ever being constipated.  95% of the time my bowel movements occur multiple times a day (usually after every meal and when I initially wake up), so when I only had 1 the other day, I started to panic.

 

I am on my second day of being constipated and it is AWFUL.  I am so uncomfortable (sleeping was a pain), sitting makes my butt hurt, and my lower back (like where my cheeks are) is sore.  Now, if other people who suffer from constipation regularly were in my shoes, maybe they wouldn't view it as so bad, but for someone who has never experience this, it's not okay.

 

So far I have been able to pass SOME stool, but it has all be soft.  Like the kind that falls apart in the toilet?  That is totally normal for me.  But, I still feel like I need to go.  What do I do?  And why am I constipated, but pooping soft stool?

 

Also, when I sit down, it's almost like I can feel whatever is in there.  This is tmi, but it literally feels like it's in my left buttcheek.

 

I'm about to run out and get some prune juice and I was thinking about eating some oatmeal.  Good ideas? 

 

Does anyone have any better advice?

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Prune juice can't hurt. Make sure you try gluten-free certified oats if you do make the oatmeal.

 

Hopefully someone has a better idea. A change in diet will probably be the best idea. Google it? :) 

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Renegade    4

From my experience, prune juice is crap, it only gives you the illusion that you getting it out but most of it is just prune juice itself. Yesterday I tried something new that isnt usually recommended and it worked wonder, 2 tablespoon of organic castor oil. It was a good one but apparently some can have bad stuff in them, not to sure about that. Also probiotics help, so if you aren't lactose intolerant, get yourself a good yogurt.

 

Would be nice if you told us a list of what you have been eating recently as well.

 

Oh and COFFEE, that is also one thing that stimulate your system.

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From my experience, prune juice is crap, it only gives you the illusion that you getting it out but most of it is just prune juice itself. Yesterday I tried something new that isnt usually recommended and it worked wonder, 2 tablespoon of organic castor oil. It was a good one but apparently some can have bad stuff in them, not to sure about that. Also probiotics help, so if you aren't lactose intolerant, get yourself a good yogurt.

 

Would be nice if you told us a list of what you have been eating recently as well.

 

Oh and COFFEE, that is also one thing that stimulate your system.

Oh! Here's a list of the past 3 days

Yesterday

   Breakfast: oatmeal with honey

   Lunch: Kids 6 piece grilled chicken meal from Chikfila

   Dinner: I ate half of a hot dog because I was started to feel more discomfort

Friday:

   Breakfast: oatmeal with honey again

   Lunch: burger patty

   Dinner: .....cheese grits (the culprit I believe)

Thursday:

   Breakfast: oatmeal with honey again

   Lunch: fish and some fries

   Dinner: burger patty

 

Overall, obviously I need more vegetables and fruit.  I know I do.  In my defense, while I know I need more of those things, this has never ever been a problem before.  Everything just passes right through me.  I drink loads of water.  Like 7-8 glasses a day, sometimes more.  

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mamaw    133

Here's  my thoughts:

 

the  water  you  drink  should  be  pure  water... Not  faucet water.... You  should  drink  half  your body  weight  in ounces in  water  daily. ie  weight 100#   then ypu  should  have  50  ounces  of  pure  water  per  day  . ie: five  swallows every half  hour  or  so.. Drinking  water  by  an 8 ounce  glass  will do nothing  to  cleanse  the  body  nor  do you any good. You will just pee it  out....

You may  want to cut out  oats  until  you give  your  body  time  to  begin to heal. Many  gluten-free  people  can not  tolerate  oats  ever....

 

I  would  suggest  you  try  eating  basic  plain gluten-free  foods  made  at  home. Again  for  three to six  months  to  give  your  body  a  chance to  recover....Make  your  own  organic  chicken   &  gluten-free  foods  &  carry  a lunch  if  you work ..That  way  you  are  not  or  will have less  CC....

 

You  certainly  need more  fruits, veggies, &  proteins.... try  grazing  if  you  can't  or  don't  have time  for  a  meal....

Digestive  enzymes &  probiotics  are  needed...

Have  your  thyroid  checked  ....not  just  the TSH. ask for  that  plus  T-3, T-4 Total T-3, FT3 , FT4,  glucose,  A1C, vit B-12, Vit D...  lipid  panel, ,  CBC

 

now  to  the  big  C..... I  have  chronic  C  which means  there is nothing wrong   (been  tested  hundreds  of times) . I  have  tried  every  thing  in the book. What  I  found  that  has  helped  is: mineral oil ( used  for  babies  with C)... align,  miralax taken  twice  a  day until  results.... not  habit  forming  .......I  actually  was  in hospital  for  over  a week  with  the big C.....   

Now,  when you  describe  how it  feels  I  wonder  about  hemorrhoids. I  think you  should  check that  out for sure...polpys  also....

 

If  you  are not  to  Constipated  warmed  prune  juice  may   a  little... 

 

mamaw

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IrishHeart    1,634

A  few questions/suggestions:

 

(1) No more take out from Chick-fil-a --because take out from fast food places is not "real food". 

 

(2) Is the oatmeal certified gluten-free?

 

(3) Do you eat any leafy green veggies?

 

 

(4)  do you take probiotics?

 

(5) are the grits also Certified gluten-free?

 

(6) cheese binds you up when the gut is impaired from celiac (at first)

 

(7) how long have you been diagnosed and gluten-free?

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Adalaide    361

I'm also worried about the oatmeal considering your history you've posted with shopping and such. If it isn't certified gluten free, it isn't gluten free. The grits can pose the same risk even though they're corn.

 

My first though on why you are experiencing this issue is that it is a reaction to what you did last Friday night. The repercussions of that sort of thing aren't only immediate, even the GI symptoms. I can tell you from personal experience after CC that having horrid D right away is normal for me, but it is then followed by horrid C off and on that can last a few weeks until my body knocks off the nonsense. So no, eating gluten will only compound your problem. Please, follow the sound advice that has already been given rather than debating whether or not to poison yourself again.

 

ETA: for anyone confused by my response, there are two separate threads on the same topic, one asks straight up if eating gluten is the answer.

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A  few questions/suggestions:

 

(1) No more take out from Chick-fil-a --because take out from fast food places is not "real food". 

 

(2) Is the oatmeal certified gluten-free?

 

(3) Do you eat any leafy green veggies?

 

 

(4)  do you take probiotics?

 

(5) are the grits also Certified gluten-free?

 

(6) cheese binds you up when the gut is impaired from celiac (at first)

 

(7) how long have you been diagnosed and gluten-free?

1. Check. No more fast food

2. The oatmeal is not certified gluten free, but has never been a problem for me in the past.  I have eaten Quakers oatmeal for a very long time with no issues

3. I tend to avoid green leafy veggies because they make me bloat a TON and slows my digestive track, making me uncomfortable

4. I do not take probiotics, but have been researching into them a lot recently and plan to start tacking them soon

5. The grits are also not certified, but again have never caused me issues in the past

6. I know cheese binds up the digestive track.  Sadly... I really love cheese.

7. I have been gluten free since around February of last year (2012)

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mamaw    133

I think  you  answered several of the  questions  yourself in your last post. Plus  try to  follow  what  other posters  have  stated.... You need  to  take  this  disease  more  serious  ,  buckle  down    &  get  strict  with  what you  are  putting  in  your  body.  ITs  almost  like  you are  playing Russian Roulette  with  your  body. You  will never  get  better  it  you  continue  on the  path  you have been on....

good  luck

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If it hurts to sit you probably have hard stool blocking everything else, it's just going to sit there and get worse, no amount of fluid and fibre is going to help. Get some Miralax, some versions are called laxaday. The actual ingredient in PEG 3550. Just ask the pharmacist for PEG they will know what it is. Th advice we were given by a gastro for 2 very urged up kids - take a double dose for 3 days, it will soften everything up and get it out, then take a normal dose for a few weeks to give your bowel a rest and a chance to shrink back to normal. As you've only been backed up a few days I'd try a the double dose for 1 day and a single dose for a week. That should solve you initial problem, but like other posters said you need to make sure the things you are eating are gluten free. C was our kids min sign of being glutened.

With the PEG you can't really overdose, if it turns to liquid poop, just lower the dose a little. We keep PEG in the house for accidental glutenings, my eldest is just getting over one, she was telling us she couldn't eat because her poop was stuck and food had nowhere to go. No amount of water, prune juice etc helped, the PEG cleared things out and she drank more than a liter of water today and has gone to bed a very happy 4 yr old again.

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IrishHeart    1,634

I think  you  answered several of the  questions  yourself in your last post. Plus  try to  follow  what  other posters  have  stated.... You need  to  take  this  disease  more  serious  ,  buckle  down    &  get  strict  with  what you  are  putting  in  your  body.  ITs  almost  like  you are  playing Russian Roulette  with  your  body. You  will never  get  better  it  you  continue  on the  path  you have been on....

good  luck

 

I agree completely.

 

Not checking for foods that are certified gluten-free will continue to gluten you. Cross contamination is serious business.

 

If you have celiac disease, you really need to stop glutening yourself. You are constantly poisoning yourself and fueling the inflammatory response and that is why you do not feel well.

 

Best wishes.

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Renegade    4

It's not because you ate oatmeal your entire life and it never caused problems that it won't now. I ate non gluten free oatmeal almost every single day for 2 years and i can't even tolerate gluten free oatmeal anymore, so don't assume that because you had no trouble with a food in the past that symptoms can't start showing up, Why do you think most of us who had gluten all their life get problems now, following your logic since we had gluten all our life, an intolerance should have never happened, yet it did.

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Adalaide    361

It frankly doesn't matter if it bothered you before or not. Oatmeal that is not certified gluten free is not gluten free. You can either take your disease seriously, or not. We just got done with this discussion a week and a half ago. If you want your parents to take your disease seriously, you need to. Stop. Eating. Gluten. That means no oatmeal that isn't gluten free. No grits that aren't gluten free. No fried chicken dinners. No crumbs, no just a little, no skimping, cheating or getting by. Until you care, your parents won't. And why should they?

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It frankly doesn't matter if it bothered you before or not. Oatmeal that is not certified gluten free is not gluten free. You can either take your disease seriously, or not. We just got done with this discussion a week and a half ago. If you want your parents to take your disease seriously, you need to. Stop. Eating. Gluten. That means no oatmeal that isn't gluten free. No grits that aren't gluten free. No fried chicken dinners. No crumbs, no just a little, no skimping, cheating or getting by. Until you care, your parents won't. And why should they?

I just thought that since the ingredients on the box didn't list any gluten, that it was okay.  I'll be sure to only get certified gluten-free things from now on.

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If it hurts to sit you probably have hard stool blocking everything else, it's just going to sit there and get worse, no amount of fluid and fibre is going to help. Get some Miralax, some versions are called laxaday. The actual ingredient in PEG 3550. Just ask the pharmacist for PEG they will know what it is. Th advice we were given by a gastro for 2 very urged up kids - take a double dose for 3 days, it will soften everything up and get it out, then take a normal dose for a few weeks to give your bowel a rest and a chance to shrink back to normal. As you've only been backed up a few days I'd try a the double dose for 1 day and a single dose for a week. That should solve you initial problem, but like other posters said you need to make sure the things you are eating are gluten free. C was our kids min sign of being glutened.

With the PEG you can't really overdose, if it turns to liquid poop, just lower the dose a little. We keep PEG in the house for accidental glutenings, my eldest is just getting over one, she was telling us she couldn't eat because her poop was stuck and food had nowhere to go. No amount of water, prune juice etc helped, the PEG cleared things out and she drank more than a liter of water today and has gone to bed a very happy 4 yr old again.

I drank prune juice yesterday and today and so far my constipation is now the total opposite.  It still hurts to sit though.  I can't tell if I'm just sore or if there is something still causing a blockage.  Do you know if it would be bad to take Miralax if it turns out I'm just sore?  I think I'd rather be safe than sorry, but I don't want to cause any more issues.

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kareng    1,992

I just thought that since the ingredients on the box didn't list any gluten, that it was okay.  I'll be sure to only get certified gluten-free things from now on.

  

I drank prune juice yesterday and today and so far my constipation is now the total opposite.  It still hurts to sit though.  I can't tell if I'm just sore or if there is something still causing a blockage.  Do you know if it would be bad to take Miralax if it turns out I'm just sore?  I think I'd rather be safe than sorry, but I don't want to cause any more issues.

Now you just aren't listening, young lady! :) Oats are an exception. Even Quaker will tell you there is a very big possibly that the oats contain accidental wheat. Maybe they should label that, but its not required by law.

As for more meds to make the diarrhea worse? Stop that! Give your body time to heal from the problem it had yesterday and the " cure".

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Adalaide    361

Since things seem to be moving along, I'd just let it do so. It is possible that you'll be sore and icky feeling for a bit while things get themselves worked out again. Now you can just focus on healthy things to get back to being normal and regular. Try to eat a diet high in fiber, even if that means you are getting your fiber mainly from fresh fruits and veggies. Keep away from the cheese. Just focus on healthy, naturally gluten free foods for now. And drink plenty of water.

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twe0708    7

I great way to get your fruit in is to make a fruit smoothie.  I purchase a magic bullet and love it.  I add about 5 strawberries, 7 blackberries, one banana, and a handful of spinach that you get in the salad section.  Add a half of cup of crushed ice and water and mix.  It is so good and you can't taste the spinach.  I also do the same with vegetable - two sticks of chopped celery, 6 carrots and kale or spinach, add strawberries or half an apple for taste add ice and water.   

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notme!    287

 I purchase a magic bullet and love it. 

(me too!  it is so handy to make salad dressings!)

 

hey, lexi :)  why are you eating gluten free?  are you under a doctor's care currently?  

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(me too!  it is so handy to make salad dressings!)

 

hey, lexi :)  why are you eating gluten free?  are you under a doctor's care currently?  

I have celiac disease and have been gluten-free for over a year now

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Renegade    4

I have celiac disease and have been gluten-free for over a year now

 

That is going to sound very harsh but no you have not been, you have been limiting it a lot.

 

gluten-free would mean you get certified gluten-free oats not regular ones and even Quaker mention it may contain wheat.

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notme!    287

I have celiac disease and have been gluten-free for over a year now

i'm glad you are here, then :)  our doctors tend to diagnose us and shove us out the door - "eat gluten free!  you're cured!  good luck!  tty....n!"  lolz - mine couldn't answer any of my questions and were clueless about hidden gluten.  so, happy opposite day - i'm not the C expert, mine 'runs' the other way (the dreaded big D).  i do notice being a little more bound up when i eat cheese, though.  maybe you should skip that for awhile and see how you feel.  are you currently keeping a food journal/have you ever done that?  helps me to figure out what in the world have i eaten  :blink:  

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That is going to sound very harsh but no you have not been, you have been limiting it a lot.

 

gluten-free would mean you get certified gluten-free oats not regular ones and even Quaker mention it may contain wheat.

I was diagnosed with Celiac this summer.  Having to buy only "certified" foods is new to me because last year when I started avoiding gluten, I could still eat some things and be fine.  I am learning as my symptoms intensify what I can and cannot handle.

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