• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Need Potty Training Help!
0

3 posts in this topic

Hello!  I am new here!  We just found out my 3 year old has Celiac Disease about a month ago.  Positive blood tests and positive biopsy, etc.  We have been gluten free for around 5 weeks now. 

 

The reason we even found out she had this was because I could not get her potty trained.  After 7 months I complained to my pediatrician who ran a ton of tests and we are glad she did!

 

Sorry if this gets graphic, but I need help.  So  my daugthter has bowel movements up to 10 times a day.  It is not loose stool, more like the consistency of clay.  We have her on miralax daily because she is just always full of stool otherwise.  However, her going all day long in tiny increments is not ideal either.  She is now in preschool and I had to get a dr's note for her to even attend because they are supposed to be potty trained and she is clearly not.

 

Any ideas?  She is 3 years and 3 months and we have been potty training for 8 months.  It's really just the bowel movements that are the issue, but I am losing it here!  Last night we went to a baseball game and I had to change her 3 times in 4 hours and she does not even fit well on those diaper changing tables anymore!  Will this get better as her system  heals?  or is this just something that comes with the territory? 

 

 

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


It's probably going to take her some time to adjust and figure these things out.  If she's been going 10 times a day, she may not have built up the muscular control she needs just yet.  I would encourage you to give her time, but also to practice.  I know it sounds odd, but what helped my daughter most (though she didn't have these particular issues to work through) was being able to go outside on the grass in our back yard.  (Just like our dog, which is why she thought it was so cool.)  Then there was no "oh, I gotta go" or "oh, I just went" panic, and no "hold it! hold it! hold it until you get to the potty!" scare either.

 

Would it be possible/realistic to start to (slowly!) lower the dose of miralax?

0

Share this post


Link to post
Share on other sites

It might be worth talking to your doctor about a bowel management programme. It basically involves set toilet times, for certain amount of time. It helped our daughters deal with my eldest going from being so backed up she was leaking up to 20 times a day, and my youngest who was so impacted she couldn't go. Miralax along with bowel retraining worked. Our ped said there bodies just need retrained to learn the signals. It's funny but my 4 yr old still goes at the set times without being told to! I say we are goin out her reply is I'm just going to the bathroom before we go! She potty trained in 3 days. My horrifically impacted 2 yr old turned round and asked for underwear and that was that. Be patient it will happen, her body has been through a lot, and you'll soon be loving the calls of mom im on the toilet come wipe my bum!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,802
    • Total Posts
      932,550
  • Member Statistics

    • Total Members
      64,291
    • Most Online
      3,093

    Newest Member
    1Newtothis
    Joined
  • Popular Now

  • Topics

  • Posts

    • I would suggest a certified gluten free soy sauce, just to be safe.  Test that and if you react, you'll be able to rule out a gluten reaction from La Choy.  
    • I second cycling lady here, you should not go gluten free unless your doctor confirms you have celiac disease via the blood test and a biopsy. You need to be eating gluten for the testing to be accurate so a 30 day trial based on the gene is a REALLY bad idea, getting back on gluten for the testing is a nightmare once out of your system. Also going gluten free, what are you eating? If your eating just a bunch of gluten-free foods that are processed like the pre made breads, foods etc. your on the wrong path. Those are normally non enriched and more like junk food/comfort food. You need to eat a whole foods diet, of various greens, meats, nuts, seeds, (fruit if you can have it and sweet potatoes). etc. Doing this will boost your healing and you and introduce some of those processed foods later on sometimes. If you have celiac disease then your intestines are probably damaged and you will need to supplement some nutrients, we all have common ones like magnesium, iron, b-vitamins, folate, potassium, D etc. and you should talk to a good doctor about what your missing. The whole out of it things sounds like b-vitamins to me. Another point is going gluten free, you have to be careful for CC if your a celiac, after removing gluten re exposure to gluten makes your symptoms MUCH worse, and the tend to change and evolve in addition. Be sure to check the Newbie 101, your pretty much have to replace most of your cookware, condiments, etc. https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/  
    • Do you still consume gluten and/or dairy? If so, I highly recommend that you eliminate both entirely. That includes anything with the ingredients; whey powder, casein, "lactose free" can be misleading as well. I also recommend taking a good probiotic regularly.  http://mentalhealthdaily.com/2016/03/01/10-best-probiotics-for-depression-anxiety-gut-brain-axis-modification/  I use Garden of Life brand for Mood. I buy it in the refrigerated section at Whole Foods. I also recommend double doses of B vitamin for a stint. However, you should have a full work up done by a neurologist, if you haven't already. Assuming everything comes  back negative then I highly recommend trying these few things.  I hope you can find answers and start feeling healthy again.
    • I suggest researching Mast Cell Activation Syndrome or EOE.   http://www.mayoclinic.org/diseases-conditions/eosinophilic-esophagitis/basics/definition/con-20035681  Also, Benadryl crosses the blood brain barrier and there have been long-term complications.  Talk to your doctor about using  another antihistamine.  If your reactions have been anaphylactic, you should have an epi pen.  I hope you feel better soon!  
    • Welcome!   Yikes, first I would suggest that you consider a new doctor.  Your doctor gave you some pretty bad advice biased on your posting.   The celiac gene is common.  Some 30% or more of the population carries the genes that could develop into celiac disease.  Are you sure it was not an antibodies test?  Telling you to go gluten free for a 30 day trial is another huge error.  Often they takes months to years for a celiac to recover.  A celiac is diagosed by blood tests and small intestinal biopsies obtained via an endoscopy.  There are times when an endoscopy is skipped because if financial reasons, too ill or long wait times.   Learn more at the University of Chicago's celiac website which is very informative and well-recognized.   http://www.cureceliacdisease.org/screening/  
  • Upcoming Events