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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Lower Back Heat Sensation
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10 posts in this topic

I was diagnosed with Celiac Disease exactly two weeks ago and have taken gluten completely out of my diet.  Well 6 days later I started to get a heat sensation in my lower back when I lay down flat on my back.  I wouldn´t say it hurts but it is like a burning sensation inside my lower back.  It´s not hot to the touch.  I can feel it a little bit when I am standing up but it is more intense when I am laying flat on my back.  Has anyone else experienced something like this related to Celiac Disease?  Thanks.

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Diagnosed in March.  I broke a vertebrae just laying down four weeks ago (or maybe it was trying to get off the floor....we'll never know!  After the initial pain, I have a burning sensation and numbness.   Most pain occurred when I was trying to move in bed.   I'm scheduled for a bone density test in two weeks.  Meanwhile my back is healing.  Taking calcium and Vit. D per my doc.   Osteoporosis is common for those with celiac disease and who have not been diagnosed for a while.  Some experience pain and some do not with a fracture. 

 

I wish you the best.

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I am now thinking that the lower back pain comes after I drink pop.  I have drank cola and orange pops and it seems to bother me the same.  Has anyone heard about lower back pain (heat sensation) being connected with carbonation or caffeine?

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I have had the heat sensation you are describing.  It was quite uncomfortable and rather disturbing to me.  It was early in my diagnosis.  It also went away.  When this happens, DO NOT stand around in the shower with really hot water running down your back and be sure to pat it dry but do not rub across it with your towel. Don't massage it, don't scratch it.  Do not lotion it.  Continue eating gluten free and while the carbonation is not causing it, drinking more water will help you much more in that it is not acidic and THAT will be more helpful to your nerves that are creating this sensation.

 

Also, I know a physician with celiac disease.  She had patches of skin that produced this strange heat/burning sensation too.

 

It will most likely get better.  It might get a little worse first.  Be patient.  Don't stress it.

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I have had the heat sensation you are describing.  It was quite uncomfortable and rather disturbing to me.  It was early in my diagnosis.  It also went away.  When this happens, DO NOT stand around in the shower with really hot water running down your back and be sure to pat it dry but do not rub across it with your towel. Don't massage it, don't scratch it.  Do not lotion it.  Continue eating gluten free and while the carbonation is not causing it, drinking more water will help you much more in that it is not acidic and THAT will be more helpful to your nerves that are creating this sensation.

 

Also, I know a physician with celiac disease.  She had patches of skin that produced this strange heat/burning sensation too.

 

It will most likely get better.  It might get a little worse first.  Be patient.  Don't stress it.

Thanks for the encouragement!  Sometimes I feel like I am better and then all of a sudden I feel like I fall back a step or two.  I have now gone almost six weeks without gluten and milk, beans, and eggs (my other allergies), nevertheless I am sure that something gets in every now and then.  It has been quite a struggle to keep it all out.  However, my back is feeling better today (no pop).  Thanks again.

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Hi!

I have exactly these symptoms - plus I have a tingling, pins and needles sensation on the bottom of my left foot, around the middle of my instep, that for some reason seems to be related.

Does anyone know how to "cure" them both?

Thanks very much

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45 minutes ago, TGT said:

Hi!

I have exactly these symptoms - plus I have a tingling, pins and needles sensation on the bottom of my left foot, around the middle of my instep, that for some reason seems to be related.

Does anyone know how to "cure" them both?

Thanks very much

Welcome!  Do you suspect that celiac disease is the root cause of your symptoms? 

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On 3/15/2017 at 3:55 PM, cyclinglady said:

Welcome!  Do you suspect that celiac disease is the root cause of your symptoms? 

Hi!

Having read the stories of the people on this website, mine is identical. Many years of battling through health issues, misdiagnosis from doctors, and basically struggling along on your own, trying to fathom out what's going on. I have never been diagnosed with Celiac disease, but gluten is definitely a major cause of all my digestive issues. I came across this site by chance, trying to see if anyone else had the heat sensation in the lower back that I am currently experiencing, that I am certain is somehow linked to all of this.

Thanks! - and any advice, similar experiences, explanations for it etc would be VERY gladly received!

 

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The original poster has not been around for a while and I personally do not have the back pain you described.  Celiac disease (celiac disease) can cause osteoporosis.  Have you been evaluated for fractures?  Neurological issues are also linked to celiac disease  and can take a long, long time to heal.  

How long have you been gluten free?  You might consider testing to confirm if you still have gluten in your diet or consider a gluten challenge and then get tested.  Here is more information:

http://www.cureceliacdisease.org/screening/

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11 hours ago, TGT said:

Thanks! - and any advice, similar experiences, explanations for it etc would be VERY gladly received!

 

Hi and welcome :)

You may be better starting a new topic as people may ignore an older thread resurfacing. 

I know how excited you will be to have potentially found some answers and you will be tempted to go gluten free, but to find out if you've got celiac you need to keep eating it.  The site has an faq here: https://www.celiac.com/gluten-free/announcement/3-frequently-asked-questions-about-celiac-disease/

and you may find some of the links in this post useful as well:

 

Best of luck :) 

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