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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Raising Vitamin D Levels?
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17 posts in this topic

Hi!

I've been diagnosed for a long time and its well controlled. The last 3.5 years I've been pregnant and/or breastfeeding, 2 c-sections and my body is struggling a little. I'm having trouble with vitamin D levels, my new doctor (like my old doctor) just keep telling me to take 1000iu of vitamin D, but I already do plus good food, however my numbers are about 20 and I want them much higher, especially as my 10 month old still nurses regularly and isn't eating a huge amount yet.

Anyone know more about what sort if levels I can take?

Thank you!

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hi, tess - my doc has me on 50,000 iu 1x per week - mine was at 24 - i'm going for a visit on wednesday, so i am curious how much they have gone up (i hope!) certainly makes a big difference and i was surprised at how low i was.  i'm going to ask if i can take a lower dose once per day (hard to remember once a week and i have a brain like a seive lolz) and also see if he would prescribe me something that isn't delivered in soybean oil.  i'll let you know if the 1x per wk mega-dose worked (on wednesday)  :)

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I take 5 drops of liquid  5,000 d3 daily.  I am up from 3 drops which put me at borderline normal.

 

 

D

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My level was 29 two months ago, and I was able to raise it to 50 in just eight weeks by taking 4000 IU of d3 daily. I went gluten-free shortly after the first vitamin level test. I'm not sure how quickly people's levels usually rise, but that seemed like a good increase to me in such a short time! My doctor gave me the ok to take the 4000 IU daily, though she also said that 29 was a fine level and I didn't really need to raise it (so I'm not sure how up on d levels she actually is).

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Sun!

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Sun!

In moderation!  lol   15-20 min a day.   and supplement with D3, not D2.

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Thanks everyone. I was taking prenatals, fish oil and getting midday sun for 20 minutes when I was below 20, then got up to 29 on prescription vit D, but the doctors don't seem as worries about my levels as I am, but I know breastfeeding especially I really need to get them up (and hope some of my joint pain disappears). Anyway I have been researching also on the vitamin d council website and will take 5000ui a day. Thanks everyone.

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I'm glad you're questioning your doctors.  I'm also taking 50000 ius once a week right now and will get it retested soon.  I had a level of 25 in February this year and supplemented with 3000 ius a day and had it retested last time in June and it went to a 28.  The Vitamin D Council recommends a level of 50.  http://www.vitamindcouncil.org/about-vitamin-d/testing-for-vitamin-d/

 

I should've asked...are you gluten free already?  Also have you had your cholesterol tested lately?  Even with sunlight exposure, if you have low cholesterol your body will be unable to create Vitamin D since it is made from cholesterol, and low cholesterol is some people's only indicator of having celiac. 

 

good luck!

 

 

Thanks everyone. I was taking prenatals, fish oil and getting midday sun for 20 minutes when I was below 20, then got up to 29 on prescription vit D, but the doctors don't seem as worries about my levels as I am, but I know breastfeeding especially I really need to get them up (and hope some of my joint pain disappears). Anyway I have been researching also on the vitamin d council website and will take 5000ui a day. Thanks everyone.

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Sun!

I garden 3-4 hours a day, but my levels were still low.  I live in Minnesota, so perhaps the northern rays are not so strong.  .

 

I asked if the body must process the Vitamin D through the small intestine, but it doesn't.  I have a beautiful tan, but still need to supplement my vitamin D!

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I also spend a lot of time outdoors and it didn't raise my D level, which was puzzling. But I had low cholesterol too (not shockingly low, but 20 points below the low-end value of the reference range, despite eating meat and quite a bit of cheese). I never realized they could be connected! My doctor applauded the low cholesterol as if it were a good thing.

It is amazing how all the weird and unexplained pieces keep falling into place...People here are seriously better at making sense of stuff than all the doctors I've ever see. Wish I'd found this site years ago!

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I have cholesterol issues (slightly high, good and bad) and that's barely touching animal products, just genetics (from the non celiac side also) something I try and control by a very strict diet so I can breastfeed.

Anyone recommend a vitamin D3 drops?

Thanks for all the posts!

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winner!  lolz - is that what your doc recommended, tess?

 

In moderation!  lol   15-20 min a day.   and supplement with D3, not D2.

my doc has me on d2 - why is d3 better?  i'm going on wednesday, trying to get all my ducks in a row (before i go see my quack LOLZ couldn't resist that one - he's really not a bad doc.  he just needs fine-tuning lolz)  what are the drops in or is it just 'straight' vitamin d3?

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No Doctor hasn't replied yet to my email, I researched it on the vitamin D council website

http://www.vitamindcouncil.org/

They said (as did my lactation consultant) D3 is better, I can't remember why. I also know its absorbed better with fish oil, so I take them together plus trying to eat wild salmon often amongst other things. I give my young children D3 yum drops by jarrow.

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thanks -- i think i will take a look-see at that website :)

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I garden 3-4 hours a day, but my levels were still low.  I live in Minnesota, so perhaps the northern rays are not so strong.  .

 

I asked if the body must process the Vitamin D through the small intestine, but it doesn't.  I have a beautiful tan, but still need to supplement my vitamin D!

Once you tan, you reduce the amount of vit D that you make.  also, don't shower/bathe immediately after sunning.

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winner!  lolz - is that what your doc recommended, tess?

 

my doc has me on d2 - why is d3 better?  i'm going on wednesday, trying to get all my ducks in a row (before i go see my quack LOLZ couldn't resist that one - he's really not a bad doc.  he just needs fine-tuning lolz)  what are the drops in or is it just 'straight' vitamin d3?

D2 is the plant form, D3 is the usable animal form. 

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No Doctor hasn't replied yet to my email, I researched it on the vitamin D council website

http://www.vitamindcouncil.org/

They said (as did my lactation consultant) D3 is better, I can't remember why. I also know its absorbed better with fish oil, so I take them together plus trying to eat wild salmon often amongst other things. I give my young children D3 yum drops by jarrow.

hopefully you have read on the vit D site about the accusations of child abuse related to osteomalacia/fractures in breast fed infants of D def moms?m

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