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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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If anyone could help or advise I would be eternally grateful, access to information is extremely limited in the UK and from what I am increasingly discovering doctors from GP’s to specialists are pretty clueless.

 

I originally posted my symptoms on here three months ago. Background, I was slowly recovering from the diagnosis of Coeliac Disease in March, I’d just enjoyed a fantastic weekend with my girlfriend when I was randomly hit by a huge bout of anxiety that took me off my feet. Never had a history of anxiety, had no reason to be hit by it.

 

Symptoms that have followed include: Anxiety that is worse in the mornings, fade in the afternoon and die off after 6pm – dizziness, confusion, displacement – acid feelings in my legs, jelly arms, intercostal pain in ribs and numb limbs. It’s like ground hog day every day and this has been my life for the last 12 weeks.

 

I have had every test imaginable Vitamins, brain scan etc and the only resulting factor is cortisol levels are too high – I have been tested for Cushings and that doesn’t appear to be conclusive. The doctors have advised taking anti anxiety meds to curb the problem but I refuse to take them as I know its not the root of the problem. I dose out on Kalms (over the counter herbal remedy) each day just to take the edge of the feelings.

 

I am aware there are links between Coeliac and anxiety, I would be interested if anyone has experienced the same symptoms and recovered?

 

I have taken the following to date which has had little to no success: Vitamins B, C, D – other complex vits like Berroca. I have just started taking Magnesium but a little too early to say whether this has worked or not.

 

Any help or advice would be really appreciated. 

 

Many thanks

 

Chris

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Hi Chris - I have increased feelings of anxiety when I've been glutened (increased heart rate, being on edge, etc) but otherwise the rest of my anxiety seems to be separate from my Celiac disease. Have you met with a psychiatrist?

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Same here- anxiety for me is directly tied to gluten intake.  I was seeing a therapist (who used to fall asleep because my issues were so boring- for real) before I got a proper diagnosis.  Slowly, the residual feelings of anxiety subsided as I stayed on the diet.  Mine was always worse at night.  I stopped seeing the therapist soon after dx.  The next step with her was anti-anxiety drugs.  How long have you been gluten free?  5 months?  Have you considered another intolerance causing this reaction?  Are you having panic attacks?

 

I hope you find some relief, English Chris.  Sorry I can't be of more help.

American Shellie

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Although I don't have anxiety I do get very angry when I have too many carbohydrates. I keep my carb intake very low and this helps my mood issues. My two sons have the same issue. A really good book is  called The Mood Cure by Julia Ross. She deals with many mood issues and what supplements can help along with diet. It has been very helpful in getting my son's issues under control.

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