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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Got Results Back Its Not Lupus
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jhol    0

so once again i get a negative result!!!

 

not sure how long i can cope with all this .im so fed up at the moment. i dont have lupus but my blood sugar is a tiny bit high ( the nurse said its hardly worth commenting on)- but they are gonna do a diabetes test anyway. my b 12 is low so ive got some tablets to take. when the doc was looking at the computer i was having a sneaky read - my b12 was 138!! i thought that was really low- so now im taking tablets for 3 months with no way of knowing if they are being absorbed or not.

she has said that shes refered me to a dermatologist for the rashes which is good- hopefully i,ll get some answers from them.

i did think i saw a few abnormals on the test results when i was having a sneaky peek so im gonna ring up tomorrow and ask for copies and copies of the last one that had the celiac tests on. that should be interesting to see exactly which tests they did.

 

so ive had my moan lol. hope i get some answers soon..

 

 

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mommida    158

I'm glad to hear that it is not Lupus.

 

There is enough evidence to show that gluten is "more complex" for the human digestive track and that auto-immune disorders do better on a gluten free diet.When your testing is complete, try a gluten free diet.  If you feel better not eating gluten, then don't eat it.  Your body's reaction is a "scientific" proof.  (You will unfortunately have an accidental glutening that may prove this.)

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ravenwoodglass    1,214

Low B12 can really mess with your nervous system and more. Hopefully the tablets you are taking are sublingual. Sublinguals are absorbed by the mucus membranes in your mouth and bypass a damaged gut. Hope you get some answers soon and once your celiac testing is finished be sure to give the diet a good strict try for a bit.

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nvsmom    332

Celiac can mimic lupus, there are a handful of us around here who thought we had it because our symptoms were the same. Luckily, if it is celiac disease, our symptoms will improve over time (years). It's toughto have no diagnosis because we aren't given meds to treat symptoms in the short term, but at least we have the potential to get better in the long run.

 

I hope you feel well soon.

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jhol    0

I'm glad to hear that it is not Lupus.

 

There is enough evidence to show that gluten is "more complex" for the human digestive track and that auto-immune disorders do better on a gluten free diet.When your testing is complete, try a gluten free diet.  If you feel better not eating gluten, then don't eat it.  Your body's reaction is a "scientific" proof.  (You will unfortunately have an accidental glutening that may prove this.)

hi thanks for answering

 

i am doing gluten free - since january. i felt fantastic at first then other symptoms kicked in. gave up dairy, soya and nightshades. but any testing i had done was all negative. i still have joint pain and so tired. but now im b12 deficient im now thinking that all my problems are down to that and maybe im not gluten intolerant at all. this not having a diagnosis is really getting to me. i did get my results off the doctor but theres only one test been done. dont know if you know anything about the tests but here's what was done.

. iga level       0.7          u/ml       (<6.9 u)        nk         normal

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jhol    0

oh forgot to mention that ive started to "grow" lumps on my middle knuckle of my middle finger. worst on my right hand but my left is starting to go the same way. thats why the doctor tested me for auto immune disease. but the only thing they,ve found is the low b12- dont know if the knuckle thing could be coz of that ?

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