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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

When Did The D And C Get Better For You?
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answerseeker    15

I've been 7 weeks gluten free and really feeling good. Pain is gone and energy is returning.

However I still get some gurgling in the belly and my D and C is still present. I still haven't had a normal bm.

Normal?

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flowerqueen    26

I've been 7 weeks gluten free and really feeling good. Pain is gone and energy is returning.

However I still get some gurgling in the belly and my D and C is still present. I still haven't had a normal bm.

Normal?

It's still very early days yet.  It can take a lot longer just to start to feel well and you are already much improved, so that is a good sign. 

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kareng    1,992

It could take months.  Not meant to be discouraging, just truthful.  Its more than just healing.  You made need to build up the good germs in your system.  You are eating differently, so you may be getting more fiber or less fiber.  As you heal, it can change.  This week you may need extra fiber but 2 months from now you might not or vice a versa. 

 

Its just a balancing act and not always easy to figure out.  Do the best you can and give it another month or 2.

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answerseeker    15

Ok. it alternates between loose stools(sorry that's gross) and constipation. So it makes it difficult to determine what I need! I'm taking my probiotics in the meantime.

I also think its all messed up because in 2012 I was on 4 different rounds of antibiotics in a year. Need to build back up the good bacteria I guess

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kareng    1,992

Are you eating dairy?  IF so, you might want to cut it out for a few weeks and see if that helps.  When you get everything running smoothly, you can try it again.

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answerseeker    15

Are you eating dairy?  IF so, you might want to cut it out for a few weeks and see if that helps.  When you get everything running smoothly, you can try it again.

yes, milk in my gluten free chex almost every morning and half n half in my coffee

 

is lactose free milk a good option or a nut milk better?

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kareng    1,992

yes, milk in my gluten free chex almost every morning and half n half in my coffee

 

is lactose free milk a good option or a nut milk better?

 

 

I'm just thinking about the lactose.  But that doesn't seem like much milk/lactose for the day.  Maybe that's not a problem.

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IrishHeart    1,634

I'd dump the dairy for a few months and see if it helps. It took me a while to get my gut straightened out and stop the alternating

D and C I had for my entire life. What worked for me  was probiotics, no dairy, time. You'll get there, too. Hang in there.

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answerseeker    15

okie dokie ;)

 

I'd dump the dairy for a few months and see if it helps. It took me a while to get my gut straightened out and stop the alternating

D and C I had for my entire life. What worked for me  was probiotics, no dairy, time. You'll get there, too. Hang in there.

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answerseeker    15

I have been eating a bit of ice cream in the evenings too. and we go out for frozen yogurt often. I'm guessing that's the problem.

 

I kind of knew it in the back of my mind because I get "the gurgles" after I eat ice cream, but I love my ice cream :wub:

 

with gluten my reaction is literally within 20min but it seems dairy is a ittle harder to figure out because it is not right away, I get the gurgling but the D comes usually the next day. I had it this morning before I ate anything, back to the food journal.......

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kareng    1,992

I have been eating a bit of ice cream in the evenings too. and we go out for frozen yogurt often. I'm guessing that's the problem.

 

I kind of knew it in the back of my mind because I get "the gurgles" after I eat ice cream, but I love my ice cream :wub:

 

with gluten my reaction is literally within 20min but it seems dairy is a ittle harder to figure out because it is not right away, I get the gurgling but the D comes usually the next day. I had it this morning before I ate anything, back to the food journal.......

 

So delicious makes some yummy ice cream, too!  One or two  flavors aren't gluten-free, so check the ingredients.  The cookie dough flavor is gluten-free cookie dough.

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I'm with IrishHeart on the coconut milk. I really don't miss dairy all that much with coconut milk and daiya cheese. I'll go back to it someday but it's nothing I'm missing out on now.

 

Hope you feel better soon! 

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bartfull    565

Going out for ice cream could be a problem. They use gluten cones at ice cream places and VERY often (I know 'cause I used to manage an ice cream shop), cone crumbs fall into the tubs. And with the soft serve, those cones very often touch the nozzle. And hands that touch the cones will often touch the inside of the cup they put your ice cream in. Or the spoons! Cone crumbs get everywhere and a lot of times there will be crumbs at the bottom of the container the plastic spoons are sitting in. One place I worked at was so busy in the summertime it looked like a tornado had passed through by the second hour - broken cones and ice cream drips everywhere.  I never worked so hard in my life!

 

So even after you try dairy again, I think it's best to eat your ice cream at home. :)

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nvsmom    332

C slowed for me at 6 months  but then it started to alternate between C and some real urgency. At one year gluten-free I am more normal than not now.

 

I think having my thyroid treated really made the difference for me but it's hard to be sure because I was diagnosed at the same time as my celiac.

 

Good luck.

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At some point you might want to consider the possibility that you might be sensitive to lower levels of gluten than average.  I agree with cutting out dairy first.  If things don't improve with that you might want to try some other things like looking for some gluten in your diet which you have missed, or cutting down on cc possibilities.  I needed to do that for resolution of symptoms.

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answerseeker    15

I think your right. I made pancakes for dinner tonight and made my family regular ones and myself gluten free ones. I may have cc'd. I have the gurgles as I'm typing this.

I aslo had a gluten reaction to gluten free chocolate chip cookies so I may be too sensitive still to eat processed gluten free mixes (the pancake mix was from a boxed mixed) I'm going to have to start tracking my eating again so I can get to the bottom of it.

The main symptoms of pain and fatigued are pretty much gone but this and the gurgling still linger

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funkflex    0

Constipation started clearing up after 8 months for me. Still dealing with fatigue and exercise intolerance 10 months after diagnosis/start of gluten-free diet.

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LisaRae28    0

I'm still new to it all n figuring it out so its only been a few months for me but even the milk in my coffee, yogurt at lunch, ESPECIALLY the ice cream at night became apparent to me... I try to eat on a pretty regular schedule now which makes everything else more scheduled n routine and makes my life 10x easier stress wise but I alwaysalways eat a lactaid chewable with my ice cream and one with lunch or meals with a lotta cheese or milk (even my favorite cheese puffs will do it with how many I eat). Anyways If you're curious try some ice cream (that's safe, at home) without it (and really commit to it, tell your family that half gallon is all yours and its for health reasons lol) if it is a prob eat more with some lactaid and see if that helps... Just be aware if you're eating other things with lactose in it because it'll confuse you during your "experiment" they're right about cross contamination tho I had to get a new frying pan because I was pretty sure it mildly happened in the beginning making pancakes (odd, huh?) in the same skillet I had always used for French toast n grilled cheese before... My pot and pan are red now nothing else is and all my utensils are brightly colored and in a separate area... Separate sponge away from the others for hand washing things, etc... It was overwhelming but it's at least getting easier in that area (tho to be fair I think I must have been accidentally glutened somehow fairly recently *but* I'm fairly confident it was when I ate out and it didnt happen at home despite still having normal eating folk in the home)

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