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Unable To Cry

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Having gone through decades of celiac, realizing the problem and than trying to adjust to gluten free life, I have had plenty of reasons to cry.  BUT I CAN'T.

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You can't because you're physically unable to? Or because it just won't happen?

 

If it's the former....there is at least one medical condition that I've heard of but can't tell you off the top of my head so I would put a call (yes, I know, ANOTHER call to the doctor) in to your regular doc and explain that to them.

 

If it's the latter....well.....I'm not sure what to tell you. Maybe you're simply not ready for that yet? Or, maybe some part of your brain is just relieved and doesn't feel the need to cry any longer? The brain is a funny, funny thing. :)

Hugs. I think I've cried enough for a couple people and I am new to this journey and am not even the one fully making it. Of course, that is probably why I've cried so much. I find it easier to cry for or about or whatever for my kids, than I do for things for myself.

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I know I will sometimes put off "dealing" with emotions soon after the event that triggers them, but am hit by them later, when I've gotten a little distance and they aren't so overwhelming. It is a defense mechanism  and personally, I think an extremely effective one. Much better than what I've seen others do when faced with adversity such as not eating, becoming alcoholics, or turning to drugs. The old adage about time healing all wounds (though they may still leave a scar) seems to hold true, at least in my experience.

Or it could be that you're just in a neutral zone right now, having some difficulties switching things around as you give up some things that you had taken for granted, but also knowing that your diagnosis is a REALLY good thing. Balanced.

But I do hope that you never need to cry because you start to  feel more optimistic. I can't tell you how excited I was to finally figure out my mystery. And having all sorts of odd maladies suddenly disappear or start to improve is a huge success. 

 

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I recall standing in the parking lot of a hospital years ago.  I was pregnant and dehydrated.  I was 1000 miles from family and friends.  Except my young husband  that was undergoing intensive training for his new job.  I cried out and made noise, but that time, no tears would come.  I walked into the hospital sullen and quiet.  I found out since that no tears will come when one is dehydrated.  Anyway, I get a similar feeling now when I feel like crying.  Like my eyes fill, but that is all.  Perhaps there is no energy to cry.
 

 

Once I had a friend crying on my shoulder as she was leaving.  I patted her on the back, felt like crying, but no.    Sometimes it would get my points across much better than a million words. Imagine breaking into noisy tears when someone told you are obsessed with diet.   They actually might realize how much it hurt!

 

I think it is physical.  The reason being that the doctor told me that I am having trouble to get the nutrients I need for lack of cortisol from the adrenal glands.  Without cortisol, one can't handle stress. Anyway, so I think we are already working on it.

 

Do I need drugs?  I think not.  Firstly drugs give me terrible side effects.  Second off I actually have real struggles, real reasons to be sad.  Drugs are not for going through a hard time.  This simply needs more time to be overcome.  If I could just let people think what they will without my feeling bad about it.  If I didn't forget that this is only momentary and light compared to what is ahead for me.  If only, but it is tough.

 

I only wanted to know if anyone has ever felt this way and if it resolved or didn't.  You can PM me if you don't care to present publicly   In fact, I tried to submit this anonymously, but failed.  I tried to erase it, but the title still stayed, so I went with it anyway. 

 

I wish I could hang around today and see if anything interesting comes out, but I am off for the day to meet with my health advisor 3 hours away.

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I always thot it was good when the women folk weren't crying.  Might just be my male perspective tho...  Maybe you could give other women classes in not crying?  Probably some men out there would pay to send their wives to your classes.  Where's the little devil face mote?   :ph34r:  :)

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Honestly, D, I don't think it is physical.  You have a lot of kids and have spent so much time being strong for them (including when you were pregnant) that you have learned how not to cry.  You are taking care of everyone else.  Doing that isn't bad.  It may be more of a typical "man" response to a situation but I don't think its odd.

 

I find myself doing the same thing my whole life.  It always seems like someone needs me to be the strong one.  Even as a kid, if there was a death in the family - someone needs to remind the boys to comb their hair after their shower, set out a serving fork for the ham, walk the dog, make the coffee, etc.  While others are crying or sitting like a lump or reminiscing  - no time to cry.

 

Also, like you said - too much to do today to try to cry.  Nice day for a 3 hour drive and a picnic.  Got to the bank and straighten out some stuff with my mom's name on it and the death certificate. 

 

 

You may find some stupid TV commercial or your first grandchild will make you cry sometime in the future.

 

I don't talk about stuff like this here or in person much.  But I think this is a safe place to sometimes spill stuff.  Our  families won't see it and feel bad.

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I always thot it was good when the women folk weren't crying.  Might just be my male perspective tho...  Maybe you could give other women classes in not crying?  Probably some men out there would pay to send their wives to your classes.  Where's the little devil face mote?   :ph34r:  :)

 

 

I can see you are one of those guys that wants to fix it for the crying ladies.  :wub:

Sometimes there is nothing to fix and that drives you guys nuts!  But women find it very sweet. 

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I've read that having celiac and sjogren's syndrome isn't uncommon. Have you ever looked into that?

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I always thot it was good when the women folk weren't crying.  Might just be my male perspective tho...  Maybe you could give other women classes in not crying?  Probably some men out there would pay to send their wives to your classes.  Where's the little devil face mote?   :ph34r:  :)

D's steps to avoid crying:

 

1. Have untreated celiac for decades.

2.  Have the saddest thing happen  to you.  In my case a miscarriage in 1987.

3.  Keep going through life

 

Somehow, I don't think this will fit all!

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I've read that having celiac and sjogren's syndrome isn't uncommon. Have you ever looked into that?

No, I haven't, but I will check on it.

 

Hmmm this sounds like a possibility:  First click took me to Mayo Clinic's definition.

 

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Definition By Mayo Clinic staff

Sjogren's (SHOW-grins) syndrome is a disorder of your immune system identified by its two most common symptoms — dry eyes and a dry mouth.

Sjogren's syndrome often accompanies other immune-system disorders, such as rheumatoid arthritis and lupus. In Sjogren's syndrome, the mucous membranes and moisture-secreting glands of your eyes and mouth are usually affected first — resulting in decreased production of tears and saliva.

Although you can develop Sjogren's syndrome at any age, most people are older than 40 at the time of diagnosis. The condition is much more common in women. Treatment focuses on relieving symptoms, which often subside with time.

 

 

I don't seem to have any shortage of saliva, though.  Then again perhaps it is part of my water craving occasions?

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Honestly, D, I don't think it is physical.  You have a lot of kids and have spent so much time being strong for them (including when you were pregnant) that you have learned how not to cry.  You are taking care of everyone else.  Doing that isn't bad.  It may be more of a typical "man" response to a situation but I don't think its odd.

 

I find myself doing the same thing my whole life.  It always seems like someone needs me to be the strong one.  Even as a kid, if there was a death in the family - someone needs to remind the boys to comb their hair after their shower, set out a serving fork for the ham, walk the dog, make the coffee, etc.  While others are crying or sitting like a lump or reminiscing  - no time to cry.

 

Also, like you said - too much to do today to try to cry.  Nice day for a 3 hour drive and a picnic.  Got to the bank and straighten out some stuff with my mom's name on it and the death certificate. 

 

 

You may find some stupid TV commercial or your first grandchild will make you cry sometime in the future.

 

I don't talk about stuff like this here or in person much.  But I think this is a safe place to sometimes spill stuff.  Our  families won't see it and feel bad.

 

Perhaps the miscarriage needed a strong release of tears and nothing has seemed so sad since.

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D's steps to avoid crying:

 

1. Have untreated celiac for decades.

2.  Have the saddest thing happen  to you.  In my case a miscarriage in 1987.

3.  Keep going through life

 

Somehow, I don't think this will fit all!

 

Hmm, you are right D, we probably won't get many takers on that training!  There are other things to do besides crying tho that might even be more fun.  How about fishing or getting a trophy buck?  Maybe a big tax refund?

 

 

I can see you are one of those guys that wants to fix it for the crying ladies.  :wub:

Sometimes there is nothing to fix and that drives you guys nuts!  But women find it very sweet. 

 

Well, maybe the reverse is what's needed here for D.  Perhaps a list of things to make women cry would help.  I think smashing your thumb with a hammer would do the trick.  Or your favorite football team losing the championship?  Dipping your pigtail in the ink well is out of fashion these days.  Just not PC enough.

 

Well, here's some lists of things that make men cry.

 

10 things that make men cry..

http://news.bbc.co.uk/2/hi/uk_news/magazine/7540659.stm

 

80 more things that make men cry!

http://news.bbc.co.uk/2/hi/uk_news/magazine/7544985.stm

 

They left this one out for some reason.

http://movieclips.com/vkxUE-star-trek-the-wrath-of-khan-movie-spocks-death/

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I was going to suggest Sjogren’s syndrome too. Since you said tears won't actually come out

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I was going to suggest Sjogren’s syndrome too. Since you said tears won't actually come out

I can be awful noisy, but no tears.  It sounds fakey to me!

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Maybe you should get tested I think it's just a blood test?

Any ideas what treatment is available?  I wouldn't test something, unless I can do something about it.  I don't use drugs unless in dire straights.  I just would like to know if it would change my care depending on whether I have it or not.

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Any ideas what treatment is available?  I wouldn't test something, unless I can do something about it.  I don't use drugs unless in dire straights.  I just would like to know if it would change my care depending on whether I have it or not.

I know the dry eye part can lead to some serious eye issues.

http://www.sjogrens.org/home/about-sjogrens-syndrome

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I don't know much about sjogrens, but anything with the word "syndrome" in the name raises a red flag to me. It normally is used when the medical establishment doesn't understand something well enough to diagnose properly or treat.

If I were in your shoes, I'd probably hold off on testing for sjogren's ... for now. Looking them up just now, I see that the tests are pretty similar to the blood tests that are done for celiac - just look for markers of reactions rather than having something specific to identify. So that doesn't seem worth it to me. Plus, the treatments for sjogren's don't treat a cause, just mask the symptoms

I suppose I'd start by doing a ton of research into ALL of the possible causes of reduced tear production. You are more aware of what is going on with your diet and body than what any doctor can learn in a ten-minute appointment, just lack the knowledge/experience to be able to put clues together or ability to order tests. But being more informed could at least help you know what questions to ask when you do see one. And from what little I have researched, a rheumatologist may be helpful because they basically specialize in autoimmune reactions.

And though plenty of people think that reduced tear production can be just a normal part of aging, I'm not buying that. There is something that is causing it, either some sort of deficiency, imbalance, or damage. I can only hope that going gluten free will help your issues to improve as well because many of the causes appear to be auto-immune reactions. 

If you were to have some sort of testing done now, I'd probably start with vitamin deficiencies if you haven't had those tested already. Hormone-level testing couldn't hurt either. But definitely get your test results in writing and do your own research into the normal ranges. So many of them are just too broad and ignore that many of us have horrible symptoms even if we are in the normal ranges, just on the edges of them.

And I wouldn't overlook the really obvious things such as chronic dehydration. 

 

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I don't know much about sjogrens, but anything with the word "syndrome" in the name raises a red flag to me. It normally is used when the medical establishment doesn't understand something well enough to diagnose properly or treat.

If I were in your shoes, I'd probably hold off on testing for sjogren's ... for now. Looking them up just now, I see that the tests are pretty similar to the blood tests that are done for celiac - just look for markers of reactions rather than having something specific to identify. So that doesn't seem worth it to me. Plus, the treatments for sjogren's don't treat a cause, just mask the symptoms

I suppose I'd start by doing a ton of research into ALL of the possible causes of reduced tear production. You are more aware of what is going on with your diet and body than what any doctor can learn in a ten-minute appointment, just lack the knowledge/experience to be able to put clues together or ability to order tests. But being more informed could at least help you know what questions to ask when you do see one. And from what little I have researched, a rheumatologist may be helpful because they basically specialize in autoimmune reactions.

And though plenty of people think that reduced tear production can be just a normal part of aging, I'm not buying that. There is something that is causing it, either some sort of deficiency, imbalance, or damage. I can only hope that going gluten free will help your issues to improve as well because many of the causes appear to be auto-immune reactions. 

If you were to have some sort of testing done now, I'd probably start with vitamin deficiencies if you haven't had those tested already. Hormone-level testing couldn't hurt either. But definitely get your test results in writing and do your own research into the normal ranges. So many of them are just too broad and ignore that many of us have horrible symptoms even if we are in the normal ranges, just on the edges of them.

And I wouldn't overlook the really obvious things such as chronic dehydration. 

 

Thanks, I do feel like I am getting to the roots.  Thanks for helping confirm that.

 

D

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I don't know much about sjogrens, but anything with the word "syndrome" in the name raises a red flag to me. It normally is used when the medical establishment doesn't understand something well enough to diagnose properly or treat.

If I were in your shoes, I'd probably hold off on testing for sjogren's ... for now. Looking them up just now, I see that the tests are pretty similar to the blood tests that are done for celiac - just look for markers of reactions rather than having something specific to identify. So that doesn't seem worth it to me. Plus, the treatments for sjogren's don't treat a cause, just mask the symptoms

I suppose I'd start by doing a ton of research into ALL of the possible causes of reduced tear production. You are more aware of what is going on with your diet and body than what any doctor can learn in a ten-minute appointment, just lack the knowledge/experience to be able to put clues together or ability to order tests. But being more informed could at least help you know what questions to ask when you do see one. And from what little I have researched, a rheumatologist may be helpful because they basically specialize in autoimmune reactions.

And though plenty of people think that reduced tear production can be just a normal part of aging, I'm not buying that. There is something that is causing it, either some sort of deficiency, imbalance, or damage. I can only hope that going gluten free will help your issues to improve as well because many of the causes appear to be auto-immune reactions. 

If you were to have some sort of testing done now, I'd probably start with vitamin deficiencies if you haven't had those tested already. Hormone-level testing couldn't hurt either. But definitely get your test results in writing and do your own research into the normal ranges. So many of them are just too broad and ignore that many of us have horrible symptoms even if we are in the normal ranges, just on the edges of them.

And I wouldn't overlook the really obvious things such as chronic dehydration. 

 

I guess there is some educating to do here......I would agree about the use of the word "syndrome", as in many cases, it can be used to identify a group of symptoms and then symptom treat.  I asked my doctor why the use of "syndrome" vs. disease and this is what she told me.  BTW...this is my functional medicine MD and not the mainstream kind that love to symptom treat.  It is used to describe conditions that exist and are real but have strong overlap of symptoms with other diseases.  Thank you...that was clear as mud.  IBS is one shining example because it's a generic way of saying your bowel is irritated yet is not a specific diagnosis. I have trouble understanding why Sjogren's is listed as a syndrome because it is a real disease.  Your salivery and lachrymal glands are destroyed by your immune system, much the same as your small intestine is by Celiac.  I have Sjogren's and was diagnosed via blood work.  So.......sorry if this is not a good explanation but it's what I learned.  A lot of what the medical world does is confusing.

 

The testing for Sjogren's involves antibody elevation, just like Celiac.  They are looking at SS-A and SS-B antibody levels.  They elevate when the immune system attacks the target glands.  It does not matter one bit that the testing is not for cause and the treatment does not mask the symptoms.  The treatment for the eyes is Restasis eyedrops and they are an extremely useful tool in dealing with the symptoms.  It may not cure anything because nothing will cure Sjogren's but anyone with Sjogren's as bad as I have it would be a fool to not use the eyedrops, if they help.  They can make a night and day difference. You can lose your eyesight from Sjogren's if your eyes get dry enough and I would use crack if it meant not losing my eyesight. Really, I mean that!  ^_^

 

Sjogren's does not cause a person to not be able to produce tears.  I have extremely dry eyes and mouth yet I can cry a flood whan I need to.  I know it says "decreased tear production" but that is in reference to the normal lubrication that occurs from the lachrymal glands.  You produce tears that lubricate your eyes and then there is the extreme release when you are upset and cry. I have dry eyes from day to day because I cannot produce enough tears to lubricate them. Sometimes "plugs" can be inserted into some of the tear ducts to block the loss of this normal lubrication and have it stay within the eye but it didn't do diddly for me and the Restasis did.  It's the only medicine I use for all 4 AI diseases I have and I am grateful we have it or I would have had to retire from my job a while ago as I use my eyes for work that needs good focus.  My eyes become easily irritated and mold bothers them but you learn to adapt and move on as best you can.

 

I would think, Diana, that your inability to shed tears has more to do with psychological issues than physical.  I mean this as a friend and not as a snarky you know what.  :)   You have suffered through the years like many of us and are referencing a miscarriage that happened a long time ago.  Maybe you either have come to accept all that life has thrown at you and have come to peaceful terms with it all as you recover from Celiac OR you have not and, with each new challenge that you face, push it under and don't react now that you feel you need to.  Maybe at some point everything became so overwhelming you just didn't want to deal with it on such a deep level.  That happens a lot to many people....they just seem to get stuck along the way.  Do you feel that this could be the case?  You could be tested for Sjogren's if you have really dry eyes but it usually involves the salivery glands also and you would know if your mouth were as dry as mine.  It isn't pleasant and requires a lot of "symptom' treating with liquids and mouthwashes, etc.  Just be aware that it's like Celiac testing.....you can have Sjogren's and not test positive on the antibody test.  This is pretty much the norm for all autoimmune testing.

 

I wish you luck and let me know if you have other questions about Sjogren's!  :)

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I don't know much about sjogrens, but anything with the word "syndrome" in the name raises a red flag to me. It normally is used when the medical establishment doesn't understand something well enough to diagnose properly or treat.

If I were in your shoes, I'd probably hold off on testing for sjogren's ... for now. Looking them up just now, I see that the tests are pretty similar to the blood tests that are done for celiac - just look for markers of reactions rather than having something specific to identify. So that doesn't seem worth it to me. Plus, the treatments for sjogren's don't treat a cause, just mask the symptoms

I suppose I'd start by doing a ton of research into ALL of the possible causes of reduced tear production. You are more aware of what is going on with your diet and body than what any doctor can learn in a ten-minute appointment, just lack the knowledge/experience to be able to put clues together or ability to order tests. But being more informed could at least help you know what questions to ask when you do see one. And from what little I have researched, a rheumatologist may be helpful because they basically specialize in autoimmune reactions.

And though plenty of people think that reduced tear production can be just a normal part of aging, I'm not buying that. There is something that is causing it, either some sort of deficiency, imbalance, or damage. I can only hope that going gluten free will help your issues to improve as well because many of the causes appear to be auto-immune reactions. 

If you were to have some sort of testing done now, I'd probably start with vitamin deficiencies if you haven't had those tested already. Hormone-level testing couldn't hurt either. But definitely get your test results in writing and do your own research into the normal ranges. So many of them are just too broad and ignore that many of us have horrible symptoms even if we are in the normal ranges, just on the edges of them.

And I wouldn't overlook the really obvious things such as chronic dehydration.

Many illnesses are treated by just treating the symptoms because we have no " cure" to treat the disease. I would think, for a person with Sjorgrens that treating the dry eye would be better than loosing their eyesight while waiting for a cure. Treating the blood sugar issues of a diabetic with insulin seems better to me than waiting for a a cure to fix the pancreas.

I posted the Sjorgrens link to show you all its a " real" disease. If that was her problem for years, her eye doctor would at least be treating her dry eyes.

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Many illnesses are treated by just treating the symptoms because we have no " cure" to treat the disease. I would think, for a person with Sjorgrens that treating the dry eye would be better than loosing their eyesight while waiting for a cure. Treating the blood sugar issues of a diabetic with insulin seems better to me than waiting for a a cure to fix the pancreas.

I posted the Sjorgrens link to show you all its a " real" disease. If that was her problem for years, her eye doctor would at least be treating her dry eyes.

I am just thinking about my Mom.  I got at least 2 genes from Mom's side.  She is going down hill.  I think she has celiac, and did all I could to get her diagnosed, but It didn't work out.  Dad said they couldn't follow the diet anyway.  Dry eyes could be a similarity to my struggles, but I wouldn't say my eyes are dry yet.  They just don't abound when they should.

 

D

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Gemini, I was thinking that jumping to a conclusion that sjogren's is a likely problem here may be a little hasty, especially considering that the original poster hasn't mentioned any complaints with dry eyes or dry mouth. By no means am I saying that sjogrens isn't serious or that using drops if you do have it isn't needed, just that there are many causes for not producing tears and doing one's research before going to a doctor can help.

But I still wish that science would get to the root of the problem. Western medicine is way too happy to treat symptoms without finding causes.

And I'd still say to start with the easy stuff that we know are common in those with celiac first like vitamin deficiencies and hormone imbalances that are linked to lack of tear production. But an additional note, eye doctors should also know more about tear production ... if you can find a good one.

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    • I am wanting to make a mac and cheese recipe that calls for cheddar cheese soup.  Anyone know a substitute for this?  Campbell's has gluten :-(
    • Hey!  I also recently started a gluten free diet because of non Celiac's gluten sensitivity, and as a college student who can't really eat in the dining hall or participate in late night pizza runs, I totally understand where you're coming from. First things first: you probably aren't as much of a burden on people as you think you are. They most likely understand that this is a big transition period for you and will take time. If you are really worried about it,  just talk to them, explain your concern and try to come up with a plan. I have found that if I don't make a big deal about being gluten free, neither will anyone else. The first time or two matter of factly explain that you cannot eat gluten for medical reasons, after that, if someone offers you something you can't eat, I have found it to be best to just respond with a simple "no thanks!" As far as making sure you don't starve, nut based granola bars (such as kind bars) are your best friend. I always try to have one or two handy, especially on trips! ( I like to have savory ones, like Thai chili flavored, that way it feel more like eating real food than sweet flavored ones!) That way, if there is really nothing you can eat, you always have something. I also scoured celiac and gluten free blogs my first few weeks and figured out what fast food places have Celiac's and NCGS friendly options (Chick-fil-A is a good one, I usually get their fries and request that they fry them in their designated gluten free frier, and a side salad, Wendy's is also good, you can get any of their baked potatoes, chili, or side salad with no croutons, there are a lot of other places too, but there are my favorites) I have found that a lot of times there are things that we can eat places, but because Celiac's and especially NCGS is something that has just started to get more attention, most people, even those working at restaurants just aren't familiar with it, and most restaurants do not have a designated gluten free menu. Your smart phone and Google are also great, I am all the time in a  restaurant googling "does (restaurant's dish) have  gluten?" Usually we can eat salads, and burgers and such without buns, but it is always a good idea to just tell your waiter or the person taking your order something to the effect of " hey! I am unable to eat gluten for medical reasons, which means I can't have things made with wheat, rye , or barley, or anything that touches things made with it, I was hoping to have (dish), Which isn't made with any of these things, but was wondering if you could use clean utensils and preparing area, that way I don't get sick! Thank you!" Usually people are more than happy to help, they just don't understand your situation. As far as you feeling like less of an outcast, this transition period has been a great time for me to realize the importance of hanging out with people and enjoying their company, even if you can't fully participate. No one really cares if they are all eating pizza and you are eating a sandwich you brought on gluten free bread. People are going to express concern because they care about you and don't want you to be hungry or feel left out. Whenever someone says something like " oh will you be able to eat anything here?" Or "oh I'm sorry I'm eating (delicious gluten thing)" just not making a big deal out of it and saying something like "oh I'm good anywhere!" (Because you are with your granola bar! Also you can almost always eat salad) Or "no, you enjoy what you like!" Will make you and them feel better. For a while you will feel a little left out, and that is okay, but I have found that I am so much happier when I go on that pizza run with my friends and a granola bar, even if at first you have to fake it till you make it! Good luck! I know it isn't easy, but it does get better!💙💙
    • Anyone who has ever tried to get an official diagnosis for celiac disease has likely experienced one very unpleasant reality: Having to eat wheat for a couple of weeks to make sure the antibody tests are accurate. Currently celiac diagnosis requires gluten consumption. This can be hard for people who have already given up gluten. View the full article
    • Perhaps automated word pull as JMG suggested. It is irrelevant, but I must comment :  Oddly was entertaining for me today (on a rough day) to read this drivel that included celiac bashing . The celiac dis didn't even hurt, for it was from someone who could not formulate a coherent rational  thought  and shared that publicly. At first I wondered what substance the author was on, then I read further to discover more of this odd piece. The author is all over the place. The piece is also laced with a poorly excuted, back handed attempt to express judgement , anger, and veiled hate in a masked arrogant self subscribed Christian label.  Sure the author  makes a point of shaming the offenders who dropped off the offensive clothes. If the author were perhaps more coherent and a better writer the piece could be borderline offensive or effectively shameful. Alas it is neither.  I however felt sorry  not for the donation facility , the homeless , or the readers, but felt sorry for the author . The author clearly has a lot of self hate, anger, low self esteem, poorly hidden beneath a false facade of uppityness, narcissism, arrogance, while identifying /self labeling as a Christian.  I very rarely get to read a piece where I can play/exercise my brain as lay person couch psychologist . This piece lends itself to that perfectly. I went to the link and read the comments below the article from the real people who express how best to give to those in need, where, and how appropriately. So all was not lost. The right people commented kindly, respectfully, logically, in a helpful guiding way and without hate or shame. So regardless of how admin got this article here - most of us should skip this for the rest of us  bored enough or seeking an odd entertainment piece that does not relate to celiac , let's hope the author gets the help they need as a disgusting gluten-free sandwich has more to offer to society. 😉 Lol  
    • Hi Gemma, Welcome to the very select, exclusive, super secret club of NCGS (or I if you like), where you get all the fun of living the gluten free diet with the added scepticism of half the medical establishment and most of the general public   If you're interested in learning more, there's some good resources collected here:  Feel free to add or just post there if you like.  It's great that the diet is working for you. The emotional side is difficult no doubt. It does get easier, trust me, for you and those around you also. You get better at planning, at coping, at working around it etc. The availability of safe foods and wider knowledge continues to improve year on year.  I've barely been back to Germany, one of my favourite countries, since going gluten-free but take some comfort in the fact that its always harder in a different country with a language barrier as well, but even so there's hope: https://foursquare.com/top-places/berlin/best-places-glutenfree-food https://www.tripadvisor.co.uk/Restaurants-g187323-zfz10992-Berlin.html You maybe need to accept there's a level of preplanning needed now that wasn't there before and if you do that you can still be spontaneous in other ways? Expect some setbacks, at times its ok to cry. Or, er happen to get something in your eye if you're a strapping bloke who should know better  Keep a good supply of nice safe snacks and treats at close hand. In your car/bag/pocket. Eat well before you go out. Have your freezer well stocked with nice safe food and your fridge too. Get to know what easy safe options are available, Are you in the UK? Join Coeliac.org and they'll send you the brilliant guide which will unlock so many safe, cheap foods, also available as an app. And post here, lots of good people with advice and support. Best of luck, Matt  
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