• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
OFC

Test Reults

Rate this topic

Recommended Posts

Hello all,

 

I have been reading a lot of information from this site and it is very helpful.  I wanted to know if someone could help explain the results I received from the doctor.  

 

I have read on here several time that a person should have the full celiac panel.

·         tTG IgA and tTG IgG

·         DGP IgA and DGP IgG

·         EMA IgA

·         total serum IgA

·         AGA IgA and AGA IgG

 

 

However, my doctor only tested for Demidated Glaidin IgG and Tissue Transglutaminase IgA.  Are theses test enough to rule out celiac?  

 

                                                               Result                    Normal

Demidated Glaidin IgG                     <25 units/ml                      <25

Tissue Transglutaminase IgA             <2 u/ml                            <20

 

   

I have been on B12 supplements over the past 3 years.  This does not make since to me as I consume a large amount of B12 in my diet.  Would it be helpful to also test for other vitamin deficiencies? 

 

 

 

 

 

 

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Welcome to the board.

 

It's hard to say if those tests are enough to diagnose.  A total serum igA was not run, and 1/20 celiacs are deficient in Iga so your tTG IgA could be invalid if you are deficient. The DGP IgG test is very specific to celiac disease but it's not as sensitive, it can miss 5-30% of celiacs.  see page 12 of this report for more info:

http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf

 

So, those two might be enough, but you never know. If your IgA levels are normal, then I would say it could be enough. Some celiacs only have a positive endoscopyand negative blood tests, it really varies.

 

Those with a gluten intolerance (celiac disease or non-celiac gluten intolerance or NCGI) can be low in the B's (b12), D, ferritin. iron, calcium, potassium, zinc. Anemia is common and thyroid problems crop up frequently, as does diabetes. Those could be good things to check.

 

Are you going to try the gluten-free diet and assume you have NCGI?

Share this post


Link to post
Share on other sites

Thanks for your reply.

 

I am planning on going gluten free for a few months to see if I start feeling better.   I was not sure if I should get more blood test to confirm it is not celiac before going gluten free and assuming NCGI.  

 

I have had my thyroid levels checked over the past 8 months and it goes up and down.   

Share this post


Link to post
Share on other sites

Thanks for your reply.

 

I am planning on going gluten free for a few months to see if I start feeling better.   I was not sure if I should get more blood test to confirm it is not celiac before going gluten free and assuming NCGI.  

 

I have had my thyroid levels checked over the past 8 months and it goes up and down.   

 

Yes, in my opinion you should have the balance of the Celiac Antibody tests you listed in your first post before removing gluten.

 

My celiac doctor ran everything you listed along with nutrients -- at diagnosis and annually since:

 

B1, B2, B6, B12, D, K, Iron, Ferritin, Copper, Zinc

 

CMP - Complete Metabolic Panel - includes several other key nutrients.

 

CBC - Complete Blood Count

 

Good Luck to you :)

Share this post


Link to post
Share on other sites

Yes, in my opinion you should have the balance of the Celiac Antibody tests you listed in your first post before removing gluten.

 

My celiac doctor ran everything you listed along with nutrients -- at diagnosis and annually since:

 

B1, B2, B6, B12, D, K, Iron, Ferritin, Copper, Zinc

 

CMP - Complete Metabolic Panel - includes several other key nutrients.

 

CBC - Complete Blood Count

 

Good Luck to you :)

 

Thanks I will see if I can get retested with the additional test.  

 

Is there a test for all the nutrients or do I need to just bring the list of items I would like them to test for?  

 

Can Celiac and NCGI affect the CBC?  My doctor has been trying to figure out why I would have a low WBC count.

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,888
    • Total Posts
      943,369
  • Member Statistics

    • Total Members
      67,096
    • Most Online
      3,093

    Newest Member
    Graham B
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hello!  When I find myself up at odd hours, I put on this celiac disease Mozart for Meditation... https://www.amazon.com/gp/aw/d/B000VFQ58U/ref=mp_s_a_1_1?ie=UTF8&qid=1516086445&sr=8-1&pi=SX350_PI_PJPrime-Sash-Extra-Large-2017,TopLeft,0,0_AC_SX118_SY170_QL70&keywords=mozart+for+meditation+celiac disease And I get out my dot to dot book, like one of these for adults.... https://www.amazon.com/gp/aw/s/ref=is_s_ss_i_0_5?k=dot+to+dot+books+for+adults&sprefix=dot+t&crid=2B42N4PRIT56H Sometimes I knit mindless objects such as hats, washcloths or socks.  Knitting has a soothing rhythm to it and is easy to learn... Or I read a book about knitting and life... https://www.amazon.com/gp/aw/d/1603420622/ref=mp_s_a_1_2?ie=UTF8&qid=1516087016&sr=8-2&pi=AC_SX236_SY340_FMwebp_QL65&keywords=McPhee+knitting&dpPl=1&dpID=51fHYy2xXsL&ref=plSrch Or a knitting mystery.... https://www.amazon.com/gp/aw/d/B001LRLJUG/ref=mp_s_a_1_6?ie=UTF8&qid=1516087587&sr=8-6&pi=AC_SX236_SY340_FMwebp_QL65&keywords=knitting+mysteries&dpPl=1&dpID=51z43F8UuuL&ref=plSrch Knitting is really easy to learn.  I find it soothing to work with natural fibers, organic cotton for washcloths or luscious alpaca for socks...  But I find it inadvisable to shop online in the wee hours...  😸 I've got way too much yarn now...hee hee hee...  besides, the light from electronic devices keeps your brain awake longer.... Hope this helps.... Knitty Kitty  
    • My only symptom was slight nausea. Lasted 6 months before it started to only happen if I ate too much food in a sitting. I would eat simple, bland foods and eat 6 small meals instead of three big ones.
    • I've lost some of my sense of taste due most likely to zinc deficiency from not eating beef for a couple of years. Zinc supplement doesn't seem to help, but eating .5 to 1 lb of beef per day definitely does help. I noticed a positive change within days of eating beef. I don't know if your diet includes beef, but if it doesn't there's a reason for you.   Zinc and Geographic Tongue
    • I was in your same boat when I was diagnosed. Terribly fearful of cancer and all the damage I unknowingly had done. I don’t cheat, but I’m not as good as I need to be at restaurants (I only order off gluten-free menus but I don’t talk to managers like I should, etc) and I eat out once a week with never having symptoms. My main symptom is absolute, complete brain fog. I am truly not the person I used to be. I’ve always had anxiety, so that wasn’t any worse, but I hate to say this about myself but i got “dumb”. It was my first week in nursing school when I was diagnosed. What a great time, huh? I had to stay at school until midnight-2am 4 nights a week just to try to focus and control this brain fog. I used to be smart, quick witted, and very present in the moment. I know life changes, but my life is busy yet very peaceful and I struggle with this daily. I can’t comprehend medical concepts quickly like before and it’s very depressing. I also have a pretty good diet but have weighed 165 (I’m 5’4”) for three years with doing cardio, training for marathons,  etc..nothing gets this weight off (have had thyroid issues since age 7). Anyways. You are not alone. My doctor diagnosed me 5 years ago and told me to stay gluten free and I never saw him again! No follow-ups... I had no clue I had to! Anyways, I have an appointment upcoming as well.  Best of luck to you ❤️
  • Upcoming Events