• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

In Search Of Help.
0

7 posts in this topic

Hey guys,

I'm pretty new to this whole thing. I'm 15 years old and yesterday was the first day of my sophomore year or highschool. A week ago yesterday I had a stomach scope done. For the last 8 months I have been struggling with intense stomach problems. I had the hida scan, an ultra sound, blood tests for various types of ulcer related problems. However, they never tested me for a gluten allergy. When the surgeon had discovered my inflamed small intestine he decided to take a sample of my tissue. He told us there was a slight chance I had a gluten allergy, but it was very low. That is was probably caused by stress. Yesterday, I recieved a call confirming I had celiac disease, only half way through my first day of school. I truly believed that that wasn't going to be the problem, so it took me back quite a bit upon learning that it was. Now I'm struggling knowing that this is a life time problem. It's honestly depressing to know. I'm also struggling with finding gluten free foods. I live in a small town (no walmart) so it's been hard. I really could just use some advice and maybe some easy foods to eat without gluten? Please, I'm feeling really lost seemings as nobody I know has this problem...

Thanks!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I promise it gets easier. I had a surprise diagnosis too and didn't take it particularly well, but threw myself into everything gluten free because what choice did I have? Before I realized it, everything was second nature to me.

 

All I can really think of is to read the newbie thread at the top of the coping section. That will help you get a good grasp on getting started. If your shopping options are really limited you'll be stuck doing whole foods. Its really healthy anyway, but that doesn't make it any less sucky in the beginning to be giving up foods you love. As time passes you'll take on new challenges like baking and such (you can order flours online) and you won't feel the least bit deprived. Check out the local store's health food section if they have one, lots of places mix in the gluten free stuff with that area. Or some just have it on the shelf with everything else and you have to kind of do a scavenger hunt for it if you want something specific. Lots of people suggest giving up milk (temporarily until you begin to heal), but frankly unless you have an obvious problem with it I think its just silly to deprive yourself of one more thing at an already difficult time.

 

You may want to have your parents set up a 504 plan for you for school. This is just a thing that will lets the school be aware of the problem and how to accommodate you. Things like making sure you can always use a bathroom immediately if you need to go. (Stealing this from another thread...) Being able to carry a water bottle because lets face it, people put their gross gluteny mouths right on the water fountains like pigs so you can't use them. Whatever you specifically need, the plan can be set up to cover. Every 504 is individualized to the student. You may need to get out of cooking classes or have them modified if the teacher is up for that. Sometimes teachers have treats (apparently even in high school :blink:) and such, and maybe you need to be able to keep something with you so you aren't left out. Just lots of little things that will keep you this side of normal.

 

Anywho... welcome. I'm sure you'll find lots of good advice if you poke around. And if it makes you feel better, you can still eat all the bacon you want. :D

0

Share this post


Link to post
Share on other sites

Carmello,

It will be hard, but just know it does get better. When I first went gluten-free, I lived on rotisserie chicken, brown rice or baked potato and veges. My local store has some gluten-free foods in the frozen food section or health food section. You just need to get really good at watching labels. I can usually easily find different kinds of gluten-free pasta and meats are ok (except be sure to check processed meats).There are cereals and frozen waffles that are good gluten-free choices.

I agree that you should let the administration at school know about your diagnosis and push for a 504 plan. You could try taking rollups of gluten-free lunch meat and cheese to school. There are lots of nuts and chips that are ok and many types of candy are as well.

Definitely check out the newbie thread. Educate yourself as well as you can.

Thought I'd pass along a link to one of my favorite little treats when I get the craving for some "normal" food: Gluten free donut holes. I bake them, not fry. http://afewshortcuts.com/2013/05/delightfully-glazed-gluten-free-doughnut-holes/#_pg_pin=563455

Keep in touch and let us know how you're doing.

0

Share this post


Link to post
Share on other sites

Hugs to you. It does get easier as you figure out what you can and can't eat. The newbie thread really is very good and any of the threads about dinner or lunches will help too....and give you some ideas for when you're feeling ambitious and what to try something new.

Good luck! Feel free to ask questions, we're here and we all have varying levels of knowledge or things that worked well for us.

 

I would suggest....not eating or attempting to eat any gluten free bread right now....although, my 15 year old son actually liked it right off the bat so who knows. :) There is a blog called Gluten Away.com run by a 16 year old with an adrenal disorder and Celiac disease. He has lots of really simple recipes on his site. I would definitely go check that site out as well. I know it can help to talk to someone your own age. :)

0

Share this post


Link to post
Share on other sites

If you want donuts that are better than gluten donuts, as my gluten eating husband will tell anyone, try these. I make donut holes because it seems pointless and stupid to waste time and energy making them into round donuts. It makes like a bazillion, and you can freeze the ready to fry dough for later. Also, you won't have to find pancake mix since you're worried about that. You can just get them shipped right to you. http://glutenfreeheaven.com/

0

Share this post


Link to post
Share on other sites
Ads by Google:


Hi Carmello,

 

Welcome to the forum! :)  The good thing about starting young on the gluten-free diet is that you will have a lifetime of healthy eating.  After you get used to eating gluten-free it is not a big deal at all.  You can bring snacks with you in  a backpack or something when you go out, so you don't have to worry about not having something safe to eat.  Things like fruits, or Lara bars or nuts are easy to carry around.  Mission brand corn tortillas and chips are good.  If you get the soft corn tortillas you can make mini-wraps with them.  They are much cheaper than gluten-free bread.

 

But mostly you want to stick with whole foods instead of processed foods.  Whole foods are foods in their natural state, like apples, bananas, chicken or beef etc.  Pizza, unfortunately , is not a whole food.  It is made of several different foods all put together in a pizza factory somewhere.  There are gluten-free pizza's available these days though.  Just don't make processed foods a big part of your diet.  It is really helpful to learn to cook when you have celiac disease.  There is often a celiac support group in the area that can help with local information.  And many restraunts do offer gluten-free options these days.  Some will let you take you own food in to eat.  But it is good to check ahead of time on that.

 

Helpful threads:

FAQ Celiac com
http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101
http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

 

Dessert thread
http://www.celiac.com/gluten-free/topic/93840-whats-for-dessert-tonight/page__pid__802399#entry802399

Easy yummy bread in minutes
http://www.celiac.com/gluten-free/topic/56641-easy-yummy-bread-in-minutes/
 

Super Easy Meal Ideas Anyone?
http://www.celiac.com/gluten-free/topic/97027-super-easy-meal-ideas-anyone/
 

0

Share this post


Link to post
Share on other sites

You now know the source of your problems and you can fix them.  There are all sorts of foods that you are probably already eating that don't contain gluten.  Potatoes, rice, meat, vegetables, fruit, eggs and lots more.  No problem.  You may need to start doing some cooking, but that can be really rewarding and fun.  My son is 16 and cooks our meals these days.  He does a great job too.  There are so many great things to this life.  It can seem hard at first, but once you get used to the idea, not eating gluten is no big deal.

2

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,810
    • Total Posts
      932,609
  • Member Statistics

    • Total Members
      64,311
    • Most Online
      3,093

    Newest Member
    Whitepaw
    Joined
  • Popular Now

  • Topics

  • Posts

    • It makes a difference if you are Catholic. Don't want to get into a debate about why, but Catholic's must use some form of wheat in the host.  There is no such thing as a gluten free communion wafer at a Catholic Mass. The solution for a celiac is a LOW gluten host made from wheat starch.  That is not a solution that works for many celiacs.  You could also just take the cup, if it is offered, provided it does not have any of the host broken into it.  You do run the risk of cross contamination unless you are the first person receiving from the cup. Spiritual Communion is sometimes all you can do if you don't have a priest that understands or will work with you. My daughter has become very sensitive after a recent accidental high exposure to gluten. Her symptoms are neurological (loss of use of right foot and right arm, loss of balance, heaviness of limbs, loss of sight).   We spoke to our priest and he ordered a special small cup just for her. He leaves it covered during the consecration so there is no cross contamination.  My husband and I are Eucharistic Ministers and give it to her after we receive so the priest doesn't have to juggle so many things.   So, that is the Catholic solution. There is information on the USCCB website to provide your priest if he needs guidance.  http://www.usccb.org/prayer-and-worship/the-mass/order-of-mass/liturgy-of-the-eucharist/celiac-disease-and-alcohol-intolerance.cfm
    • So great to hear! Actually makes sense with the iron, as vitamin C helps in the absorption of iron. Sounds like a good theory that it is either the vitamin C, or vitamin C aiding in the absorption of the iron. Thanks for all the feedback. Going to try adding iron as well. Hoping this will help us both feel better and worry less  
    • Hello and welcome I don't have celiac. I do have several symptoms in common with you and I do have a problem with gluten, so NCGS for want of a better term.  A celiac response to gluten involves the immune system so there certainly can be a delay between ingestion and the body producing the antibodies. That would correlate with your tongue aching progressively through the week. Some of the weirder symptoms of celiac occur because those antibodies that have identified gluten proteins as a problem then attack different parts of the body, maybe that's the more delayed reaction in your case. Last time I was glutened definitely I noticed some reaction in a few hours but it was a couple of days before I was certain. After effects can last for weeks or months even.  Wheat allergy is the one with the instant response, it's IGE mediated and so you can have an immediate surge in histamines and in extreme cases anaphylaptic reaction. NCGS is less well understood, some dispute it's existince or question if gluten is the cause. The symptoms however are similar to celiac as far as I know and that includes response time.  You've been through a miserable time but your still young and you need to decide whether you want to pursue a diagnosis or not. If you do, then it will require a gluten challenge of probably 6-12 weeks. See the links below for more details.  If you don't I suggest you go strictly gluten free, keep a food diary and see if the improvements you noted before continue. I think you've probably found your answer. Best of luck!   Further reading https://www.celiac.com/gluten-free/announcement/3-frequently-asked-questions-about-celiac-disease/
    • This is why many of us stick to our own "Trusted Brands" of things we know are safe, and only buy stuff with the offical certification for gluten free. NOTE also in the US they do not HAVE to tell you their facility also processes wheat on the label, just if the actual product contains it in the ingredients. But many will just to avoid legal mumbo jumbo if they somehow have CC issues. Saying the facility also contains/processes wheat is just them covering themselves if people get sick from it.
    • I make my own mini loafs of a simple almond,coconut,apple sauce blend for dense, bland bread gluten free, and have my pastor bless them. I then keep them in the freezer and bring a piece with me for communion.
  • Upcoming Events