• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Vitamins And Minerals?
0

6 posts in this topic

So what kind of Vitamins and Minerals do you take, and how much? I am just curious !! I suffer from lack of energy. I am taking Sub Lingual B12. 1 of my friends told me Vitamin D was good for energy.. I bought some but it didn't seem to help, I told my friend and she said she takes 10,000 IU's!! Is it safe to take that much? Is it because I am not absorbing ? My other friend told me that her Doc (same as my doc) said that taking B12 is a waste of time!! And Money!! She looked it up and said she read that being Celiac you are just not absorbing Vitamins and minerals so don't waste your time and energy taking them... Now I think I am absorbing some!! I told her my doctor is the one that told me to take them!! I don't know where she read this stuff from. Just wondering, am I wasting my $$ taking vitamins and minerals and all this stuff? Or Should I keep taking them

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I am a firm believer in carefully chosen quality supplements.  I have had nutrient tests from my health care providers to help decide which ones to take.  I discovered that I did have mal-absorption and the lab recommended about 3 times as much for me as normal amounts!  I would suggest working with your health care provider (If you can) to determine exactly which supplements you need.  I use a Functional Medicine Osteopathic doctor who has been trained in the use of supplements.

 

I like the test to see what you need route.  I heard that "most" people with celiac need glutamine to recover.  When my level of glutamine was checked, it was high, so I had no need to purchase it.  My chiropractor used Ph tests, blood pressure checks, and breathing tests to find out what nutrients I needed.  We could measure improvement by these physical objective means.  My blood pressure went from plummeting when I stood up, to a normal slight rise and return to normal.

 

 

I kept afloat by using supplements when I didn't know I had celiac. I don't recommend that, but I survived that way.  I think there may be a catch 22 with supplement use.  You need to absorb them to recover, You need to recover to absorb them.  My thought is that some is getting in.  Perhaps concentrating on healing the gut right away would be most important. 

 

It would be hard to list all of the supplements which I have used.  Some of the bottles have 30 nutrients listed!  But I will try to write some from memory:

 

IgG for to heal the gut

Magnesium/sulfer Liquid taken before a meal

CoQ10

Ferritin

Digestive enzymes (My villi were not telling my pancreas to fire) these help to break down food.

Probiotics were recommended by an MD, a chiropractor and an Osteopathic doctor.

Vitamin A

Vitamin B

Vitamin D

Asparagine (the one nutrient I still am low in)  It is in nearly all of the foods I am eating, but I am not getting it too well!  Also the liver can make it.

Adrenal support herbs

 

If you buy any supplement check, and double check the label for gluten and other intolerances.  Make sure you have your glasses.  I do not recommend cheap brands, but spend your money for standardized and tested brands such as Nature's Way.

 

I think many would not have to supplement as heavily as I did.  My nurse described what she thought my villi looked like after 30 years of celiac as totally flattened out.  I was eating a great diet, and taking supplements, but my blood and cells just were not getting it.  ---They are now!

 

At 6 months gluten free, I was not absorbing nutrients very well.  At 18 months gluten free I am!

 

0

Share this post


Link to post
Share on other sites

I supplement very very heavily, and have for years, even before I was diagnosed because I was always looking for that extra tiny bit of energy. You are right in that celiacs often don't absorb the nutrients in supplements well but I always figured that every little bit extra would help. If I only absorb (lte's say) 5% of vitamin A, then I should take a LOT more than most people and possibly take vitamin shots. KWIM?

 

D is safe to take at 10,000 IU - you could take more, I take between 10-20,000 IU per day. If you take B12, use the sublingual ones as they are largely absorbed in the mouth; I think it's called methylcolbum.... something or other. LOL You can also get it as a shot if you are low.

 

This is my list:

L-glutamine

digestive enzyme

DHEA

Boron

taurine

arginine

zince

A (pills and shots - up to 100,000 IU per day)

D

B12,6,

biotin 

Ca citrate 

Mg

C

multi vit

probiotic

glutathione

CoQ10

siberian ginsing

Maca

iodine

milk thistle

licorice

green tea

curcumin

cod liver oil and fish oils

glucosamine chondroitin (sp?)

melatonin

 

And then I take thyroid and corticosteriods too. I have the medicine cabinet of a 95 year old woman, but I am actually starting to feel well. :) I figure, if I'm going to spend money, it might as well be on my health.

1

Share this post


Link to post
Share on other sites

Ohhh my gosh!! Thank you so very very much!! I soooooo need this kind of info!! Thank you so very much!!!! The D at 10,000 Iu's is fine for me :) and if I take more than yay!! Ok I am so very happy :) huggz! 

0

Share this post


Link to post
Share on other sites

Ohhh my gosh!! Thank you so very very much!! I soooooo need this kind of info!! Thank you so very much!!!! The D at 10,000 Iu's is fine for me :) and if I take more than yay!! Ok I am so very happy :) huggz! 

We recently upped my D3 from 3000, to 5000 to bump it above borderline good.  I get plenty of sun too.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Well I got this liquid Vitamin D3 1000 Iu's per drop 

Made by Bluebinnet, free of milk,egg , crustacean , shell fish, tree nuts, peanuts, wheat and soybeans Also free of yeast, gluten, barley rice and sugar. 16 bucks for a fluid oz. It seems to do the trick for energy levels ... :) TY 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,341
    • Total Posts
      935,593
  • Member Statistics

    • Total Members
      65,008
    • Most Online
      3,093

    Newest Member
    rachel carmichael
    Joined
  • Popular Now

  • Topics

  • Posts

    • You're welcome ritamichelle. Yes, if you are biopsy confirmed then it will be much easier to get your daughter tested. 
    • I agree that In people that have celiac there usually is a trigger. It can be physical or emotional stress as the article states. I wonder though if the people they say 'don't have the genes' are folks that simply have rarer ones. There is research on more genes. I discovered it when I was writing a paper for a class. It was a very long time ago in 'computer age' and my bookmarks died along with the computer I was useing. But it is out there on peer reviewed sites like Lancet, NIH etc. Since celiac was rarely tested for even a couple decades ago there are many folks that may have celiac in their family but it was never known. That was the case in my family. I am confident about that.  I always wondered why my Mom seldom left the house, spent a lot of time in the bathroom, was tired all the time and was always holding her hands the way she did.  Then I became her.  We have so much to learn about celiac. Personally I dislike the term 'NCGS' because it makes folks think at times they don't need to be as strict and it isn't as serious. Too many are told that their biopsies are negative and they then get the NCGS label if they had positive bloods.  I consider celiac to be a spectrum disorder. Not all celiacs have gut impact or at least haven't developed it yet. I had the neuro impact and DH from shortly after I was impaled as a young child. It was many years before any severe GI issues arose.  
    •     http://www.takepart.com/article/2014/08/11/coffee-adulterated https://www.thetimes.co.uk/article/how-was-your-morning-coffee-did-it-taste-like-mud-v6rfdmrrr92 http://grist.org/food/coffee-taste-like-dirt-thats-because-it-might-be/ " Using liquid chromatography, which identifies the individual chemical components of a mixture, the Brazilian scientists found wheat, soy bean, brown sugar, barley, corn, and rice commonly interspersed with the grounded coffee they tested. Large amounts of wood and dirt were also prevalent, an issue not only for purists who prefer to drink their coffee black, but for those with potential allergies to the unknown additives. As TIME reports, the scientists are identifying the rogue coffee with increasing accuracy:" http://www.bodyandsoul.com.au/health/health-news/is-there-wheat-hidden-in-your-coffee/news-story/a3d53a7c36b76156f08d89eab6a396b3   -----   I have also read other references to coffee upsetting those with celiac.   Personally I have a family history of officially diagnosed celiac even though I have never been diagnosed myself..then again Ive never been properly tested. My drs just keep saying the following symptoms are anxiety and wont refer me to a gastroenterologist for:   Loss of bowel control, pale coloured stools, severe bloating, passing undigested food, ataxia, vertigo, migraine headaches, feeling feverish, repeated ulcers on my tongue and in my mouth, feeling generally ill and sleep issues (mostly falling asleep when I dont want to but rarely insomnia).   Because they insist its anxiety as routine blood tests are normal they wont refer me to a gut dr. They did do a blood test for celiac once on my request but it came back negative. This does not phase me when it comes to my suspicians that gluten is an issue for me because:   1 I was on a gluten free diet at the time, hence why i was well enough to crawl to the gps office. 2 I have a family history of celiac 3 MY symptoms are alleviated by a gluten free, dairy free, oat free, corn free diet..and lately, coffee free it seems. Coffee has indeed become a problem for me recently. 4 I could not tolerate gluten based baby foods as an infant. I was admitted to hospital as a baby for being underweight because I was vomitting all my food up. They put me on gluten free formula and i was fine, stopped being sick and gained weight. I could have grown out of it but considering the symtpoms i get on a gluten based diet, i really doubt it.   -----   When it comes to the coffee, food manufacturers will do most anything to make profits if they think they can get away with it. We live in a world where money is most important and if they do get caught...they can always claim they have no idea how the barley got in there!    
    • If you have had a sleep study and been diagnosed, you have sleep apnea. It's definitely different than waking up to go to the bathroom. Are you using your cpap every night for The entire night. Naps too? SA can actually cause death so it's very Important for you to use it every time you sleep. Do you follow up with your doctor yearly? Sorry to sound like the SA police, but I know someone who died from it. He wasn't using his cpap anymore, thought it was uncomfortable.     What Is Sleep Apnea?   Sleep apnea (AP-ne-ah) is a common disorder in which you have one or more pauses in breathing or shallow breaths while you sleep. Breathing pauses can last from a few seconds to minutes. They may occur 30 times or more an hour. Typically, normal breathing then starts again, sometimes with a loud snort or choking sound. Sleep apnea usually is a chronic (ongoing) condition that disrupts your sleep. When your breathing pauses or becomes shallow, you’ll often move out of deep sleep and into light sleep.
    • Summer sausage, rope sausage or link sausage? what were the ingredients? Msg makes me dizzy.
  • Upcoming Events