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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Vitamins And Minerals?
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6 posts in this topic

So what kind of Vitamins and Minerals do you take, and how much? I am just curious !! I suffer from lack of energy. I am taking Sub Lingual B12. 1 of my friends told me Vitamin D was good for energy.. I bought some but it didn't seem to help, I told my friend and she said she takes 10,000 IU's!! Is it safe to take that much? Is it because I am not absorbing ? My other friend told me that her Doc (same as my doc) said that taking B12 is a waste of time!! And Money!! She looked it up and said she read that being Celiac you are just not absorbing Vitamins and minerals so don't waste your time and energy taking them... Now I think I am absorbing some!! I told her my doctor is the one that told me to take them!! I don't know where she read this stuff from. Just wondering, am I wasting my $$ taking vitamins and minerals and all this stuff? Or Should I keep taking them

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I am a firm believer in carefully chosen quality supplements.  I have had nutrient tests from my health care providers to help decide which ones to take.  I discovered that I did have mal-absorption and the lab recommended about 3 times as much for me as normal amounts!  I would suggest working with your health care provider (If you can) to determine exactly which supplements you need.  I use a Functional Medicine Osteopathic doctor who has been trained in the use of supplements.

 

I like the test to see what you need route.  I heard that "most" people with celiac need glutamine to recover.  When my level of glutamine was checked, it was high, so I had no need to purchase it.  My chiropractor used Ph tests, blood pressure checks, and breathing tests to find out what nutrients I needed.  We could measure improvement by these physical objective means.  My blood pressure went from plummeting when I stood up, to a normal slight rise and return to normal.

 

 

I kept afloat by using supplements when I didn't know I had celiac. I don't recommend that, but I survived that way.  I think there may be a catch 22 with supplement use.  You need to absorb them to recover, You need to recover to absorb them.  My thought is that some is getting in.  Perhaps concentrating on healing the gut right away would be most important. 

 

It would be hard to list all of the supplements which I have used.  Some of the bottles have 30 nutrients listed!  But I will try to write some from memory:

 

IgG for to heal the gut

Magnesium/sulfer Liquid taken before a meal

CoQ10

Ferritin

Digestive enzymes (My villi were not telling my pancreas to fire) these help to break down food.

Probiotics were recommended by an MD, a chiropractor and an Osteopathic doctor.

Vitamin A

Vitamin B

Vitamin D

Asparagine (the one nutrient I still am low in)  It is in nearly all of the foods I am eating, but I am not getting it too well!  Also the liver can make it.

Adrenal support herbs

 

If you buy any supplement check, and double check the label for gluten and other intolerances.  Make sure you have your glasses.  I do not recommend cheap brands, but spend your money for standardized and tested brands such as Nature's Way.

 

I think many would not have to supplement as heavily as I did.  My nurse described what she thought my villi looked like after 30 years of celiac as totally flattened out.  I was eating a great diet, and taking supplements, but my blood and cells just were not getting it.  ---They are now!

 

At 6 months gluten free, I was not absorbing nutrients very well.  At 18 months gluten free I am!

 

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I supplement very very heavily, and have for years, even before I was diagnosed because I was always looking for that extra tiny bit of energy. You are right in that celiacs often don't absorb the nutrients in supplements well but I always figured that every little bit extra would help. If I only absorb (lte's say) 5% of vitamin A, then I should take a LOT more than most people and possibly take vitamin shots. KWIM?

 

D is safe to take at 10,000 IU - you could take more, I take between 10-20,000 IU per day. If you take B12, use the sublingual ones as they are largely absorbed in the mouth; I think it's called methylcolbum.... something or other. LOL You can also get it as a shot if you are low.

 

This is my list:

L-glutamine

digestive enzyme

DHEA

Boron

taurine

arginine

zince

A (pills and shots - up to 100,000 IU per day)

D

B12,6,

biotin 

Ca citrate 

Mg

C

multi vit

probiotic

glutathione

CoQ10

siberian ginsing

Maca

iodine

milk thistle

licorice

green tea

curcumin

cod liver oil and fish oils

glucosamine chondroitin (sp?)

melatonin

 

And then I take thyroid and corticosteriods too. I have the medicine cabinet of a 95 year old woman, but I am actually starting to feel well. :) I figure, if I'm going to spend money, it might as well be on my health.

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Ohhh my gosh!! Thank you so very very much!! I soooooo need this kind of info!! Thank you so very much!!!! The D at 10,000 Iu's is fine for me :) and if I take more than yay!! Ok I am so very happy :) huggz! 

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Ohhh my gosh!! Thank you so very very much!! I soooooo need this kind of info!! Thank you so very much!!!! The D at 10,000 Iu's is fine for me :) and if I take more than yay!! Ok I am so very happy :) huggz! 

We recently upped my D3 from 3000, to 5000 to bump it above borderline good.  I get plenty of sun too.

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Well I got this liquid Vitamin D3 1000 Iu's per drop 

Made by Bluebinnet, free of milk,egg , crustacean , shell fish, tree nuts, peanuts, wheat and soybeans Also free of yeast, gluten, barley rice and sugar. 16 bucks for a fluid oz. It seems to do the trick for energy levels ... :) TY 

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