• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Exhaustion Worse After gluten-free
0

17 posts in this topic

Recommended Posts

moosemalibu    48

I am newly diagnosed - last week in fact. And I am more exhausted this week, especially the past 2 days than any other time prior. I don't know if that means resources are going to healing but I'm just physically exhausted. Maybe my emotional distress is manifesting physically too. I don't know. Anyone else experience this?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


notme!    287

yes, ma'am, i sure did - you sound like you are going through withdrawal.  the good news is:  you must be doing a good job of keeping yourself gluten-free, so your body is 'missing' it.  for me, it felt like the flu.  it knocked me on my butt (right into the bed lolz) for a couple of weeks but then it went away.  i started feeling a little better each day.  take it easy on yourself (and i think healing makes you tired, too, and i still get a little tired when i eat dairy - it's like it takes all my body's energy to digest it sometimes - it's a little better all the time, though!)  get a bunch of rest, drink alot of water, i took very hot showers and they seemed to help.  mostly rest, though, and try not to be so cranky - it's the gluten making it's last stand lolz  - hang in there!  

Share this post


Link to post
Share on other sites
moosemalibu    48

Wow - withdrawel symptoms. That I never expected. Is there anything else that I should expect? Thanksf or validating me!

Share this post


Link to post
Share on other sites
notme!    287

yeah, it was kind of a shocker to me too!  i would expect you will go through grieving, too - that was a surprise, too.  it *is* a big life change (the bell you can't un-ring, so to speak.... :(  ) so, it's normal to mourn your 'old' lifestyle/to miss your comfort foods/to get used to the *never* word....  but, as you go along, and merge your 'old' life with your 'new' one, it's pretty good.  i thought i had one foot in the grave when i was dx'd, now i feel younger than i have felt in a very long while.  and it keeps getting better (i had lots of damage, i would guess i'm STILL healing) i continue to see improvements.  even things one would never associate with the dreaded gluten   <_<   take it one day at a time -on this forum, you're among (probably) the biggest group of people in one place who understand that it's not 'just a diet'   :ph34r: rest up, you'll feel better soon :)  

 

ps - i can now do 2 (TWO) things in one day - i never believed i would ever have the energy to go to, say, a ball game and a picnic in the same day.  i used to couldn't  :)

Share this post


Link to post
Share on other sites
notme!    287

oh, yeah, and if you drink alcohol, be aware that your tolerance may change.  i am more of a 'cheap date' now, lolz, and if i drink chardonnay, i better have bail $$$   :lol:

Share this post


Link to post
Share on other sites
Ads by Google:


w8in4dave    75

OMG Yea I am 3 months in and I had some gluten free Mac and cheese yesterday .... It hit me like a rock!! Right away !! , , then this morning Ohhh geeze!! Not good! , and boom a feather could of hit me and I'd of been knocked down .. It took me a while to figure it out but dang gone it!! I will try to remember not to eat gluten free mac and cheese for what ever time they say.. Thats all I did and boom hit me like a rick! Arrrrggg!! Still paying for it ! pffttt!! 

Share this post


Link to post
Share on other sites
kareng    1,992

Just a thought. People who are healing something tend to need more sleep and maybe a little extra food. Combined with the fact that you may not be eating the same nutrients, fiber, etc.....you have a reason to be tired.

Share this post


Link to post
Share on other sites


Ads by Google:


answerseeker    15

OMG Yea I am 3 months in and I had some gluten free Mac and cheese yesterday .... It hit me like a rock!! Right away !! , , then this morning Ohhh geeze!! Not good! , and boom a feather could of hit me and I'd of been knocked down .. It took me a while to figure it out but dang gone it!! I will try to remember not to eat gluten free mac and cheese for what ever time they say.. Thats all I did and boom hit me like a rick! Arrrrggg!! Still paying for it ! pffttt!!

What does the gluten-free Mac n cheese do to you? Is it the cheese or the fact that its processed? Month 1 for me was just whole foods but then I started introducing gluten-free packaged foods and bam! Almost right back where I was except the pain. My husband noticed I am more "sluggish" after eating gluten-free foods and I get bloated too

Share this post


Link to post
Share on other sites
w8in4dave    75

What does the gluten-free Mac n cheese do to you? Is it the cheese or the fact that its processed? Month 1 for me was just whole foods but then I started introducing gluten-free packaged foods and bam! Almost right back where I was except the pain. My husband noticed I am more "sluggish" after eating gluten-free foods and I get bloated too

I think it is because of the lactose , I can only guess , Other than that I have noooo Idea!! I have been so very careful and checking everything. I have had some Gluten free noodles, but this is the 1st time I have had a Gluten free Mac and cheese product It was by "Annes" I believe. had a lil bunny on it. But I have been Lactose Free and Gluten Free for 3 months and it didn't dawn on me till today what it "MIGHT" of been ... because alot of Celiacs need to be Lactose free . for a while anyway? Not sure how long/

Share this post


Link to post
Share on other sites


Ads by Google:


moosemalibu    48

I probably need to be taking in more calories than I am currently right now. I take in roughly 1400-1600 calories and I strength train 5x/week for an hour to hour and a half. I cut the cardio completely as I am too exhausted to do it.  I'm probably doing too much. But I enjoy the training aspect too much to completely cut it for now. I don't lift heavy anymore, just light to moderate weight and high reps. 

 

I agree with everyone about the lactose intolerance - it's probably the worst part of this whole adaptation for me. I love cottage cheese and greek yogurt. I cut it out but I miss it terribly.

Share this post


Link to post
Share on other sites
moosemalibu    48

oh, yeah, and if you drink alcohol, be aware that your tolerance may change.  i am more of a 'cheap date' now, lolz, and if i drink chardonnay, i better have bail $$$   :lol:

I definitely don't have a tolerance for alcohol at all just because I've abstained for almost a year as it is. Adding this to it I think I'd have a sip and be just silly. haha

Share this post


Link to post
Share on other sites
w8in4dave    75

Wow!! You work out alot!! I don't know how you have the energy!! I try and go for a walk every day. Sometimes it is exhausting!! I cannot  even think about working out!! I am glad someone has some energy!! But really I don't know how you do it!! 

Share this post


Link to post
Share on other sites
moosemalibu    48

Yeah... I love it. I would love to compete in body building so I have that added enthusiasm that most people don't have. But I have felt the energy just ooze out of me and this week especially has been hard. My workouts last an hour max and I am just spent.

Share this post


Link to post
Share on other sites


Ads by Google:


eers03    20

You need more calories.  If you are strength training and only consuming 1400-1600 calories, that is most likely not adequate.  If you are Celiac, you are not absorbing everything you need from a nutrient perspective already, then you burn the rest up on exercise...  Additionally, have you drastically reduced your carb intake?  Hopefully not if you are active.  You'll need those carbs.  I inadvertently cut my carbs drastically.  When I went gluten free, I mistakenly was eating an Atkins-esque diet without meaning to.  I didn't know the right way to cut out gluten and ended up not getting carbs.  I eventually started experiencing Ketosis.  Bad stuff.  I dropped to 137 lbs and I'm 5'11.

 

I started eating 2800-3000 calories per day and stopped working out altogether to get my weight up.  7-8 months later, I'm checking in at 172 and have finally started biking and went for a run last night.  Anyhow, when my caloric intake was down along with my weight, I was tired, anxious, and depressed.

 

You may not be in the same boat as I was but you are working out much harder than I was and you aren't getting enough calories in my opinion but then again, I don't know what your fitness/health goals are...

Share this post


Link to post
Share on other sites
moosemalibu    48

Thanks for your reply Eers. I eat about 120-160 grams of carbs per day so I know I'm not going to the ketotic route. I figured I was probably too low on the calorie scale as everything is just going right through me with the D and all. I posed this question to my doctor via online message and she has not gotten back to me yet. I don't want to drastically increase my calories at once (plus I'm not that hungry - hitting my goal for the day is difficult right now). I'll likely increase it by 100 calories or so a week and get to a happy place. I don't think I'd ever give up working out. It's therapy for me.

 

My goal is to compete in bodybuilding at some point so I'd like not to gain a lot right now as I'm trying to do a cut but I realize that may not be feasible right now in my life. Sigh.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,908
    • Total Posts
      938,619
  • Member Statistics

    • Total Members
      65,829
    • Most Online
      3,093

    Newest Member
    vi6609
    Joined
  • Popular Now

  • Topics

  • Posts

    • Your first post stated that it took you 7 days of continuously eating gluten to get symptoms. So maybe it's not related to gluten at the hospital at all? Maybe you picked up an illness from the hospital? if I hadn't read your first post I'd say that the hospital food probably glutened you. Imho they don't do a great job at following dietary restrictions. Which may have still happened, and your symptoms kicked in faster this time. fyi any gluten exposure, even a crumb, kicks in the autoimmune response for celiac.
    • Hospitals and the ER....will normally ignore your dietary requirements with celiac. If they gave you so called gluten-free food...it had gluten. You have to have your own brought in or ask for plain whole foods. I wear medical dog tags with emergency contact info, allergies, blood type, and medical info on them. And my emergency contacts have been told where I keep emergency room stashes...IE Julian Protein Bar, MRM meal shakes to take up there if I get stuck in the hospital.
    • Hello- I was DX Celiac 2 years ago.  Last week I had a terrible accident, broke ankle and had to be taken to emergency. I was pumped full of drugs mostly Versed and Fentanal  via IV. After the usual couple days of constipation following these sort of drugs I began having GLUTENED intestinal issues.  I've had non stop bathroom runs for 2 days now and everything about it feels like I've been seriously glutened.  I've done some research but found no conclusive answers.  Did any of those things stir up my Celiac disease and cause me to have an autoimmune response? Has anyone had any similar experiences they can share with me?  This is my first post.  Thank you
    • All the issues you said came up after going gluten-free. Three points
      1. Are you sure you eating gluten free? If you eat out good chance your getting CCed, and is everything your eating really gluten free? There are many that are iffy on the market now days and CC can get in on some of the oddest aspects like shampoo, make up, lotion, medication, sauces, spices. etc.
      2. Sounds like your have deficiency issues, what are you eating? Your supposed to eat a varied diet when gluten free, most gluten free processed foods are not enriched...most gluten food is essentially sprayed with vitamins. SO you need to eat a varied diet eating leafy greens meats, eggs, etc. I myself have other limitations and have to supplement what I would get from these. ALSO celiac makes it where you do not absorb all the nutrients from your food I have 2 suggestion of stuff you NEED to take. Liquid health Stress & Energy, Liquid Health Nurological Support, and Doctors Best Magnesium.... these will help with stress, muscle aches, and energy issues. NOW you might need some other things like D and a few others.
      3. Sugars can cause all kinds of issues I know the issues with the craving.....I can not avoid them myself. I use some sweeteners like erythrol, stevia, monk fruit, etc to avoid the real sugar and the chemical BS ones. I make grain free, dairy free, gluten free baked goods, nut butters and snacks and even make a living off of selling them......I have a focus on making everything super moist as I know that is a huge craving for those of us with this.  Try moving to a healthier option if you can spiking your insulin and glucose levels is going to raise all kinds of havoc and the excess sugars can lead to candida or sibo in your intestines.

      Oh and yeah if you think death is bad we had a member have to get a emergency colonstomy. They ignored it and ate gluten and kept on doing it.....yeah having to poop in a bag sounds worse then death or cancer to me....and those are your other options.
    • Your daughter is only 7 years old.    I believe with a strict gluten-free diet, and some time, she will grow. My daughter was diagnosed at age 10.   When she was younger, she was always tall for her age.   She was in the 90% percentile as a toddler.   When she was finally diagnosed at age 10, we noticed that she did not grow at all for a little over a year, and she was at 25% percentile, and shorter than all her girl friends.   (She used to be one of the taller kids in the class) She is 14 years old now, still growing, and she is catching up with her friends, (no longer the shortest).   She is 5' 3'' right now.   She does not have her period yet, so we hope she will grow another few inches.   If she can be 5' 6", that would be a very good height for a girl. I think your daughter will be fine.  With a strict gluten-free diet, of course.
  • Upcoming Events