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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Can't Stop Losing Weight :( Please Help
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6 posts in this topic

I started a gluten free diet in January and am now finally at the point where I don't keep accidentally eating gluten. I haven't had an accidental glutening in almost 2 months now which is the longest time span without an accidental glutening since January. I cut out all processed food and try to eat a lot of healthy fats and proteins to keep the weight on but it's not working. I was already under weight before the gluten free diet and now I keep losing more weight. I'm starting to look sickly/skeletal and anorexic looking, and I don't know what to do to keep the weight on :( 

When I eat too much fat it's almost as if my body is like "well I'm just not going to digest all this fat, sorry" and it doesn't do anything except potentially give me upset stomach. I recently found out I can't eat potatoes or brown rice either because it aggravates my leaky gut and makes me sick. 
Am I doing something wrong? I can't keep losing weight like this. I look horrible. 

Please help. 

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I started a gluten free diet in January and am now finally at the point where I don't keep accidentally eating gluten. I haven't had an accidental glutening in almost 2 months now which is the longest time span without an accidental glutening since January. I cut out all processed food and try to eat a lot of healthy fats and proteins to keep the weight on but it's not working. I was already under weight before the gluten free diet and now I keep losing more weight. I'm starting to look sickly/skeletal and anorexic looking, and I don't know what to do to keep the weight on :(

When I eat too much fat it's almost as if my body is like "well I'm just not going to digest all this fat, sorry" and it doesn't do anything except potentially give me upset stomach. I recently found out I can't eat potatoes or brown rice either because it aggravates my leaky gut and makes me sick. 

Am I doing something wrong? I can't keep losing weight like this. I look horrible. 

Please help. 

I'm so sorry to hear about your struggle. I would consult a doctor about this issue. I know that people with celiac disease/gluten sensitivity have a tendency to be malnourished and therefore lose weight very quickly. However, after being on a strict gluten free diet it should be less of an issue for you. I would recommend starting to take a multi-vitamin because it could just be you're not getting enough nutrients from the food you're eating. Also, keeping a food journal tracking everything I ate really helped me. Keep count of the calories you're taking in and maybe even get an app on your smartphone. I know I have one on mine called MyPlate and it is keeping track of my food and helping me maintain my weight, but there is also a setting where it tells you how much you need to eat to gain weight! That might help you out a lot. I hope you reach the weight you want and start feeling better! 

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I felt like this too a couple of years ago.  I was worried that I would keep losing weight.  What happened was that I got to the low limit of what was considered normal BMI and then I stopped losing.  I even put on a little a year or so later.  Have you looked at your BMI?  It may be that your perception of what you should look like is unrealistic for a processed food free diet.  The low end of the BMI scale is much smaller than your average American.  http://www.webmd.com/diet/calc-bmi-plus  Maybe you could stop worrying?

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I'm so sorry to hear about your struggle. I would consult a doctor about this issue. I know that people with celiac disease/gluten sensitivity have a tendency to be malnourished and therefore lose weight very quickly. However, after being on a strict gluten free diet it should be less of an issue for you. I would recommend starting to take a multi-vitamin because it could just be you're not getting enough nutrients from the food you're eating. Also, keeping a food journal tracking everything I ate really helped me. Keep count of the calories you're taking in and maybe even get an app on your smartphone. I know I have one on mine called MyPlate and it is keeping track of my food and helping me maintain my weight, but there is also a setting where it tells you how much you need to eat to gain weight! That might help you out a lot. I hope you reach the weight you want and start feeling better! 

Thanks for the helpful reply :) I'm going to see a doctor soon at a free clinic (since I have no health insurance). I got the app and am going to try using that to track calories. That's a really good idea!  I don't take a multi vitamin, but I take several supplements of stuff that I know I'm deficient in. I'll try taking a multi, maybe I'm deficient in something I don't know about. 

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I felt like this too a couple of years ago.  I was worried that I would keep losing weight.  What happened was that I got to the low limit of what was considered normal BMI and then I stopped losing.  I even put on a little a year or so later.  Have you looked at your BMI?  It may be that your perception of what you should look like is unrealistic for a processed food free diet.  The low end of the BMI scale is much smaller than your average American.  http://www.webmd.com/diet/calc-bmi-plus  Maybe you could stop worrying?

That's a very helpful website. It says I'm right on the low cusp of the healthy weight range for my height, so if I lose any more weight I will be considered underweight. I really hope I stop losing. Thank you for the help :) I feel a bit better now. 

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Love the BMI chart! :) I am in the healthy range but I still need to lose :) 

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