• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac Disease And Pancreatitis
0

2 posts in this topic

My 9 year old daughter has celiac disease and recurrent pancreatitis , first diagnosed 3 years ago.  She has been on a gluten free diet and her episodes of pancreatitis are somewhat less frequent .  Her GI specialist has been recommending ERCP with pancreatic duct sphincterotomy and stent placement.  Mt wife and I fear going down this surgical road.  We are looking for similar cases to see what are the best treatments, to find the right "template" .  I am a physician and it is very frustrating due to the lack of literature and case reports for patients with both celiac disease and pancreatitis.  If anyone has a child with these 2 problems or is a young adult with these 2 problems PLEASE contact me at Jlenmd@comcast.net. to share any info you may have to help us find the correct path to take for treatment for our daughter.  THANK YOU

 

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,339
    • Total Posts
      935,562
  • Member Statistics

    • Total Members
      64,998
    • Most Online
      3,093

    Newest Member
    Con Smith
    Joined
  • Popular Now

  • Topics

  • Posts

    • This is not quite as cut & dried as it sounds. Although rare, there are diagnosed celiacs who do not have either of those genes. Ravenwoodglass, who posted above, is one of those people. I think she has double DQ9 genes? Am I right Raven?  My point is, that getting the gene testing is not an absolute determination either way.
    • Why yes it is! jmg and myself are NCIS, I mean NCGS specialist/experts or is it NCGI people ourselves. posterboy,
    • LilyR, jmg has given you good resources/links. I used to have constant issues with ear infections that went away when I went gluten free. And recurrent bronchitis they I never have now. NCGS can cause low grade inflammation that you don't realize at the time . .. till you stop eating gluten. That said have you been checked for a UTI infection.  It is not uncommon to have low grade fevers when you have one. My friend at work recently had a bad spell of health and the only symptom she complained about before coming down with a bird flu virus was a low grade persistent fever (not for a few months but for a few years). The last time I had bronchitis before it became pneumonia I had a low grade fever in the few months before my pneumonia diagnosis. Keep looking is my advice to you.  Low grade fevers are fighting off an infection . .  sometimes we don't know why until other symptom's present themselves. I do know that when I went gluten free most of my chronic health issues got better.  I can only assume it (gluten) was triggering inflammation in my body. I hope you find out what is the cause of your fever and that being gluten free helps it. ****** this is not medical advice just some of the ways going gluten free helped me and some possible other causes of a low grade fever that have happened to myself or others that I know of. posterboy,
    • "If the biopsy is negative, then is there another test that can be done to make sure I really don't have celiac? " Yes, we can do a genetic testing for the celiac gene, I think it is the DQ2 and DQ8 gene, and maybe one other.   If you don't have one of these genes, I was told that you can not have Celiac.   See if your insurance will pay for one of this test.   If not, I think you can pay out of pocket for about $300.
    • I was just thinking the same thing! 
  • Upcoming Events