• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Facial Weight Loss
0

7 posts in this topic

I was wondering, I've lost quite a bit a weight in my face since this all started two years ago, and I'm really depressed about it. When I look in the shady parts at my reflection, I can see how bad it really is. Has anyone else here had this issue and, if so, when you did get diagnosed how long did it take after being on medication or diet did you start to gain your facial weight back? 

 

I know the facial weight loss has to do with malabsorption in my small intestine because I have fatty stools and did a fecal fat test to find out I was only absorbing about 70% of my daily fats. This varies I'm sure. But, over time it has done a number on my face. My GP told me men normally lose weight in their hands and face first, and this would make perfect sense for me because my face and now my hands have been the only part of my body that have lost weight. When this all started I weighed about 145, I now weigh 138 in two years. This would be much worse if I didn't drink Ensure's everyday and increase my caloric intake, but I've managed to slow down the process until my insurance will pay for my diagnostic testing endoscopy and colonoscopy. 

 

- Jay

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi Jay

So are you still eating gluten while you wait to get tested?

Since I went gluten-free a year ago, I have had a massive improvement in my facial skin, it is smoother and soft, and I lost the spots that plagued me for years. I have lost over 45lbs but not got saggy skin. I am in my 40s.

I only eat unprocessed foods, and get plenty of good fats olive coconut and avocado oils, plenty of nuts and avocados.

Two friends have changed to eating wholefoods on the basis of seeing the improvements in my skin. They are looking good too!

I hope you find some answers

0

Share this post


Link to post
Share on other sites

Thanks for the reply. My problem isn't so much skin related as it is weight in the skin, if I may. Like, for instance, I have certain sunken in features in my face, which tells me I'm losing weight in it. As far as my skin goes, its just fine.

0

Share this post


Link to post
Share on other sites

My face looks thinner, so I think it may be true one loses weight in their face first.  If I had to wait very long term for testing, I wouldn't.  I nearly died from starvation once and it wasn't fun.  What I would do is go gluten free and record changes that occur.  I would do a genetic test if you can.  You can actually do that anytime on gluten or off.  Record any results you get and report to the doctor.

 

You seem to know something about your absorption.  That could be a way of determining the condition of your small intestine.  If you went gluten free you could tell if your absorption was better by rechecking your absorption.  These are what I am doing with my Functional Medicine practitioner.

 

If you are gluten free already for two years.  I would look for further intolerances, take enzymes to help break down food, and keep analyzing a way to improve absorption.

 

I hope you can get a certain diagnosis, but more than that I hope you will get better, have a healthy plump face, and energy.

 

D

1

Share this post


Link to post
Share on other sites
Ads by Google:


I just posted this response to someone else having similar issues in a different forum on this site...  I hope it helps!

 

The good news is, this is to be expected and its not rare for this to happen.  You are not alone!  I did the same thing when diagnosed in October.  I'm a 5'11 male that weighed 137 and currently check in at 170.

 

So...  You are doing the right things but your results even under ideal circumstances won't come over night.  The smoothies, the shakes, the peanut butter, on top of your meals is great.  Sometimes I would stuff myself almost sick.  It took my body awhile just to adjust itself to handling the loads of food I was sending down the hatch.

 

If you have an iPhone I would download the FitnessPal app or an equivalent thereto.  It allows you to enter in every food you have eaten and fairly accurately tell you how many calories and the nutrients it contained over the course of a day.  I used it for a few reasons; 1. To set a calorie goal that matched my target weight.  2. So I could identify foods that give me more of what I needed.  3. Hold me accountable for my daily consumption.  It was like having a dietician with me everywhere I went.  I would be laying on the couch watching the Daily Show with Jon Stewart and realize per my app, dang--I still need 300 more calories....  Off to the kitchen I went...

 

I entered my target weight and then it put me on a program to gain 1 or 2 pounds per week.  So again, it takes time.  It takes work to maintain your weight if you are suffering malabsorption and then all the more if you are trying to gain but over time, I did.

 

I made a lot of pizza's too.  Pizza, steak, chicken, shakes, 3 eggs and 3 slices of bacon in the morning with coffee and creamer...  vanilla ice cream, peanut butter, hersheys, and a banana in my milk shakes.  I would eat breakfast and then make a shake to drink on my way to work.  I thought I was going to literally pop by 9a!  

 

Remember as you are eating all this to get some water.  Your body needs it to aid the digestion.  Don't fill up on it, don't go overboard with it, just throw in a bottle of water here or there where you ordinarily might not.

 

When I was eating like this I had some trouble falling asleep at night or waking up in the middle of the night because I was digesting all this food.  If you don't experience this, good for you.  If I woke up, I just embraced it by getting up and reading or watching TV or doing things that needed done around the house either way.

 

Hang in there!  

0

Share this post


Link to post
Share on other sites

Hi Mac,

 

You won't gain weight if you don't improve your digestion and eat enough calories.  If you are celiac you may have trouble digesting many foods until you get off gluten and get your gut healed up.  I think you are waiting for your medical insurance to kick in to get tested tho.  So, in the meantime you can still try some steps.  Eating lots of protein may help.  Avocadoes are a good thing to eat for protein, as well as meats.

 

Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy.
Avoid sugars and starchy foods.
Avoid alcohol.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,452
    • Total Posts
      930,631
  • Member Statistics

    • Total Members
      63,875
    • Most Online
      3,093

    Newest Member
    CJmommy
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hello I was diagnosed Dec 15 of last year and went totally gluten-free the next day. I actually got worse before I got better - it's a steep learning curve - but now, 4 1/2 months later I'm finally seeing improvement.  Hang in there. 
    • Called my GI doctor today to make sure he is going to look at my small intestine and do biopsy for Celiac for my EGD and he is. Thanks for the tip everyone about have to start eating gluten again. The office told me to break my gluten free diet and start eating gluten everyday until my EGD. Here's to being miserable again for a few weeks 🍻🍞😩
    • I can completely relate! The horrible mental effects that I have been living with for years is the absolute worst side effect of eating gluten, HANDS DOWN. Worse than the endless tummy aches, worse than the constant diarrhea, worse than the week long migraines, worse than the daily fatigue and body pain.... I honestly though there was something seriously wrong with me and hated my life because of how I felt mentally. I always felt like I was drowning, not in control of my thoughts, trapped in some unexplained misery. My head was always so cloudy, and I was mad because I always felt so slow and stupid. I would feel so lethargic and sad and empty while at the same time be raging inside, wanting to rip out of my own skin. I was mean, terrible, would snap at the people closest to me for no good reason and just felt like I hated everyone and everything. Think of how crappy you feel when you have a terrible cold and flu - I felt that crappy, but mentally. Some days were really bad, some were mild. I always thought it was because I was getting a migraine, or because I had a migraine, or because I had just overcome a migraine, because I didn't sleep well, because....always a random reason to justify why we have all these weird unrelated symptoms before we get diagnosed. I'm happy to say that I have been gluten-free for about 2 months now and though I am not symptom free, the first thing that improved was my mood. I no longer feel foggy and miserable. For the first time in years, my head is clear, I can actually think, and I feel positive and like I am in control of what's going on in my head. I don't hate the world. I don't spend every day bawled up on the corner of the couch depressed and angry. The release of these horrible symptoms is enough to never make me want to cheat, no matter what I have to miss out on. So insane how a little minuscule amount of a stupid protein can wreck such havoc. 
    • I wanted to collect some of the info on NCGI in one place so that visitors who test negative but may still have an issue with gluten can be directed there. I'll add to this post as I find new links, but feel free to add or contribute anything you think may be of use!  Matt ---   Useful links: An overview from Alessio Fasano, one of the world's leading researchers on celiac and gluten sensitivity: https://www.youtube.com/watch?v=VvfTV57iPUY Umberto Volta, another leading researcher in the field gives some of the latest findings about NCGI:  Presentation slides from Dr Volta's visit to Coeliac UK  - NCGS about halfway through A scholarly overview from celiac disease magazine: https://www.researchgate.net/profile/Knut_Lundin/publication/232528784_Non-celiac_Gluten_Sensitivity/links/09e415098bbe37c05b000000.pdf A good overview from a sceptical but fair perspective: https://sciencebasedmedicine.org/a-balanced-look-at-gluten-sensitivity/ Another overview: https://celiac.org/celiac-disease/understanding-celiac-disease-2/non-celiac-gluten-sensitivity-2/ University of Chicago's excellent celiac site's take: http://www.cureceliacdisease.org/category/faq-non-celiac-gluten-sensitivity/ A compelling account in the British Medical Journal from an NCGI patient: http://www.bmj.com/content/345/bmj.e7982 Here's some positive news about a potential new test: http://www.medicaldaily.com/non-celiac-gluten-insensitivity-blood-test-392850 NCGI in children:    NCGI and auto immune study: https://www.ncbi.nlm.nih.gov/pubmed/26026392 Also consider: Fodmaps: http://www.kcl.ac.uk/lsm/research/divisions/dns/projects/fodmaps/faq.aspx This Monash study: http://fodmapmonash.blogspot.co.uk/2015/03/the-truth-behind-non-celiac-gluten.html suggested some who think they're reacting to gluten should actually be reducing fodmaps Sibo: http://www.webmd.boots.com/digestive-disorders/small-intestinal-bacteria-sibo  
    • I was just diagnosed in March and I totally feel you. I'm having a hard enough time with determining which lip glosses are safe, let alone all my face products etc. I feel like this 'grey area' is the biggest annoyance with Celiac. So many foods/cosmetics I thought were safe after reading the ingredient list are actually not safe at all! One website says it's safe, one says its not. All these unfamiliar ingredients and even after googling term after term still so many grey areas!! I'm sure in time it gets easier and second nature and you learn by trial and error but holy this constant uncertainty is super annoying haha.
  • Upcoming Events