• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Macmuireadhaigh

Facial Weight Loss

Rate this topic

Recommended Posts

I was wondering, I've lost quite a bit a weight in my face since this all started two years ago, and I'm really depressed about it. When I look in the shady parts at my reflection, I can see how bad it really is. Has anyone else here had this issue and, if so, when you did get diagnosed how long did it take after being on medication or diet did you start to gain your facial weight back? 

 

I know the facial weight loss has to do with malabsorption in my small intestine because I have fatty stools and did a fecal fat test to find out I was only absorbing about 70% of my daily fats. This varies I'm sure. But, over time it has done a number on my face. My GP told me men normally lose weight in their hands and face first, and this would make perfect sense for me because my face and now my hands have been the only part of my body that have lost weight. When this all started I weighed about 145, I now weigh 138 in two years. This would be much worse if I didn't drink Ensure's everyday and increase my caloric intake, but I've managed to slow down the process until my insurance will pay for my diagnostic testing endoscopy and colonoscopy. 

 

- Jay

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi Jay

So are you still eating gluten while you wait to get tested?

Since I went gluten-free a year ago, I have had a massive improvement in my facial skin, it is smoother and soft, and I lost the spots that plagued me for years. I have lost over 45lbs but not got saggy skin. I am in my 40s.

I only eat unprocessed foods, and get plenty of good fats olive coconut and avocado oils, plenty of nuts and avocados.

Two friends have changed to eating wholefoods on the basis of seeing the improvements in my skin. They are looking good too!

I hope you find some answers

Share this post


Link to post
Share on other sites

Thanks for the reply. My problem isn't so much skin related as it is weight in the skin, if I may. Like, for instance, I have certain sunken in features in my face, which tells me I'm losing weight in it. As far as my skin goes, its just fine.

Share this post


Link to post
Share on other sites

My face looks thinner, so I think it may be true one loses weight in their face first.  If I had to wait very long term for testing, I wouldn't.  I nearly died from starvation once and it wasn't fun.  What I would do is go gluten free and record changes that occur.  I would do a genetic test if you can.  You can actually do that anytime on gluten or off.  Record any results you get and report to the doctor.

 

You seem to know something about your absorption.  That could be a way of determining the condition of your small intestine.  If you went gluten free you could tell if your absorption was better by rechecking your absorption.  These are what I am doing with my Functional Medicine practitioner.

 

If you are gluten free already for two years.  I would look for further intolerances, take enzymes to help break down food, and keep analyzing a way to improve absorption.

 

I hope you can get a certain diagnosis, but more than that I hope you will get better, have a healthy plump face, and energy.

 

D

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:


I just posted this response to someone else having similar issues in a different forum on this site...  I hope it helps!

 

The good news is, this is to be expected and its not rare for this to happen.  You are not alone!  I did the same thing when diagnosed in October.  I'm a 5'11 male that weighed 137 and currently check in at 170.

 

So...  You are doing the right things but your results even under ideal circumstances won't come over night.  The smoothies, the shakes, the peanut butter, on top of your meals is great.  Sometimes I would stuff myself almost sick.  It took my body awhile just to adjust itself to handling the loads of food I was sending down the hatch.

 

If you have an iPhone I would download the FitnessPal app or an equivalent thereto.  It allows you to enter in every food you have eaten and fairly accurately tell you how many calories and the nutrients it contained over the course of a day.  I used it for a few reasons; 1. To set a calorie goal that matched my target weight.  2. So I could identify foods that give me more of what I needed.  3. Hold me accountable for my daily consumption.  It was like having a dietician with me everywhere I went.  I would be laying on the couch watching the Daily Show with Jon Stewart and realize per my app, dang--I still need 300 more calories....  Off to the kitchen I went...

 

I entered my target weight and then it put me on a program to gain 1 or 2 pounds per week.  So again, it takes time.  It takes work to maintain your weight if you are suffering malabsorption and then all the more if you are trying to gain but over time, I did.

 

I made a lot of pizza's too.  Pizza, steak, chicken, shakes, 3 eggs and 3 slices of bacon in the morning with coffee and creamer...  vanilla ice cream, peanut butter, hersheys, and a banana in my milk shakes.  I would eat breakfast and then make a shake to drink on my way to work.  I thought I was going to literally pop by 9a!  

 

Remember as you are eating all this to get some water.  Your body needs it to aid the digestion.  Don't fill up on it, don't go overboard with it, just throw in a bottle of water here or there where you ordinarily might not.

 

When I was eating like this I had some trouble falling asleep at night or waking up in the middle of the night because I was digesting all this food.  If you don't experience this, good for you.  If I woke up, I just embraced it by getting up and reading or watching TV or doing things that needed done around the house either way.

 

Hang in there!  

Share this post


Link to post
Share on other sites

Hi Mac,

 

You won't gain weight if you don't improve your digestion and eat enough calories.  If you are celiac you may have trouble digesting many foods until you get off gluten and get your gut healed up.  I think you are waiting for your medical insurance to kick in to get tested tho.  So, in the meantime you can still try some steps.  Eating lots of protein may help.  Avocadoes are a good thing to eat for protein, as well as meats.

 

Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy.
Avoid sugars and starchy foods.
Avoid alcohol.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,932
    • Total Posts
      943,579
  • Member Statistics

    • Total Members
      67,230
    • Most Online
      3,093

    Newest Member
    Lydiac
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi there I have this exact same thing.. however I don’t have celiac that I know of.. I found this when google searching for what the heck is wrong with my face.  I was wondering if you ever found out.. or if it just went away. Thanks
    • I have read the newbie 101 and have been careful about reading labels. I'm the only one that's gluten free in my household, so they could be contaminating me. I was eating gluten for 6 weeks after my blood test because it took that long to get an official diagnosis and my GP told me to still be eating it for the tests to be accurate. It was probably too soon to retest, but the test was accidentally ordered by the lab. I have been having an increase in joint pain over the last couple months and my rheumatologist ordered lab work. The lab saw the celiac panel had been ordered, but didn't see results so they added it on because they thought it still needed done.  My gut issues are starting to get better, but I'm thinking the joint pain might have been from the celiacs because all of the rheumatoid tests came back normal for the first time in twenty years.
    • Hi and Welcome to the Forum.  I am glad that you are here! As with a lot of things in life, try not to compare yourself to other people. You are trying to be the best version of yourself - not Jill, Annie, or Maya.  People make a lot of foolish decisions in the world and it does not mean that you should do it too.  Also, many people are gluten free for a lot of reasons that aren't celiac. One of my best friends has gluten sensitivity but not celiac.  He eats a lot of food that I won't touch due to possible cross contamination which he doesn't worry about too much.  Be true to yourself and keep your self healthy.  It is so hard, but it's better than getting sick! I hate not being able to partake in yummy food at parties, but I have learned what junk food I can eat.  I will make sure to buy some tortilla chips or Fritos for picnics.  I freeze gluten-free cupcakes to eat when we celebrate birthday parties (I can just take one out of the freezer and go).  I make sure to take a dish to share to potlucks.  I ask permission at restaurants and parties to bring my own food - no one has ever said no, and when there is a time to celebrate, I splurge on something I really like.  Fortunately, there are a lot of gluten-free foods that I really like. Do i miss pizza and really good burger? YES! And sometimes, I still feel awkward, but life is so much more than food.
    • If Small was going to get rid of anything in a takeaway meal, it would be the bread with all its dreaded gluten. However, many scientists and nutritionists argue gluten is not a problem for people who do not have celiac disease or who are not "gluten-sensitive". Massey University senior lecturer in food ... View the full article
    • Holy cow! You people are all angels! I have been suffering unbearably with these hot, itchy, and painful bumps on my scalp for a year now. Two doctors had no idea what it was, so I was sent to see a "dermatologist." To my utter shock, he told me I WAS DIRTY! HE TOLD ME TO WASH MY HAIR EVERY DAY with a shampoo called Nizoral, that it would take the itch away. He also prescribed a Vaseline based salve with a steroid in it. Guess what? It did nothing nor did the shampoo, and the more I washed my hair, the worse it gets. It's like torture, and I just can't stop scratching holes into my scalp. Then they scab over, then itch again. I was almost ready to shave my head, until I found this forum. I knew nothing about celiac disease, sensitivity to gluten... I knew nothing. Just so happened that my daughter found a paper talking about celiac during her visit to her GI yesterday. She brought it home for me, and demanded that I read it!  WHAM- a light come on, and I said to her... That IS what I have. I am going to my GP tomorrow to demand that I be tested for ciliac. I am rather terrified, as I am already a type 1 diabetic and have been on insulin for 52 years! I was blaming my diabetes the whole time. I have had a lower left leg amputation, and the last thing I need is to start getting this ungodly rash on my stump!!! Thank you everyone for all of the useful information you have provided in this blog. Maybe I'm not going to die after all! 😉
  • Upcoming Events