• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Mushrooms
0

27 posts in this topic

Ok... Just read this...

http://celiacdisease.about.com/od/glutenfreefoodshopping/f/Gluten-Free-Mushrooms.htm

Anyone know if this is for real??!! Really? Grown on rye and wheat? I haven't had many mushrooms as my diet has been so limited because of allergies.. But I was just about to re introduce this weekend! The idea of consuming ANY gluten puts me off completely, I'm gutted, I was so excited about eating some shrooms tonight!

Anyone else eat or not eat shrooms? Be interested in anyone's opinions. :)

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I eat shrooms whenever and however much I want. Never had an issue. I wash them well with a shroom brush and cut off the bottom of the stems, if I'm even using them, where they'd be touching whatever they're growing on. Different shrooms are grown in different ways and this has a lot more information about it. If we had to worry about gluten being in everything we ate that was grown in soil that glutenous grains had been tilled into we'd all be dying from ever eating any crop out of the midwest.

 

http://mushroominfo.com/growing-mushrooms/

0

Share this post


Link to post
Share on other sites

I eat mushrooms also, no problems from them either.  I get the whole mushrooms, not the pre-sliced ones.  That way it is simple to rinse them off and clean them.

0

Share this post


Link to post
Share on other sites

I have issues with them from the store.  I can eat them from a source that I know doesn't use grain derived materials.  I believe that am sensitive to very low levels of gluten and have problems with all sorts of things which I attribute to very low levels of gluten contamination.  I could be wrong about that.  I have talked to suppliers of mushroom spores to grow them myself, and all the sources I contacted said that they used gluten grain materials to grow the mushrooms.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I eat mushrooms also, no problems from them either.  I get the whole mushrooms, not the pre-sliced ones.  That way it is simple to rinse them off and clean them.

me, too.  but i'm also fine with the sliced ones, i just have a harder time cleaning them.  truth be told, i probably have eaten the 'dirt' more than once and do not get a gluten reaction.  even if i can't see it, my body would know - antibodies fight things as small as germs so they wouldn't miss a chance to fight gluten if there was any.  so, i guess there wasn't :)

0

Share this post


Link to post
Share on other sites

I have issues with them from the store. I can eat them from a source that I know doesn't use grain derived materials. I believe that am sensitive to very low levels of gluten and have problems with all sorts of things which I attribute to very low levels of gluten contamination. I could be wrong about that. I have talked to suppliers of mushroom spores to grow them myself, and all the sources I contacted said that they used gluten grain materials to grow the mushrooms.

thats interesting, thanks... Just wondered, what kind of issues do you experience with them? Does it feel like a glutening?
0

Share this post


Link to post
Share on other sites

I eat shrooms whenever and however much I want. Never had an issue. I wash them well with a shroom brush and cut off the bottom of the stems, if I'm even using them, where they'd be touching whatever they're growing on. Different shrooms are grown in different ways and this has a lot more information about it. If we had to worry about gluten being in everything we ate that was grown in soil that glutenous grains had been tilled into we'd all be dying from ever eating any crop out of the midwest.

http://mushroominfo.com/growing-mushrooms/

Great link thanks!! Very interesting... Will go into it properly as I only had time for a quick scan... Though must admit I didn't read anything mentioning gluten grains for growing in any of it... Might have missed it though! Thanks for your help. :)
0

Share this post


Link to post
Share on other sites

Thanks everyone... I wonder just how many mushroom farms do use gluten grains? Anyway. I ate about 6-7 button cooked shrooms tonight on my salad... They were so tasty, cooked with garlic! Delish! Am waiting to see what happens to my gut. So far... So good. Keeping it crossed. I'd like to keep them in my diet. Must admit though I do worry about being contaminated without knowing (ie not displaying any symptoms) as my gi symptoms before diagnosis weren't that bad (not good, but not dreadful!)... Thanks again everyone...

0

Share this post


Link to post
Share on other sites

You need to remember that plants, or fungi, can be contaminated during harvesting, but the plant/mushroom itself does not absorb the gluten as a nutrient and then store it for you to find later.

I eat mushrooms almost every day, and have done so for years and years. If you want something to worry about, consider the gal who ate a sandwich for lunch, and then shopped later. Did she pick up a mushroom from the bin and decide not to select that one, putting it back? That is a credible, although truly minimal, risk. I clean my mushrooms with a dry mushroom brush. No problems so far. Thirteen years and counting.

0

Share this post


Link to post
Share on other sites

You need to remember that plants, or fungi, can be contaminated during harvesting, but the plant/mushroom itself does not absorb the gluten as a nutrient and then store it for you to find later.

I eat mushrooms almost every day, and have done so for years and years. If you want something to worry about, consider the gal who ate a sandwich for lunch, and then shopped later. Did she pick up a mushroom from the bin and decide not to select that one, putting it back? That is a credible, although truly minimal, risk. I clean my mushrooms with a dry mushroom brush. No problems so far. Thirteen years and counting.

Thanks for that! Yes, I think you're right... And I'm glad, I love shrooms... Must admit they gave me lots of gas!! Not sure if that's normal but I'm willing to give it another go! Gonna buy myself a mushroom brush :)
0

Share this post


Link to post
Share on other sites

thats interesting, thanks... Just wondered, what kind of issues do you experience with them? Does it feel like a glutening?

 

It does feel like a glutening, but let me repeat that I believe that I react to very small amounts of gluten.  These amounts are way below the just under 20 ppm allowed in gluten-free foods, to which the experts say that the vast majority of celiacs don't react.  The experts would say that there is no reason to worry if you can eat those without problems.

 

These have some information that includes a mention of grains: http://www.mykoweb.com/articles/cultivation.html

http://www.hobbyfarms.com/crops-and-gardening/mushroom-farming-14815.aspx#types

http://en.wikipedia.org/wiki/Fungiculture

1

Share this post


Link to post
Share on other sites

I also eat mushrooms often and have never had a problem and  I often just wipe them well with a damp cloth. 

I have a veggie brush, too.

My chef friend peels the cap when she makes stuffed 'shrooms, but I see no need for that and we have spirited "amateur vs. pro chef disputes" -all in good fun. of course.. 

and of course, no one can tell whose shrooms are "better"--peeled or unpeeled. :D

(mine are)

 

My French Canadian Grandma had an expression for when any of us whined if something we thought maybe had a teensy speck

of dirt on it from the garden....she'd say "you have to eat a peck o'dirt before you die, baby. Don't worry about it.". :)

0

Share this post


Link to post
Share on other sites

It does feel like a glutening, but let me repeat that I believe that I react to very small amounts of gluten. These amounts are way below the just under 20 ppm allowed in gluten-free foods, to which the experts say that the vast majority of celiacs don't react. The experts would say that there is no reason to worry if you can eat those without problems.

These have some information that includes a mention of grains: http://www.mykoweb.com/articles/cultivation.html

http://www.hobbyfarms.com/crops-and-gardening/mushroom-farming-14815.aspx#types

http://en.wikipedia.org/wiki/Fungiculture

Great links again thank you :) bloody grains though eh? Can't get away from them! I must say I have no idea if I react to gluten free products as u don't eat them. I know I react badly to corn, so avoid that also. I generally only eat whole foods except for rice cakes and occasional potato chips. And red wine! That's it tho. Just a last question... Could it be the case that someone would be internally reacting to low levels of gluten but remain symptom free? I often wonder this...(!!) my paranoia :D
0

Share this post


Link to post
Share on other sites

I also eat mushrooms often and have never had a problem and I often just wipe them well with a damp cloth.

I have a veggie brush, too.

My chef friend peels the cap when she makes stuffed 'shrooms, but I see no need for that and we have spirited "amateur vs. pro chef disputes" -all in good fun. of course..

and of course, no one can tell whose shrooms are "better"--peeled or unpeeled. :D

(mine are)

My French Canadian Grandma had an expression for when any of us whined if something we thought maybe had a teensy speck

of dirt on it from the garden....she'd say "you have to eat a peck o'dirt before you die, baby. Don't worry about it.". :)

Lol, I agree with your wise granny!! She's right! It's good to hear so many celiacs eating shrooms with no probs, it's unfortunate that they can't grow all of them on logs. I wish I has the time to grow my fruit & veg, I love fresh garden produce! Maybe one day when I live in Spain again hey?! ;) thanks for your response, blighty hugs!
0

Share this post


Link to post
Share on other sites

Great links again thank you :) bloody grains though eh? Can't get away from them! I must say I have no idea if I react to gluten free products as u don't eat them. I know I react badly to corn, so avoid that also. I generally only eat whole foods except for rice cakes and occasional potato chips. And red wine! That's it tho. Just a last question... Could it be the case that someone would be internally reacting to low levels of gluten but remain symptom free? I often wonder this...(!!) my paranoia :D

I consider wine a whole food.

Get your blood levels checked every year as is recommended. That should help you see if you are reacting to something on a regular basis.

0

Share this post


Link to post
Share on other sites

cheers.gif ditto 

 

I consider wine a whole food.
 

0

Share this post


Link to post
Share on other sites

These are the one thing I've not tried growing, but we have no problem with the store bought ones.  All I could think of is that if they were the loose ones you put in the bag, do you think someone came along with bread or biscuit crumbs on their fingers and maybe touched some that you ate?  I know it sounds unlikely, but not impossible. 

0

Share this post


Link to post
Share on other sites

Great links again thank you :) bloody grains though eh? Can't get away from them! I must say I have no idea if I react to gluten free products as u don't eat them. I know I react badly to corn, so avoid that also. I generally only eat whole foods except for rice cakes and occasional potato chips. And red wine! That's it tho. Just a last question... Could it be the case that someone would be internally reacting to low levels of gluten but remain symptom free? I often wonder this...(!!) my paranoia :D

 

I can appreciate that concern.  I am so symptomatic at such low levels that I have to be happy with symptom free.

 

One thing about symptom free: I don't about you, but when I got my diagnosis and went gluten free I had all sorts of symptoms resolve, not just the obvious ones that had led to the diagnosis.  I had no idea how many things were being caused by celiac disease.  I think that at least some of those "symptom free" people are not symptom free at all, they are just ignorant of their symptoms.  Now that you are educated about your own symptoms, you would likely be aware if some were to come back.  Does that reassure you a bit?

1

Share this post


Link to post
Share on other sites

I have a reaction to mushrooms, but it's not a gluten reaction.  I'm finding the my system doesn't react well to certain foods, especially those with histamine, so I attribute it to that, not any sort of gluten.  The mushrooms give me a headache.

0

Share this post


Link to post
Share on other sites

My SIL is allergic to mushrooms.  Some chicken/veggie broths have mushrooms in them.  When she is coming over, I have to remember to check the broth I   use to  make food

0

Share this post


Link to post
Share on other sites

I have a reaction to mushrooms, but it's not a gluten reaction.  I'm finding the my system doesn't react well to certain foods, especially those with histamine, so I attribute it to that, not any sort of gluten.  The mushrooms give me a headache.

 

I have a histamine intolerance but for some reason, those do not bother me.

Too much red wine, hard cheese and tomatoes, though....oh boy. :(

0

Share this post


Link to post
Share on other sites

Interesting stuff, thanks everyone for sharing...

Irish... what symptoms do you get with histamine intolerance??? Just wondering? Is it GI? ;)

0

Share this post


Link to post
Share on other sites

For me it's more sinus related - runny nose, stuffy nose, sinus headache.  Unfortunately the wine does it to me too :( So I've had to stop drinking that.  And my cider too.  I found out by keeping a food journal on my i-phone and going to the site that Irish linked above.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,453
    • Total Posts
      930,637
  • Member Statistics

    • Total Members
      63,879
    • Most Online
      3,093

    Newest Member
    Rishu
    Joined
  • Popular Now

  • Topics

  • Posts

    • JMG got it down pretty much, the painful and gluten effects from eating it should clear up in a month, damage symptoms you might notice some differences as early as 2-4months but most do not noticed major improvements til about 6 months to a year. I have been gluten-free for over 3 years all my villi have healed according to the doctor on my last scope. It is very important to not cheat and avoid any kind of CC as it can set you back weeks or months. I would suggest a whole foods only diet for the first month or two, no dairy, simple stews, soups, etc. make for easy to digest and simple meals. Check out the 101 thread for some good information. PS a new combo crockpot, steamer, rice cooker combo and liners for a crock pot will be a life saver for making simple meals and easy clean ups. Quick cook microwave ware will also be handy making sure you have gluten-free cooked meals if you can not get new cookware immediately. I normally suggest cleaning out the entire house, scrubbing down knobs, handles, on the drawers, sink, fridge, cubbards etc.  throw out condiment jars, checking ingredients on everything in the house including your hygiene and makeup. Putting in drawer organizers for new utensils, throwing out scratched glass, teflon, plastic, and steel cookware. Throwing out any Tupperware, and cutting boards, some utensils that can not be cleaned well. Some times you can save cast iron and stainless steel cook ware if you can run it in your ovens cleaning cycle over 600F. Gluten is a protein like blood if you can not clean a item where a CSI team will not find it give it up, it is not a germ that can be killed with disinfectant.  I use freezer paper for clean prep surfaces, also makes clean up a breeze, I tend to use gloves alot also when fixing foods,
    • Hi Allie and welcome First off, I know 3 years was a long wait, but at 17 you've figured out celiac way before many people do. That should make a big impact on minimising its effects and helping you with the diet, so, bizarrely enough, congratulations!   A lot of good advice has been brought together in this thread:  Don't worry that your symptoms are bad now. As you follow the diet your body will begin healing itself and you're still very young so hopefully this will go really smoothly. Think in terms of the next 6 months rather than weeks however, recovery will likely take a little time. Eat as healthily as you can, lots of whole foods and try to avoid the gluten free processed substitutes as your digestive system needs all the help it can get at this moment.  You may want to avoid dairy as well for now and think about reintroducing it later. This site has been really helpful to me and others. I hope you find it just as useful. Best of luck!   ps, your increased reaction to gluten during the challenge phase was perfectly normal. Many find that reintroducing it much worse than the initial affects and take some time to get over the challenge. That's why you'll see lots of posts here urging folks to 'stay on gluten' till their testing is complete!
    • Hi! My daughter is 19 was diagnosed at age 16. It took about 12-18 month s for her to fully heal from the damage and feel "normal" again. Also because of the damage done she had reactions to dairy, so you may want to try no or minimum dairy until youre fully healed. Just a suggestion. Hope you start feeling well soon!
    • Hi yall! New to this blog, but really glad it exists because I have lots of questions. First off, I'm Allie! I'm 17 and newly diagnosed Celiac after about 3 years of searching for answers. I initially went gluten-free on the recommendation of a friend, I felt better in about a month and then my pediatric gastroenterologist had me do the gluten challenge, and my symptoms were the worst they have ever been, and ones I barely noticed before became very present. I did the biopsy and was diagnosed, it's been about 2 weeks and my symptoms are still pretty bad, although my diet has no known sources of gluten or cross contamination. Wondering if anyone has any input on healing post gluten challenge, any tips or how long it took for you would be quite helpful! Thanks 
    •   Might want to look into a keto diet, I have UC on top of celiacs and keto is working great Yeah I have major nerve and brain issues with gluten, gluten ataxia with nerve issues and brain issues. Seems to cause my body to attack my brain and nerve system. My brain stumbles fogs, and starts looping, the confusion causes me to become really irritable, I call it going Mr Hyde. Like my mind will start looping constantly on thoughts and not move driving me literally mad, or it used to. Now days it is primary the numbness anger but the gut issues and sometimes random motor loss limit me motionless to the floor now days for the duration of the major anger effects. Used to be a lot more mental then painful gut. I did a mental trauma post on it on while back where I came out about all my mental issues with gluten.  
  • Upcoming Events