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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Inconclusive Results - Does This Mean I Do Or Do Not Have Celiac?
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5 posts in this topic

I have been tested twice in the past two and a half years for Celiac Disease - once when I first visited a GI and again after having a baby. Both times my test results came back inconclusive. I have been gluten-free 100% since this past test because it makes me feel so much better. I know that there is non-Celiac gluten intolerance, and maybe I fall into that category. But what if I do have Celiac and those rare times when I get glutened are really harming my body? My GI told me that there are 16 or so markers to test for but that they could only test for two. Is that true?

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Get a copy of the tests that were run.  I'm not sure what he means by 16 markers.  There are a couple of blood tests, and endoscopy with a biopsy and response to diet.  Maybe he is one of the many that don't know anything about Celiac?

 

http://www.cureceliacdisease.org/medical-professionals/guide/diagnosis

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The usual tests are:

  • tTG IgA and tTG IgG
  • DGP IgA and DGP IgG
  • EMA IgA
  • total serum IgA (a control test)
  • AGA IgA and AGA IgG (older and less reliable tests)
  • endoscopic biopsy

There are a few older tests (reticulin IgA?) that can look for celiac disease but they are very rarely used anymore.

 

Bring us your results, and normal ranges, and we can help you interpret them.

 

Welcome to the board.

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If he said 'markers', that sounds to me like he meens genetic markes? I know they test for two different genetic markers that most people with celiac (and quite a few others) have, maybe he thinks/knows that there are more markers that celiacs' have in common, but they can not test fro them?

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Thanks, y'all! I don't think I ever received the test results from my GI, so I've requested copies of all of my records and I'm waiting for those to come back to me. I'll let y'all know what I find.

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