• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Other Food Intolerances / Allergies?
0

9 posts in this topic

Hi all,

 

I've recently been diagnosed with Celiac and am basically a sponge for knowledge at the moment! Sorry for yet another question!

 

I keep reading about other food intolerances and allergies in people with Celiac disease. Are these issues that were present before Celiac or because of Celiac? In other words, is there a higher likelihood of developing some new, additional issues with food that I've never had before?

 

Also, how do you know if you have a food intolerance or allergy? I know I'm allergic to shellfish because I have had reactions in the past and had a test at the allergist. But how would I know what to get a test for, if I don't have any reactions to other foods?

 

If there is a higher likelihood of other food issues with Celiac, is there anything I can do to prevent them or reduce my chances of developing these issues?

 

My Celiac seems to be largely "silent" aside from acid reflux controlled by medication - so I really don't know when I'm having a reaction.

 

Help! Thanks.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


An allergy is more along the lines of hives/swelling and the like. An intolerance can sometimes cause stomach issues, joint pain, headaches, and so on.

 

There really isn't anything you can do to prevent them. For example, i am intolerant to sweet potatoes and onions. I am allergic to tomatoes and possibly green beans.

0

Share this post


Link to post
Share on other sites

The things we are MOST likely to be intolerant to are soy, oats (even gluten-free oats), corn, and nightshades. Some of us also have trouble with eggs and nuts.

 

I don't know if avoiding these things while you are healing might prevent problems or not, but you could be our guinea pig! :lol: (sorry).

 

I discovered my corn intolerance quite soon after going gluten-free when I made a big batch of gluten-free cornbread. I have often wondered, if I hadn't done that would the intolerance never have reared its ugly head? I don't know.

 

The thing is, there is no reliable testing available for intolerances. The only way to really tell is to keep a food and symptom diary. If you are already eating all of these things without symptoms, I wouldn't worry about it. LOTS of celiacs never develop other intolerances. But if you DO find yourself having symptoms of something being wrong, you could drop all of these foods until you feel better, then add back one a week until you find the one that's hurting you.

0

Share this post


Link to post
Share on other sites

The things we are MOST likely to be intolerant to are soy, oats (even gluten-free oats), corn, and nightshades. Some of us also have trouble with eggs and nuts.

 

I don't know if avoiding these things while you are healing might prevent problems or not, but you could be our guinea pig! :lol: (sorry).

 

I discovered my corn intolerance quite soon after going gluten-free when I made a big batch of gluten-free cornbread. I have often wondered, if I hadn't done that would the intolerance never have reared its ugly head? I don't know.

 

The thing is, there is no reliable testing available for intolerances. The only way to really tell is to keep a food and symptom diary. If you are already eating all of these things without symptoms, I wouldn't worry about it. LOTS of celiacs never develop other intolerances. But if you DO find yourself having symptoms of something being wrong, you could drop all of these foods until you feel better, then add back one a week until you find the one that's hurting you.

And to add to this dairy.....evil dairy....lol :P

0

Share this post


Link to post
Share on other sites

I knew I was forgetting something. :huh:

0

Share this post


Link to post
Share on other sites
Ads by Google:


Shoot, I do that all the time :D (so many intolerances, so little time...and memory to remember all of them..lol)

 

I knew I was forgetting something. :huh:

0

Share this post


Link to post
Share on other sites

I have been questioning celiac disease treatment for some time as I was diagnosed with an antibody count of over 800. I think 10 is supposed to be high? Maybe someone can confirm that.

 

Since going onto the prescribed treatment of 100% gluten-free I have encountered a multitude of food intolerences - oats, all dairy, eggs, soya, pears, grapes etc. I have to ask why? I do not believe in coincidences of this magnitude but I cannot find any evidence of any research into celiac disease "treatment" - only a plethora of celiac disease "Diagnosis" research projects.

 

I am interested in hearing from any celiac disease sufferer if they have encoutered similar intolerences.

0

Share this post


Link to post
Share on other sites

I went glutenfree in 2004 and about two years ago I started to get kidney pain every once in a while. Just last month during the course of an important audition I frantically tried to get rid of the bags under my eyes with make up, which didn't work. I suck at makeup. So I came to conclusion, that it must be some kind of allergy. I went entirely dairy free about a month ago and today I drank a hot cocoa and ate a Nutella bread, and wouldn't you think... brain fog, extreme fatigue, and kidney pain a few minutes after eating it. :(

0

Share this post


Link to post
Share on other sites

Oh, and another symptom I forgot about until it hit me right now. It's not really asthma, but more like a "one-single-lung-cramp-every-20-minutes-or-so"-thing. It's really annoying.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,802
    • Total Posts
      932,556
  • Member Statistics

    • Total Members
      64,294
    • Most Online
      3,093

    Newest Member
    Alisha Patel
    Joined
  • Popular Now

  • Topics

  • Posts

    • Very interesting. However, my positive on the DGP test is on the combined assay. When separated into IGA and IGG they are within normal range. Twice the IGA was a point or two above normal range, which can be easily disregarded per University of Chicago.  Much of the research done on NCGS is showing activation of cells which are different then in celiac. Placing it still in a gluten related illness spectrum, but an entirely different kind of mode of transport, if you will, then celiac disease. Odd, because I am pretty sure I read that 1st degree relatives of celiacs have a higher prevalence of NCGS suggesting it is, in part, that they are related. But I cannot recall where I read that.  I think my specialist doc is following the right track given that all of this began at the tail end of a 6 week challenge in 2015/16 and I have an increase in IELs.  which, as I've stated before, is a very non-specific finding however. Symptoms continued On a gluten free diet for me months after.  however I was only on it for that 3 months after they found some inflammation. So maybe I didn't give it long enough.  Or like I said, maybe it's something else. We shall see! 
    • Thank you for your replies, everyone! It was very helpful. I don't think I am comfortable with passing the whole gluten introduction diet again and getting that rash. Or, even getting the rash on my face flared up again. It actually might be a good thing I got 'glutened' at that bd party so I could finally make connection with all the symptoms. As I thought back about my 'allergy' rashes I start wondering if it could be related to gluten all those years but no one even suspected. For example, at some point I started getting itchy rash around my knees, spreading down to ankles (front of the legs) in summer. The dermatologist and GP said it is 'sun allergy'. The usual allergic treatments helped for the itch and the patchy scales slowly healed but it flared up on the same place during the summer multiple times. The strange thing is that it never flared up when I went hiking, or walking in the sun in the city (I have extremely low vit D levels and I need to supplement, so it was no-no to stay completely covered no matter the rash...I needed my natural vit D). The rash only appeared after beach visits. At some point I started washing and drying my skin with a towel every time I went out from the sea, the rash still appeared but I was able to control it so it showed up on day 4-5 when vacation was almost over. Then, last summer after I was completely gluten and dairy free for approximately 9-10 months, and I was annoyed of washing my skin each and every time and getting those weird looks on the beach, I stopped doing it. I was prepared with medicine and creams for that rash but guess what - my 'sun allergy' was mysteriously gone. Not a single blister, not a patch of itchy skin, nothing. Another 'allergy' case of mine is that I found from my own bad experience I got very bad rash from red dyes (in food or cosmetics). If it is food it shows on my face, if it is cosmetics (soaps, perfumes)...whenever I applied it. I am now reading that people with dh should stay away from red dyes. Mere coincidence? I don't know, I am more and more suspicious I could have this DH thing going on for years, if that is DH. I am just annoyed that all the dermatologists I went to during all those years never made connection. No one even suspected. It was the usual path - cortisone creams, pills, etc. At some point cortisone creams were no longer working so they started prescribing some mixtures made in the pharmacy specifically for me with sulfur. That worked like a charm but I couldn't walk around all covered in white cream looking like a mummy (long sleeves in summer here where I live and summer = 35-38 C, is not fun). Then, I tried homeopathy....it worked like a charm but of course those rashes kept appearing and disappearing, I was only able to control the itchy skin so I don't scratch, scratch, scratch...looong, long journey! Sorry about my rant...and, one more time thank you everyone who found the time to reply and share your opinion! Much appreciated!
    • Found this old thread when researching for my daughter who might be having an endoscopy in September. I'm curious to know what the results were?
    • Actually "flour" is not a common ingredient in soy sauce.   Accusing a manufacturer of "lying" about ingredients is a serious charge.  If you actually have proof that this company is not listing ingredients, you should report it to the FDA.
    • Ok guys, I messed up. I ate a bag of marshmallows the same day... low and behold, with wheat starch. I did not expect that. Sneaky sneaky marshmallows with with wheat starch. fml
  • Upcoming Events