• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Crazykids5

Could Celiac Be Causing My Problems?

Rate this topic

Recommended Posts

Feeling lost and not sure what to do. I am a 35 year old mom of 5 kids. Growing up I had horrible allergies/sinus issues, severe mood swings and difficulty learning. Diagnosed with Grave's disease 12 years ago and underwent RAI therapy. About 2 years ago I started working out and eating better and lost 30 pounds. Then all of my abdominal problems began. One day I started having severe cramps when trying to pass a bowel movement. I sat on the toilet for most of the day with severe cramping and nothing would come out. When to an Urgent Care.  They performed an Xray which showed my entire colon filled with stool. That was very odd to me because I had a bowel movement every day previously. It was always a small amount though and mushy. The dr. recommended laxatives and an abdominal CT. It came back showing most of my large colon thickened, fluid in abdomin and gall stones. Went on a month of antibiotics and followed up with a colonoscopy. It showed a perfectly healthy colon.  The GI dr. said to use a dose of Miralax every morning and eat a high fiber/grain diet.

Followed what he said to do and my intestional problems continued. I would go 3-4 days between movements and when I did go it was mushy.  Started having severe headaches. They were constant and always in the same area of my head. My brain began to feel foggy.  I had trouble remembering things and felt like I was going crazy. A few months later my family dr ordered an MRI of my head and blood work.  The MRI came back showing a sinus infection (dual maxillary sinus) and one white lesion. My blood work showed borderline low Ferritin, very low Vit D, Potassium low normal, and my Bilirubin was slightly elevated. My Free T4 and T3 were low normal even though I am on a high dose of Synthroid.  Started antibiotics for the sinus and felt a tiny bit better. The constant headaches went away, but my my body does not feel good. I stuggle every day with my stomach hurting after I eat and difficulty going to the bathroom with random bouts of diarrhea. My life feels like I am in a fog. My other symptoms for the past few months have been dizziness, tingling in hands and feet, fatigue, hair loss, hard time concentrating/remembering and anxiety/depression. I have itchy bumps on my scalp and hairline. I tired popping a few but only clear liquid comes out. The weird thing is that I have gained 15 pounds in the last 8 months, but my apptitie has been ravenous and I easily consume 2500-3000 calories a day. I guess that combined with my low thryoid could explain it. 

Should I even consider Celiac to be a cause? My husband has been extremely understanding but I think he is beginning to think it is all in my head. I am considering doing this self ordered online panel. It is $179 and I have my blood drawn at a LabCorp site with the results sent to me. Is it through enough? Thanks so much!

 

Celiac Disease Comprehensive Antibody Profile   Test Details

Includes: Deamidated gliadin antibodies, IgA; Deamidated gliadin antibodies, IgG; Tissue transglutaminase (tTG) IgA; Tissue transglutaminase (tTG) IgG; Endomysial antibodies, IgA; Immunoglobulin A, Qn, Serum This test is also known as: Deamidated Gliadin Endomysial IgA Antibodies Tissue Transglutaminase Total IgA

 

 

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Welcome!  

 

You definitely sound as though you have celiac disease.  I"m sure others who are more savy on forum will post helpful input on the exact tests you need for a proper diagnosis.   Until then, keep eating gluten!  

 

Good luck!

Share this post


Link to post
Share on other sites

My son just walked up and asked why I looked so sad.  I feel for you.  I believe you have symptoms you listed, and I hope you will be well.  I know how hard it can be.

 

I love kids.  I want them all to have an energetic mother.  I have 7  children and have lived through about 30 years of foggy fatigue.  Over the years,  I felt as devastatingly tired in the morning as at bedtime.  --I am happy to say that I am better now.  I hope one day you will have that same story to tell to us.

 

Please consider celiac.  You need to be eating gluten for the blood test that you have to be accurate.  I am leaving to someone else to check if all the tests are there.  Sometimes, I know that check some nutrient levels with the antibody tests.  That would be total iron, vitamin D and perhaps others.  Oh, I see that both iron ferritin and vitamin D are low.  Have you supplemented them?

 

I noticed last time I was constipated that dizzy fatigue and lack of energy came with it.  It cleared when my bowels loosened up. If you do have celiac, your body can't get enough nutrients from the food you eat.  That could explain a ferocious appetite.  You might try a probiotic, multi-vitamin and Vitamin B. If these are new to you, you may as well look for a gluten free version, so you don't have to switch if you find out you have celiac.   Find out as soon as possible about the celiac and then you can avoid gluten and  begin to heal.  

 

Take some downtime if and when you can.  Otherwise realize that you need to take one step at a time and try to get better in spite of the challenges.  Give yourself time to recover.  Hopefully, your hubby will feel more supportive as he sees your progress over time.  Mine did.  The children can begin to help with the work if they haven't already.  My oldest daughter fixed dinner when she was only 6.   I directed while lying on the kitchen counter.  We got through.

 

Please get well ***

D

Share this post


Link to post
Share on other sites

I've been trying for the past three hours to answer this post but those pesky customers keep coming in and interupting. :lol:

 

Yes, it certainly sounds like celiac to me. It sounds like your doctor has been trying to help you, but like SO MANY doctors, he probably doesn't know much about celiac. You should ask him to do the testing. I'm not sure if those home test things are very reliable. There are several blood tests that can be done, plus the biopsy.

 

If you do choose to get tested you need to keep eating gluten until all testing is done. If an official diagnosis isn't that important to you, you could try going gluten-free and see if your symptoms improve. Either way, read the Newbie 101 thread here. It will teach you so much about being celiac and the gluten-free diet.

 

Let us know if you have any questions, and please let us know what you decide to do about testing.

Share this post


Link to post
Share on other sites

Welcome to the board. :)

I have celiac disease and a poorly functioning thyroid, and your symptoms sound very much like mine were. Headaches, constant constipation, stomach aches and bloating, confusion, and hair loss. Based on my own experiences, I think you should get tested for celiac disease.

The panel you listed looks really good. Many doctors will run the same ones for you but I understand wanting to get it done yourself. Don't stop eating gluten until the testing is done or it could affect the accuracy. Most doctors seem to recommend about two slices of bread per day for about two months ( if you were previously gluten-free or gluten light) before testing is done.

It sounds like you need to re-address your thyroid treatment too. Many patents with poor thyroid function find they need their TSH to be close to a 1, and their free T3 and free T4 to be in the 50-75% range of your lab's normal reference range in order to feel well. T4 meds alone (Synthoid) isn't right for everyone either. I tried synthroid for quite a while before giving up on it - I just never felt well and it couldn't get my FT3 above the bottom quarter of my lab's normal range. I needed to switch to natural desiccated thyroid before I felt truly well. I don't know if it was just the extra T3 or if it was the T2, T1, T0, or calcitonin but it worked for me. It got my FT3 to 75% of the normal range, although it did drop my TSH to 0.01 ( appears hyper but I feel fine, and I have been hyper before.

Good luck, let us know how it goes.

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,966
    • Total Posts
      943,698
  • Member Statistics

    • Total Members
      67,278
    • Most Online
      3,093

    Newest Member
    Grainge
    Joined
  • Popular Now

  • Topics

  • Posts

    • Me too. I still get transient lower back pain occasionally when my bladder or colon is full. It goes away immediately on voiding. Regardless of anything other diseases you may have, being wheat free gives you relief so even if not Celiac you are Non Celiac Wheat Sensitive. There are over 200 symptoms that are improved with GFD gluten free diet. Google it. It is an impressive list. In any case, while it is good to have a diagnosis, there is only one treatment, do not eat wheat and deal with the inevitable malnutrition damage.(think Biafra babies 1970.) Most will improve over time. Whatever doesn't improve should be investigated to be safe, but realize that recovery may take years. Wheat flour used should be limited to Paper Mache sculpture and library paste.  
    • Here is a partial list of what I no longer suffer from as a result of not eating wheat. Some like the sleep apnea and gerd and back pain and addiction to alcohol were almost immediate. The foot pain is improved to just numbness sometimes. My long term depression went away when I added vitamin D 10,000 iu a day for a year, but the improvement started almost immediately. Muscle tone and energy improved when I added iodine. one sheet sushi seaweed a day. My Fibromyalgia is controlled with 15 mg oral Prednisone a day. I remember as a kid waking up and having to pick the dried mucuos off the roof of my mouth. That is gone and for the first time in my life I am a nose breather. Drink lots of water to help with the mucous if it is thick. Some mornings mine is like rubber cement. I need to quit smoking now.  You can improve have faith, but healing takes time. Stay the course. A Romaine lettuce salad everyday helped the gut pain. Gerd shortness of breath sleep apnea back pain snoring prostrate hypertrophy contact lens protein buildup night vision improved cataracts reduced head hair growth foot pain sleeping no more than 2 hours at a stretch slow healing no energy. Pretty much bed ridden. 
    • Celiac Disease is damage to the nooks and crannies in our intestines leading to malnutrition, vitamin deficiencies with all the various symptoms that make it so hard to diagnose. Then you add years of the antacids, antibiotics, Tylenol, opioids, alcohol, etc., each with their own particular side effects and damage. Now you've got a toxic environment that kills off the beneficial bacteria increasing malnutrition. Theoretically you can eat anything except gluten. But wheat is so ubiquitous in our diet and economy there are unlimited opportunities for cross contamination. So read the label. Use common sense. If there isn't a label it doesn't have wheat so you can eat. Big Food likes to add wheat to everything because it is addictive and helps them ensure you can't eat just one. Why on earth else would Campbells Tomato Soup have wheat listed as an ingredient? Meantime your body is in distress from malnutrition so you need to be sure to replenish D3, and Iodine for starters and treat and support any other symptoms while you heal. Good nutrition without wheat is the only way to stop progression. And just like chewing paint chips made with lead is bad, so is food with wheat.   well said, doesn't need a label.
    • We use pure cherry juice with our snow cone machine. Makes for a nice dessert after dinner.
    • Hi Kurasz, How's it going?  Any change for the amazingly better?  Or slightly better?  
      If not, hang in there, and keep praying! :)
  • Upcoming Events