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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Constipation, Poor Tooth Enamel, Anemia
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gemlechner    0

So my 2 year old has been constipated since she was 8 months old...(when I started her on oatmeal) Since she was 8 months old we cut out and added all sorts of food items to see if any change could help relieve her constipation........ Looking back I think we never cut anything out long enough...we would only go for about 3 days to a week.  So we gave her juice , raisins, peach necture, enama's anything to help her...the whole time her Doctor telling me that this was normal....(I thought he was crazy and eventually swiched doctors) About 6 months ago we noticed a brown spot on her tooth and we took her to the dentist to discover that her teeth are horrible, cavities decay...she  also has low iron...due to the tooth problem we decided to cut out all sugar and gluten...or really anyhting that could turn to sugar and stick to her teeeth....well after about 3 weeks of that her constipation for the first time was gone....I Anybody else going through same thing? Also she could eat like past once a week and still be ok...So thankful her constipation is gone but still wondering if it's celiac?

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I've seen a couple of articles recently on tooth enamel defects, if that is the problem, you may be dealing with celiac.  I lost the enamel off of my teeth while I was young.  It was a big mystery to everyone, the dentist and my parents.  Now, they are telling dentists to have the patient get checked for celiac.

 

I think it is a great idea to stick to nourishing food and cutting out sugar!  If you want to test for celiac, you need to be eating gluten, so it doesn't false negative.  Perhaps you have already decided she should be gluten free.

 

Well, I am happy you are trying to figure this out.  I wish you and your daughter all the best.

 

D

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gemlechner    0

I've seen a couple of articles recently on tooth enamel defects, if that is the problem, you may be dealing with celiac.  I lost the enamel off of my teeth while I was young.  It was a big mystery to everyone, the dentist and my parents.  Now, they are telling dentists to have the patient get checked for celiac.

 

I think it is a great idea to stick to nourishing food and cutting out sugar!  If you want to test for celiac, you need to be eating gluten, so it doesn't false negative.  Perhaps you have already decided she should be gluten free.

 

Well, I am happy you are trying to figure this out.  I wish you and your daughter all the best.

 

D

Thank You for your kind words. Our plan is to keep a log of what she eats and when she poops. And we are cutting out gluten to see if that changes anything. Her teeth are a mystery to us too.... besides raisins and juice I never felt like she had anything bad enough for her to get a brand new tooth and 2 months later there was decay on it. Thanks again!

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Dria    0

I've seen a couple of articles recently on tooth enamel defects, if that is the problem, you may be dealing with celiac.  I lost the enamel off of my teeth while I was young.  It was a big mystery to everyone, the dentist and my parents.  Now, they are telling dentists to have the patient get checked for celiac.

 

I think it is a great idea to stick to nourishing food and cutting out sugar!  If you want to test for celiac, you need to be eating gluten, so it doesn't false negative.  Perhaps you have already decided she should be gluten free.

 

Well, I am happy you are trying to figure this out.  I wish you and your daughter all the best.

 

D

 

wow i didn't know this about the enamel (I'm waiting for my tests to come back but based on all my symptoms dr feels it's celiac) I lost the enamel on my teeth when i was a kid as well.  the bottom of my teeth are somewhat translucent and no one has never known why. 

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Please let us know how your situation plays out.  I have my ballet cast for celiac.  Yes, I remember the dentist marveling over the colors in my teeth before.  He said he hadn't ever seen so many colors in teeth.

D

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annavach    0

my toddler also lost her tooth enamel. It all started when she was about 12 months, beggining with a chip on her tooth, and then erosion. I do attribute it to oatmeal and anemia (probably aggravated by my mk4 supplementation of more than 5 grams per day for several days), but i think there must be something more. What has helped greatly with the decay part only are fermented cod liver oil and butter oil (i breastfeed). But i believe the oatmeal neutralizes these supplements.

 

Recently she lost more enamel and got a pinhole sized decay, i strongly think due to my treating her constipation with pinapple smoothies and non buffered vitamin c (and other sugary and acidic fruits), whole grains, in addition to her love of pumkin seeds. I noticed during that time ther her nails were not growing as fast as previously but did not link it to anything, until i noticed her decay.

 

I noticed a pinhead size of tooth decay, and used about 1-3 g dose mk4 by thorne, and her mouth condition improved greatly (the cavity is gone, and the damaged enamel got coated in white) but in turn i believe it caused anemia, at which point i use butter oil only now - divided doses totaling 1/2 tsp. i do not know what it will become of her teeth now -- have not yet gone to the dentist yet.

 

My toddler too suffers from constipation, enamel loss, and was anemic -- organic chicken liver solved the anemia, you can also find dessicated/freeze dried liver capsules, which is what i use now a days - she is not too fond of eating much liver now a days.

 

i would greatly appreciate it if you could detail your toddler's diet that helped her with the constipation. My toddler cannot digest cow milk, gets her terribly constipated. I recently removed the milk. But her constipation still continues albeit much improved.

 

my next plan is using either beet juice or low dose l-glutamine (must be very careful with this it could either be very helpful or cause permanent neurological damage) with buffered vitamin c on empty stomach. I personally never had bowel movements daily until my pregnancy when took vegetable juice which included beets with large vitamin c dosage, which unbenounced to me seems to have reset my bowels, and sometimes have movements even twice or more without being on the juce/c diet, and apparently there is a protocol using this delineated in the gutsense website.

 

I do not know if my toddler is celiac.

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cyclinglady    714

my toddler also lost her tooth enamel. It all started when she was about 12 months, beggining with a chip on her tooth, and then erosion. I do attribute it to oatmeal and anemia (probably aggravated by my mk4 supplementation of more than 5 grams per day for several days), but i think there must be something more. What has helped greatly with the decay part only are fermented cod liver oil and butter oil (i breastfeed). But i believe the oatmeal neutralizes these supplements.

 

Recently she lost more enamel and got a pinhole sized decay, i strongly think due to my treating her constipation with pinapple smoothies and non buffered vitamin c (and other sugary and acidic fruits), whole grains, in addition to her love of pumkin seeds. I noticed during that time ther her nails were not growing as fast as previously but did not link it to anything, until i noticed her decay.

 

I noticed a pinhead size of tooth decay, and used about 1-3 g dose mk4 by thorne, and her mouth condition improved greatly (the cavity is gone, and the damaged enamel got coated in white) but in turn i believe it caused anemia, at which point i use butter oil only now - divided doses totaling 1/2 tsp. i do not know what it will become of her teeth now -- have not yet gone to the dentist yet.

 

My toddler too suffers from constipation, enamel loss, and was anemic -- organic chicken liver solved the anemia, you can also find dessicated/freeze dried liver capsules, which is what i use now a days - she is not too fond of eating much liver now a days.

 

i would greatly appreciate it if you could detail your toddler's diet that helped her with the constipation. My toddler cannot digest cow milk, gets her terribly constipated. I recently removed the milk. But her constipation still continues albeit much improved.

 

my next plan is using either beet juice or low dose l-glutamine (must be very careful with this it could either be very helpful or cause permanent neurological damage) with buffered vitamin c on empty stomach. I personally never had bowel movements daily until my pregnancy when took vegetable juice which included beets with large vitamin c dosage, which unbenounced to me seems to have reset my bowels, and sometimes have movements even twice or more without being on the juce/c diet, and apparently there is a protocol using this delineated in the gutsense website.

 

I do not know if my toddler is celiac.

Can she get tested for celiac?

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hayley3    0

Go to facebook and join the group parents against mirilax. Their advice has helped us tremendously with constipation. We also stopped eating gluten

Thanks for mentioning that facebook group.  My daughter is now 18 but has been so constipated since she was 3 that she had fecal impactions a few times.  She also had pinworms really bad and that was a shocker discovering that kids could even have worms.  Now my daughter has bowel movements so large, she has to collect them in a bedpan because they won't flush down the toilet, but of course the medical profession does not care.  :(

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gemlechner    0

We have not got her tested yet....that is our next step. When she is gluten free she does well but every now and then something clogs her up again. It would be nice to have that diagnosis...or not.

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