• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Super-Sensitive Oops What In The World?
0

17 posts in this topic

This is a story about a super-sensitive event and is not the expected celiac reaction.

 

Well, I hit one of those bumps two weeks back!  I went with my family to a natural food coop and they had supper.  I shopped around.  I accidentally touched a package with gluten on the label.  I picked up, as a special treat, some Go Papaya, a dried product. It only contains dried only papaya according to the label.  I went out to the car and ate my dinner.  Notice, I neglected to wash my hand, so I simply brushed them off.  I tried not to touch my food as I ate.

 

On the drive home I experienced waves of nausea, and tummy cramps,  I thought I was coming down  with the flu and fast.  I experienced the old familiar fatigue for a couple of days.  My thighs swelled noticeably, my other body parts are probably swollen also on my right side.  Like, I can't bend my fingers around to meet my fingers on my right hand.  I have talked to my health practitioners about it and they feel it had to do with the eating event I describe above.  We are watching to see improvement and going from there.  I am saying that I am still swollen in the lymph glands 2 weeks later.  I am so glad the fatigue didn't hang on this long.  I know I have felt this before, but it seems ever so much more dramatic when one has somewhat recovers and has a sort of relapse.

 

Can anyone remember a similar experience?

Do you understand what I mean about having old familiar symptoms that scare you more now, because they are not all the time.

Anyone not care to buy any packaged foods, personally I think I may be able to go without the Go Papaya snack next time!

I am really getting into making it at home.  Dried apples are my current occupation.  I have an orchard with fresh apples just now!

 

I still feel pretty good, just a bit swollen and achy

 

D

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I always wash up before eating.  My hands swell too if I'm glutened.  I don't buy much packaged foods, and then only carefully vetted ones.  I hope that you improve quickly.

1

Share this post


Link to post
Share on other sites

My Familiar symptoms is the pain like stabbing pains that stop me in my tracks, then running to the bathroom. One time in The Andersons b4 being DX'd I ate a plain hotdog. Because I had been having such horrid attacks. So I thought I will have just 1 hot dog plain . Yea slam on the ol breaks there Wendy!! Lol Because I ended out in the bathroom within 10 mins!!. Then I think Ok I am done it is safe to shop. Then boom it hits me again!! And again and again and again. I get drained, shakey and the one time I went running I got to the restroom and it was closed for cleaning!! I was like OMG are you kidding me!! I had to go clear to the other side of the store!! I wasn't sure I could make it. But I did!! Ohhhh How I don't miss those days!! Then I would have noooo energy for days. Of course I didn't know that the no energy thing came with my big D problem and Wow!! It is sure a relief to know what was causing it all!! 

0

Share this post


Link to post
Share on other sites

I do not really understand your post ..

 

 I went with my family to a natural food coop and they had supper.  I shopped around.  I accidentally touched a package with gluten on the label.  I picked up, as a special treat, some Go Papaya, a dried product. It only contains dried only papaya according to the label.  I went out to the car and ate my dinner.  Notice, I neglected to wash my hand, so I simply brushed them off.  I tried not to touch my food as I ate.

 

Did you eat the Go papaya? you mean...this was your dinner?

 

so, what package did you touch?

 

What was your dinner and how did you eat the Go papaya ? with a fork?

 

It is not clear what exactly transpired and I have read your post several times.

 

I am not sure how you were "glutened". Can you elaborate because honestly, I do not get it.. 

0

Share this post


Link to post
Share on other sites

I do not really understand your post ..

 

 I went with my family to a natural food coop and they had supper.  I shopped around.  I accidentally touched a package with gluten on the label.  I picked up, as a special treat, some Go Papaya, a dried product. It only contains dried only papaya according to the label.  I went out to the car and ate my dinner.  Notice, I neglected to wash my hand, so I simply brushed them off.  I tried not to touch my food as I ate.

 

Did you eat the Go papaya? you mean...this was your dinner?

 

so, what package did you touch?

 

What was your dinner and how did you eat the Go papaya ? with a fork?

 

It is not clear what exactly transpired and I have read your post several times.

 

I am not sure how you were "glutened". Can you elaborate because honestly, I do not get it.. 

I think you were looking for some glaring mistake and you didn't find it.  It seems far fetched any of these things could cause such a problem.  That is exactly what I thought.  . 

 

.  I don't really know what I reacted too.  I can be more specific, though. You may recall that I have been advised to eat at home because of my super-sensitivity.  Normally I would wash my hands before eating. It gets hard when I am out sometimes.  I can't use commercial wipes, but I likely did have water and I carry homemade soap in my purse.  I could have washed and next time it won't be too inconvenient.

 

The package I touched was a licorice that contained gluten.  I touched the package with two fingers in order to read the label.  I do not eat licorice, but a school project caused me to desire some for the children.  It was right next to a gluten free licorice. 

 

I ate hard boiled eggs I had cooked at home.  I held them in their wrap so I wouldn't touch them.  Memory is hazy on what else I ate, probably a grain free muffin from home.  In all that, I ate nothing unusual that I would expect problems from.  Nothing in what I ate was unusual, but for the papaya.  I did eat some of the dried papaya and touched that with my fingers.  Like I mentioned, it only contained papaya.

 

 

My practitioner came up with another theory about my current swelling.  I began some progesterone cream about a month ago.  It contained some ingredients I thought I might not tolerate.  I hoped since I only applied to my skin, it wouldn't be a problem.  If it were a problem, I expected it would present with a skin rash.  I didn't get a skin rash, so I didn't think of the cream as a possible cause of swelling.  Just now, I think this theory about the swelling is correct and the reaction at the store is separate. 

 

.

 

D

0

Share this post


Link to post
Share on other sites
Ads by Google:


I think you were looking for some glaring mistake and you didn't find it.  It seems far fetched any of these things could cause such a problem.  That is exactly what I thought.  . 

 

.  I don't really know what I reacted too.  I can be more specific, though. You may recall that I have been advised to eat at home because of my super-sensitivity.  Normally I would wash my hands before eating. It gets hard when I am out sometimes.  I can't use commercial wipes, but I likely did have water and I carry homemade soap in my purse.  I could have washed and next time it won't be too inconvenient.

 

The package I touched was a licorice that contained gluten.  I touched the package with two fingers in order to read the label.  I do not eat licorice, but a school project caused me to desire some for the children.  It was right next to a gluten free licorice. 

 

I ate hard boiled eggs I had cooked at home.  I held them in their wrap so I wouldn't touch them.  Memory is hazy on what else I ate, probably a grain free muffin from home.  In all that, I ate nothing unusual that I would expect problems from.  Nothing in what I ate was unusual, but for the papaya.  I did eat some of the dried papaya and touched that with my fingers.  Like I mentioned, it only contained papaya.

 

 

My practitioner came up with another theory about my current swelling.  I began some progesterone cream about a month ago.  It contained some ingredients I thought I might not tolerate.  I hoped since I only applied to my skin, it wouldn't be a problem.  If it were a problem, I expected it would present with a skin rash.  I didn't get a skin rash, so I didn't think of the cream as a possible cause of swelling.  Just now, I think this theory about the swelling is correct and the reaction at the store is separate. 

 

.

 

D

 

 

I was not looking for a "glaring mistake". I was looking for clarity.

 

I was trying to  understand how on earth you could be glutened so badly

by touching a wrapper. It's impossible. 

 

And even though you have added more details, I still do not see how

it is possible. I am not saying something didn't happen to you; I am saying I have no idea how touching a wrapped food item could possibly

somehow gluten you. Can you see what I am saying?

 

The progesterone cream seems like a more likely culprit. I do hope you feel better now.

0

Share this post


Link to post
Share on other sites

I am feeling better!  The cream quite likely did cause swelling, since it began to subside the day after I quit the cream.  The cramps and fatigue... could be anything?  However, they didn't persist until the cream was removed, but went away before it.

 

I would like to add that 1/4 teaspoon of cream lotion rubbed into the body 1 time per day is only slightly more plausible than the alternative idea as the cause of my swelling.

0

Share this post


Link to post
Share on other sites

I am feeling better!  The cream quite likely did cause swelling, since it began to subside the day after I quit the cream.  The cramps and fatigue... could be anything?  However, they didn't persist until the cream was removed, but went away before it.

 

I would like to add that 1/4 teaspoon of cream lotion rubbed into the body 1 time per day is only slightly more plausible than the alternative idea as the cause of my swelling.

Its a lot more likely than touching a licorice wrapper. Your doctor who proscribes these things needs to explain what they are for and how they work to you. The progesterone is made so that it will be absorbed into your skin. It has side effects like you were experiencing:

" However, progesterone can cause many side effects including stomach upset, changes in appetite, weight gain, fluid retention and swelling (edema), fatigue, acne, drowsiness or insomnia, allergic skin rashes, hives, fever, headache, depression, breast discomfort or enlargement, PMS-like syndrome, altered menstrual cycles, irregular bleeding, and other side effects."

http://www.webmd.com/vitamins-supplements/ingredientmono-760-PROGESTERONE.aspx?activeIngredientId=760&activeIngredientName=PROGESTERONE

0

Share this post


Link to post
Share on other sites

Just out of curiosity...did you ever call the company to see if Go papaya is processed with wheat? You mentioned the label listed only papaya as an ingredient, but if I'm reading this right, it wasn't listed as gluten free specifically, yes?

 

The majority of dried fruit products that I've encountered are also processed with wheat, but they don't always have to carry the 'also processed with wheat' label, since that's voluntary, you know?  It might be worth contacting the company to see if they have that as a possible contamination source. Might solve your mystery.

 

I and another celiac both felt very ill after eating raw nuts one time, although the non-celiacs had no reaction, so they weren't bad, you know?  We thought they were safe and then realized later that our safe nuts had accidentally had some 'also processed in a facility with wheat' nuts mixed in with them, so we believe that was what made us ill. 

0

Share this post


Link to post
Share on other sites

Just out of curiosity...did you ever call the company to see if Go papaya is processed with wheat? You mentioned the label listed only papaya as an ingredient, but if I'm reading this right, it wasn't listed as gluten free specifically, yes?

 

The majority of dried fruit products that I've encountered are also processed with wheat, but they don't always have to carry the 'also processed with wheat' label, since that's voluntary, you know?  It might be worth contacting the company to see if they have that as a possible contamination source. Might solve your mystery.

 

I and another celiac both felt very ill after eating raw nuts one time, although the non-celiacs had no reaction, so they weren't bad, you know?  We thought they were safe and then realized later that our safe nuts had accidentally had some 'also processed in a facility with wheat' nuts mixed in with them, so we believe that was what made us ill. 

Oh, Wow!  Well, I could contact the company.  I noticed the empty package in my purse.  BUT since I have lost all desire for it in the future, t , perhaps I will not be following through on it.  I have been busy dehydrating apples from our own orchards.  We also dehydrated our own raspberries, sour cherries, and blueberries!  No, worry about the processing plant having my allergens here.

 

I have been washing, scrubbing nuts before eating.  That gets a little hard though, when one is out on the town.

 

The original cream had some of my allergens in it.  NOT GLUTEN.  I switched to a progesterone cream that has fewer ingredients and none of my allergens and have felt unusually well again.

0

Share this post


Link to post
Share on other sites

 

 

The original cream had some of my allergens in it.  NOT GLUTEN.  I switched to a progesterone cream that has fewer ingredients and none of my allergens and have felt unusually well again.

 

This seems to be the answer to your sudden onset of symptoms, then. Not papaya, not touching wrappers, not gluten.

So often, people assume right away...it's hidden gluten! when it may not be the case at all.

 Glad we could help you sort it out. Glad you feel better!

0

Share this post


Link to post
Share on other sites

You stated this " I could contact the company.  I noticed the empty package in my purse." So you did purchase the Papaya and the empty package is in your purse?

  • rep_up.png
  •  
  • 0
0

Share this post


Link to post
Share on other sites

 

You stated this " I could contact the company.  I noticed the empty package in my purse." So you did purchase the Papaya and the empty package is in your purse?

 

Right.  I ate some of the papaya, but the only ingredient was papaya in that.

 

Yeah, IH, talking it out always seems to help some.  I hope you are well.

D

0

Share this post


Link to post
Share on other sites

Right.  I ate some of the papaya, but the only ingredient was papaya in that.

 

Yeah, IH, talking it out always seems to help some.  I hope you are well.

D

Aghhh Thanks for clearing it up lol I still have brain fog lol ... I am better thanks!! Hope your feeling better as well :) 

0

Share this post


Link to post
Share on other sites

 

 

Yeah, IH, talking it out always seems to help some.  I hope you are well.

D

 

I am glad, D....and I  am well, thanks!

 

Aghhh Thanks for clearing it up lol I still have brain fog lol ... I am better thanks!! Hope your feeling better as well :)

 

um, lol I think she meant me when she said  "IH"  :)  and I think she was telling you it was only papaya (which I already knew)

 

Ok, this may have gotten more complicated than it had to be.   so, we're all good, now? good!  ;)

0

Share this post


Link to post
Share on other sites

I am glad, D....and I  am well, thanks!

 

 

um, lol I think she meant me when she said  "IH"  :)  and I think she was telling you it was only papaya (which I already knew)

 

Ok, this may have gotten more complicated than it had to be.   so, we're all good, now? good!  ;)

Aweee sorry :) 

0

Share this post


Link to post
Share on other sites

Absolutely We are good!! I am so glad she figured it out :) I really must of read wrong lol :) 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,443
    • Total Posts
      930,595
  • Member Statistics

    • Total Members
      63,865
    • Most Online
      3,093

    Newest Member
    vprovenzatn
    Joined
  • Popular Now

  • Topics

  • Posts

    • MC can be quite harsh as a laxative if your using it as one very effective....I mean 2 boxes of exlax did me nada back then. For a daily supplement try just taking Nature Vitality Calm twice daily start off with 1/4tsp work your way up to 1tsp doses if you can. If this is too harsh on you use a Magnesium Glycinate like Doctors best, less effective as a laxative but will still help provide you with a magnesium you body can utilize.
    • Thanks will try MC I tried LBS although it worked but it was brutal on my stomach 😬😬
    • OH odd info here but the best way I found found to use it is a slow low temp extraction into coconut oil, and using this oil in cooking. Use a mortar and pestal to grind your greens into a fine powder, and heat slowly in a pan with virgin coconut oil just very low temp for a while you will see the oils from the greens mix with the coconut oil. You can then use this oil blend in baking edibles, or in whatever you wish. I make it very weak myself with just small bag in a entire 16oz container of coconut oil. I do it for the medical benefits nothing else. I like using it in paleo breads, or drizzle a bit over salads,   CBD oil also has some benefits I have noticed in smaller amounts and CBD is legal in most states the gold one seems to be the best.
    • Yeah pretty standard, I also have neurological symptoms. Magnesium helps with the constipation and if you have any issues with nerve pain, numbness, prickly feelings, etc. ......I used to go 8-12 days of constipation.....was hell nothing made it move unless I drank 2 whole bottles of magnesium citrate maximum strength laxative.
    • don't forget how sneaky celiac is:  i never noticed how incredibly awful i felt (and it was over a long period of being undiagnosed/never heard of celiac until it almost killed me) because it creeeeeeped up.  a little migraine here, a little neck pain there, allll the gi symptoms, a little rashy rash here, a little pneumonia there, a little less energy here, a little weight loss there.  it's not, oh, i ate gluten and now i feel like a truck hit me and you can pinpoint exactly what you ate.  nope.  it's constant inflammation that messes everything up and causes symptoms that most people don't connect as being caused by the same thing.  i never knew how terrible i felt until it started going away.   and even then, it was like peeling an onion:  things went away a little at a time (haha i had a 'background headache' that i didn't even know i had until one day i woke up and it was gone!!)  good luck
  • Upcoming Events