• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Rayrab

Recurrent Miscarriage And Celiac?

Rate this topic

Recommended Posts

After multiple miscarriages, despite the birth of a healthy son in2010, I started seeing a naturopath. She ordered a ton of blood work, including the panel for celiacs. I met with her yesterday and she believes I have it and wants me to do the genetic testing, which I have no problem with. However, I'm totally baffled that she would leap to celiacs given my results and my research here and elsewhere on the internet. 

 

I would really appreciate some feedback on these results: 

 

Deamidated Gliadin Abs, IGA <1 (negative 0-19)

Deamidated Glaiadin Abs, IgG 5 (negative0-19)

t-Transglutaminase  (tTG) IgA <2 (negative 0-3)

t-Transglutaminase (tTG) IgG <2 (negative 0 - 5)

Endomysial Antiody IgA  negative

Immunoglobulin A, Qn, Serum <15  Low (Negative 91- 414) 

 

From what I've read in my crash course in celiacs in the past 24 hours, the last one indicates that all the IGA tests are invalid. It seems most people recommend the tTG tests to rule out Celiacs, yes? So being that those are also negative, why would she assume celiacs? My understanding is that low IgA serum can be indicative of many immune deficiencies so why the leap to Celiac's? 

 

Also, I have been gluten-free for approximately 6 weeks, 5 when these labs were taken, merely because there is an association between gluten and recurrent miscarriage. From what I understand gluten would have to be out of my system for much longer than that to skew the tests in any way. Correct? 

 

There seems to be a lot of experience (unfortunately) here on these forums so I'm optimistic someone can calm my frantic mind before I can connect with my Naturopath again ;)  

 

Thanks in advance!! 

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Looks like she did every possible blood test and they are all negative. Even tho your IGA is low, they did the IGG version, too. Cleiac can cause miscarriages. Perhaps you should consult an MD OB/GYN?

Share this post


Link to post
Share on other sites

You might want to consider an endoscopic biopsy if you think celiac disease is an answer (based on symptoms or familial history). Some people will have negative blood work and a positive biopsy - it's not common but it's not rare either.

 

Some people's antibody levels can fall to normal within weeks, for some it takes much longer. The problem is that there is no way of knowing which group you fall into except to resume eating gluten for about 6 weeks and then retest (the IgG tests that is).

 

Do you have other symptoms of celiac disease besides MC's (so sorry to hear about that) and low IgA that made your NP suspect celiac disease?  Are you feeling better gluten-free?

Share this post


Link to post
Share on other sites

Blood results as well as endoscope testing will Not be reliable since you are already gluten free.  More tham likely you may have false negatives do to being on a gluten free diet for the five weeks prior to testing.

 

The blood tests look for the antibodies your body produces in response to the gluten you eat so when you remove the gluten the body has nothing to form antibodies against so there none for the blood tests to read.  Yes you could still have villi damage that can only be seen by doing a endoscope and taking samples of the intestines. But depending on how badly the damage internally was there also may come out negative do to the damage healing which starts within 24 hours of total removal of gluten from the diet.

 

 

So your best option is the genetic test unless you're willing to go back to eating gluten for 6-12 weeks and then having the blood work and endoscope done. But still if you do have a gene linked to Celiac you may not actually have active Celiac so also do go to a reproductive specialist if you aren't already.

  • Upvote 1

Share this post


Link to post
Share on other sites

Your celiac test results could well be invalid because you were off gluten. Hard to say.

 

If I were my 30-something year old self again (after having had multiple miscarriages and never carrying to term), I'd go to a reproductive endocrinologist. I know a whole lot more now than I did back then and one is:  Fertility doctors may not get to the root of the problem.

and the other is: Naturopaths have their value, but for this particular health issue, you need a specialist,  IMHO.

 

Could it be a gluten-related issue--and not necessarily celiac? absolutely. Plenty of medical lit that discusses this relationship.

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,925
    • Total Posts
      943,533
  • Member Statistics

    • Total Members
      67,140
    • Most Online
      3,093

    Newest Member
    Donna 63
    Joined
  • Popular Now

  • Topics

  • Posts

    • I'm from the UK so I can't help you on the recommendation, but  instead of canned chili have you tried making your own? It's super easy to do, far nicer and cheaper than any  pre-made  variety and you can make a big batch and freeze small portions so its always available if you need a quick filling meal? There's no reason a chili should include gluten btw, but if they're telling you that there's a high probability of cc its best not to eat there in any case!   Edit: checked their site:  https://www.skylinechili.com/special-dietary-options.php#glutenfree They're basically telling you there could be cc  
    • I live in Cincinnati. One thing we are known for is chili and a horrible football team. I was wondering if anyone had one of those gluten detectors and how they work because I would love to test them. They claim to be gluten-free and even state that in their restaurants there is a high probability for CC. I even wrote the company several times but no reply. I just had some earlier and am up with a reaction to something. I'm leaning towards the chili. Is there any good canned chili out there that will not make me sick?
    • I live in Cincinnati. One thing we are known for is chili and a horrible football team. I was wondering if anyone had one of those gluten detectors and how they work because I would love to test them. They claim to be gluten-free and even state that in their restaurants there is a high probability for CC. I even wrote the company several times but no reply. I just had some earlier and am up with a reaction to something. I'm leaning towards the chili. Is there any good canned chili out there that will not make me sick?
    • I really miss Pizza. I've tried many different brands but never that good. I stick with the Freshetta gluten-free pizza. It has the CSA symbol on it meaning that it has gone through some of the strictest tests there are and can test down to 5ppm I think. It's about as close to the real deal that I've come across.
    • Found it:   "The Canadian Celiac Association (CCA) recommends that people with celiac disease or gluten sensitivity DO NOT consume the gluten-free labeled Cheerios products at this time because of concerns about the potential levels of gluten in boxes of these cereals...Based on the information provided to date, our scientific advisors are not convinced that the testing procedures described by General Mills are sufficient to detect these contamination “hot spots” in the oats and oat flour or in the boxes of cereal that may contain those contaminated oats." 
  • Upcoming Events