• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Rosiesallergies

Boy Scouts / Girl Scouts Camping

Rate this topic

Recommended Posts

Does anyone have Celiac kids in Boy Scouts or Girl Scouts? How do you handle camping and big events? What do you bring with you to make food prep easier and safe? Do you try to have the whole troop have safe gluten-free food? How much detail do you give when you explain you child's food issues with the kids and parents?

My child is a Celiac and is careful about being gluten-free. However, she doesn't want to explain the details of Celiac disease with everyone especially kids/parents who will just be rude or insensitive.

Thanks for your help.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


My daughter is a girl scout.  For S'mores, I send her own graham crackers.  For burgers & dogs, I send a bun and usually there are chips/fruits/veggies she can eat but I usually have an extra stash just in case.  We had a planned overnight this past summer at her summer day camp and although it got cancelled due to a widespread stomach virus, I contacted the staff ahead of time to find out what was on the dinner menu.  I had planned to send her with a similar meal.  We were lucky that this camp had a kitchen in the main shelter so it could be refrigerated and microwaved.  I so want her to do a full week sleep-away camp one of these years because I have such fond memories of it as a kid but that SCARES me food wise. 

 

BTW... our troop doesn't sell cookies until the winter but my friend's daughter is selling now and they have a gluten-free chocolate chip cookie as a pilot program.  YAY!  I'm hoping we have the same. 

Share this post


Link to post
Share on other sites

Ahhh Girl scouts :  the parent volunteer run program 

 

I have had mixed responses with this. Our passed troop leader did little to nothing to accommodate a  gluten-free or mostly gluten-free environment for the troop mtgs or day events. New leaders this year so we will see.

 

On the camping events and overnighters we have had really exceptional  help in insuring a safe food environment. We got lucky the day camp had a nurse with a Ceiiac child  and the overnighter food events was run by a woman with gluten intolerance who actually brought her own pots pans etc.. in for herself and the kids.

 

It really is how the leaders receive and react. You have no control over it. On one daycamp BBQ event  I sent  everything except drink and bagged chips. It included Hot dogs wrapped in foil , bun ,sides , a smores baggie with her own toasting stick  etc...      on another overnighter event i sent a smore's pack and a backup snack bag.       Situation's vary depending on the volunteers.

 

Call and speak to whoever is in charge in advance.

Share this post


Link to post
Share on other sites

Great suggestions.  I agree, it's all about the volunteers.  We have a scout who is allergic to peanuts/nuts/milk and some vegetarians.  We have accommodated them all since they were Brownies (Cadettes now).  My daughter does not have celiac disease but  I do.  I attended campouts/jamborees and I would worry about the dish cleaning procedure too.  Your daughter should always be first in line to use the dunk bag system.  She should always be served first if she is sharing any safe food and you should go over food prep procedures with your leader.  

 

If I were you, I'd attend the camping trips for a while.  Talk to your leader about taking a Volunteer Essentials class and become a scout.  You may or may not need to take a camping class (at least one of the adults in the class should take this).  

 

It's fun and our troop loves to camp.  I used to go all the time, but have backed away (the girls can do so much more at the Cadette level).  I have not camped with the troop since my dx, but prior to that I had to bring my own food due to my food allergies.   We do bring snacks to meetings always it's peanut/nut/meat and dairy free.  And when it's our turn, we make it gluten-free too!   

 

Like the others have said, it's up to the volunteers.  Hopefully, they really believe in the Girl Scout Promise and Law!  If push comes to shove, start your own troop or find another.  It's a great way to meet different girls from different schools.  

Share this post


Link to post
Share on other sites

We have a fantastic leader who does everything she can to make things safe. It helped so much when another boy in our scout den was diagnosed. They have each other and just knowing another kid who has it is so great for both of them. His mother and I make gluten-free snacks and work to keep them safe. We have a sleepover at a museum next month and I just called and talked to them and they are allowing us to bring our own dinner and giving us access to their kitchen to put it in the fridge and heat it in the microwave. My son went to scout can't (day camp) this summer and whenever they had food relatd things, they called me and we came up with substitutes. They also bought gluten-free snacks for him if they bought snacks for the campers.

In all honesty, we have been so so so lucky in our lives with the people we have come into contact with.

:)

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,929
    • Total Posts
      943,567
  • Member Statistics

    • Total Members
      67,201
    • Most Online
      3,093

    Newest Member
    GemD
    Joined
  • Popular Now

  • Topics

  • Posts

    • There was a study where they checked 2 weeks on a gluten-free diet , and antibodies were still going up .  The study wasn't about that, so I think that is why they didn't go any further.   So... looks like 2 months gluten free?  If we think that antibodies are still being made at least two weeks gluten free.... account for the fact that most people need a few weeks to actually figure out and eat gluten-free...I would say it was a bit soon to re- test antibodies.     Edit it to add- if you were tested sept 12 and ate gluten for 6 more weeks before going gluten-free - who knows how high it got.  Shame on your doctor for doing the re- test so soon and discouraging you!  
    • Your numbers should not be going up at all. You are getting gluten somewhere. Do you eat out? Have you read the Newbie 101 at the top of the coping section? That will help you to ferret out how you may be getting glutened. Do you have a gluten free household or is it a shared household? Do you read ingredient labels?
    • Thank you so much!!!! I have a severe allergy, I can not even walk through a grocery store without getting a migraine. I have always used dreft but now I know for a fact that it is safe.
    • I’m 62 and have just now been tested for Celiac.  My Titer was negative, I have zero IGa and too much IGg (16) which is an indicator of intolerance at the very least and may indicate the need for another endoscopy. He also tested for EPI (exocrine pancreatic insufficiency) which was negative.  I just had a colonoscopy/endoscopy last year as a part of being diagnosed w/ Gastroparesis. I also have (among other things which I’m not sure are as relevant) - T2 Diabetes, Hashimotos Thyroiditis (late 30’s) Chronic Kidney Stones (since age 40), Osteoporosis (way before Menopause and not well controlled), and Gallbladder disease.(was removed) I’m discovering that all those I listed may be related in some way, and related to Celiac.  I haven’t seen the gastro doc for followup since the testing (obtained results from lab) so I’m not sure what he’s going to recommend.  Here’s where it gets scary... my daughter has many of the same things. She was just diagnosed with EDS (Ehlers-Danlos Syndrome) at 32.  She was diagnosed w/Glucose intolerance at 15, had her Gallbladder removed at 20, PCOS at 22, and Gluten intolerance at 30 (no testing, just her gastro’s recommendation). She’s been diagnosed w/Gastroparesis, POTS,  MAST Cell Activation Disorder, Peripheral Neuropathy, (lost use of her bladder and has a neuro stimulator) - all in the last year.  Too much coincidence for me.  This has to be all related. I keep reading more and more studies linking all these things (like EDS and Celiac) together. My daughters  geneticist is blown away by the multiple overlapping and co-morbid conditions we have and tells us it’s not uncommon. She also says research is expanding.  Sadly, the specialist docs seem baffled and can’t even begin to address our issues, and only help to manage the symptoms - sometimes. And every “Disease/Disorder” has a “diet” or protocol, and they are all at odds with each other - very frustrating.  I guess the moral of this story is to let others know that there’s a lot more to all this than meets the eye. Don’t let anyone tell you you’re fine if you have what seem to be strange unrelated symptoms. You’re not crazy. Keep fighting for understanding and knowledge. Be an advocate for yourself, you’re loved ones,  for us all.      
    • Nice to know that Disney makes an effort to take care of people with allergies or special diets (like gluten free!): https://publicaffairs.disneyland.com/walt-disney-parks-resorts-receives-honors-allergy-friendly-fare/
  • Upcoming Events