• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

A Pharmacy Technicians Guide To Getting The Gluten-Free Brand Medicine You Need.
0

4 posts in this topic

The following was written for you by a pharmacy technician who recently escaped from their retail chain job but remembers it all too well:

 

I would like to help you out with a best-practices guide on getting what you need from an understaffed, busy pharmacy.  I am also on a ton of medications and have a lot of experience doing all of this for myself, but you guys don't have friends behind the counter that will drop what they are doing to help you. See the last section if you want that.  

 

So, you take a prescription to the pharmacy for a medication that is available in generic form.  If it is brand name only, hopefully you asked your doctor if there is a generic alternative before you left with a script, but sometimes the name brand is the best for you or only thing available, and you have less options if it is not free of your allergen.

 

Your pharmacy will fill it with whatever manufacturer they keep on hand, which sometimes changes because they are always looking at prices, supply/demand, and other complicated things.  If your research/experience deems this brand to be not-okay, there are usually a lot of different generic brands for each med.  Some things will affect the availability of a drug and there may only be 1 or 2 companies who make it, but 2 options are better than one when one is no good :)

 

The easiest way for you to get results are:

 

1. Call the pharmacy at a less-busy time like mid afternoon, or go in in person and talk to them (Not in the drive through) when they aren't busy.  If your medicine is a controlled substance you may want to bring something saying you have an allergy, they may not be keen on talking to you about what brands of hydrocodone they carry for safety reasons.

 

2. Talk to the pharmacist, let them know you found out about an allergen in this generic brand, and ask for them to get the person who does the ordering to get you a list of equivalent medication that they can order from their supplier.  They may need to call you back but this should be very easily accessible for them as electronic ordering is all there is nowadays. (that way you don't bother with something not available in your area, etc.)

 

3. Get that list and look the meds up, hopefully one is allergen free verifiable

 

4. Ask the pharmacy to fill the RX with that "NDC" only.  An NDC is a unique number for that manufacturer-made drug. Tell them to put a note in your electronic profile and a note on the shelf where they keep the product to prevent this from being overlooked.

 

5. The pharmacy may screw up and fill with their preferred brand sometimes on refills and such still, because the computers like to auto-substitute with their preferred brand, so physically check the med before you leave and have them fix it if needed.

 

6. I just have to add... Always be nice to your pharmacy staff, and don't treat the pharmacy and its drive-thru like a fast food place.  These people do more than just count pills, they have a legal responsibility to not kill you.  If you have special needs, you are more likely to get good service at an independent pharmacy, but sometimes you are like me and your insurance makes you go to a specific chain.  *grumpyface*  Also, if you are at your pharmacy a lot, bringing the staff treats and being super nice to them will probably get you preferential treatment when you walk up to the counter.  Okay, I will admit my friends at -retail chain- told me to add that part.  But it is all true! :)

 

 
0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


That's a lot of good advice.  Thanks!

0

Share this post


Link to post
Share on other sites

Great post, thank you!

0

Share this post


Link to post
Share on other sites

My experience I have had with this is just ask for the ingredients list, package insert. They will always give it to me, I read it and give it back.. Each drug should have one taped/stuck to the outside of the bottle.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,328
    • Total Posts
      935,514
  • Member Statistics

    • Total Members
      64,989
    • Most Online
      3,093

    Newest Member
    Jaf
    Joined
  • Popular Now

  • Topics

  • Posts

    • First degree relatives of celiacs should be tested every 2 years in the absence of symptoms & immediately if symptoms present since celiac can present at any age. Celiac affects every cell in the body & inflammation is common. My inflammation began in my lower back and the bend of my leg (on the back side of the knees). It progressed to literally everywhere. You name it, back, neck, arms, legs, ankles, hips, wrists, fingers. Excruciating pain as well as swelling. So excruciating that opiates didn't even phase it. I just had to bear it. I would take ice packs & use them until the area was pure D numb. You're never supposed to leave ice on that long but if I hadn't then I would have shot myself. I can not begin to describe the intensity of the pain. The last year before diagnosis, I was sure that within a year, I would be confined to a wheelchair for the remainder of my life. Now, 5.5 years gluten free, I can't tell you the last time I took a Tylenol or any other anti inflammatory. In fact, I'm not on any meds at all. Nothing.
    • Thanks for all that info and the links.  It would be such a relief if I could know what is causing the fever, and that maybe it will go away as I stay gluten-free.  Both my gastro dr and rheum dr said to still stay gluten-free even though I apparently don't have celiac.  They are saying to give it 2-3 months to see how I feel then.  My fever has been down to around 99.9 the past two days, instead of over 100 and 101 like it's been since February.  That is the most exciting thing so far.  My stomach is not as severe or bad, but certainly not great, and I don't feel out of the woods at all concerning that yet.  I still hope to feel a lot better as more time goes by without gluten....I hope.  I seem to get bloat and also discomfort in my ribs more in the evening, even if I ate the same thing at lunch.   I started a food journal.  I guess I need to keep being patient. My rheum dr wants to see the journal in October when I see her again. She said she loves detective work.  It sounds like we all need to become food and symptom detectives when dealing with this.  Now if we could only get an NCIS episode where they investigate how gluten can "murder" our stomachs, and figure out a cure for gluten issues, besides going gluten-free.  It actually hasn't been too bad so far, other than foods that you are iffy or unsure about with all sorts of weird ingredients listed in it.  The internet and this site here helps a lot with some of that.  Luckily there is a whole lot we can still eat, but corn and corn products are an iffy for me too at the moment, and my dr suggested trying to avoid soy, and that xanthan gum, and a few things like that. Only thing that has shown in my bloodwork so far is chronic inflammation that may mean an underlying autoimmune disease.  Ya, I've been hearing "it seems like something autoimmune" for the past few decades.  It'd kind of be helpful to figure out exactly what.  I'm so tired of being tired.  I am sure you all can relate to that.  You just want to wake up and feel good.  
    • HEB organics does not bother me at all. Their plain one has to be boiled before I can drink it so I tend to use it in moderation in cooking...it also has xantham gum which explained that issue. MALK gives me no issues (Local Only Brand I think). Used to drink something called Mooala but could not find it unsweetened after my UC dia.  Almond Breeze is next up but I can only drink about a cup of it before I start getting burping issues, silk bothers me the least but still causes some issues. Silk cashew is alright and I use it all the time with NO issues at all...but I use it in cooking and do not think I have ever used it without boiling it first either in a icecream base or mixing it in a soup, cheese sauce, or adding a bit to eggs for fluff.   Hmm there is one other brand of macadamia milk that dose not bother me and Good Karma Flax milk I have NO issues with....been a good 6 months since I had any though. http://malkorganics.com/products/   https://www.heb.com/product-detail/h-e-b-organics-unsweet-vanilla-almond-milk/1741526 ^ Two that give me the least issues  
    • Oh goodness me so do you guys bother to get histamine level diagnosed or do you just treat it as you did the food diary ? taking note of high histamine time of year/ season and diet into your seasonal food diet? I'm pretty good at rotating foods I've done that longer than I've known about my issues from a nutritional standpoint I rotated which is why until the gluten challenge derailed my immune system entirely. it was challenging enough to do that gluten challenge I am not really up for more testing. I have symptoms of IC, POTS, fibromyalgia, and now you reveal that yes histamine threshold are part of the celiac autoimmune party bag too. how do all branches of medicine not find this group the most intriguing group of people ever? Really?Or Do you just all avoid them and go on your merry way? Ennis - what almond milk can you drink ? the almond milk 3 we tried/ bought prior to making my own (had unlabeled ingredient  fortified and thickeners corn derived added. ) I was shocked to call and discover it had it in (not labeled as it was corn not top 8) it finally explained why the right elbow joint hurt but it was a small enough derived amount of derived  corn not to trigger the Full blast corn intolerance symptoms. For this reason and now the orange juice incident I'm really leery of unidentified corn or corn derivatives or highly processed any additive for they are prevalent in processed land.  
    • Yeah I have 2 stationary pedal bikes. I use one on the desk sometimes while watching a show and work out my arms. I keep one under the desk and pedal on it for hours a day, really helps with my restless leg issues and stress (just gotta keep moving or I start feeling like a panic attack is coming on trapped by life like a rat in a cage. If you need to know were to find the ground cocoa nibs look up crio bru, they sell it as a coffee replacement for $23 for 1.5lbs they have different origin and different roast levels so you can get different flavored cocoa nibs I get several and mix them up.
  • Upcoming Events