• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Endoscopy And Gluten Full Challenge
0

36 posts in this topic

I had my endoscopy procedure today. Obviously awaiting the histology on the 6 biopsies that were taken. However - he took pictures of the esophagus, stomach (cardia and antrum) which were normal. The second portion of the duodenum shows atrophic mucosa. I am back on the gluten free diet. I also had my blood drawn today for the genetic test. I'll let you all know how the post-procedure follow up appointment goes in 3 weeks. Seems pretty consistent with celiacs.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


My boyfriend tried to put a positive spin on it and said we can now have a proper goodbye to all my favorite meals and restaurants in this 3 week time. I guess that is one way to look at it. ;)

 

YES! I may or may not have made several rather expensive trips to the French bakery, where I, maybe, perhaps, possibly, may have eaten more chocolate croissants and pastries than anyone should be permitted to eat in one go. :) It hurt, it made me feel terrible, but man, it was a delicious farewell. 

0

Share this post


Link to post
Share on other sites

I was glad to say good bye and be done with the challenge 2 weeks in. I already feel 10x better since being gluten free for 3 days. Amazing.

0

Share this post


Link to post
Share on other sites

I have been gluten free for almost a year and a half after having been diagnosed with intolerance based on a stool test as well as genetic testing which says I have the celiac gene and a gluten intolerance gene. Since stopping gluten any time I have ingested it accidentally or through cross contamination i had a violent reaction.

I too just returned from the GI doctor who suggested I eat gluten for the next three weeks so we can determine if I have celiac. But I wonder if it is worth it just to feel legit and get a diagnosis. I have come so far and I love gluten more than anything in this world. It is my version of crack cocaine and I will crave it and dream about donuts and what not. Life without gluten has been so much better and I wonder if I start up again if I will be able to function.

What is the benefit of saying I have celiac vs. gluten intolerance and is 3 weeks enough time to give me an actual celiac diagnosis and show damage? Thanks.

Melissa

0

Share this post


Link to post
Share on other sites

I just threw in the towel 2 days early on the gluten challenge because of pain and swelling in my legs - called the doctor to ask if I should stop and he said yes, and to get the blood test done today. 

 

Melissa my experience of eating gluten after a seven year break was that the cravings I used to experience came back full force and I found it very hard not to overdo it, even knowing how physically and mentally uncomfortable it was making me. Physically I think I will recover fast but psychologically I feel I was playing with fire. 

 

If I am considered for a gut biopsy after my blood results I will not be eating gluten again in advance of it - I can't go through that again. My body is very upset with me. 

0

Share this post


Link to post
Share on other sites
Ads by Google:


I have been gluten free for almost a year and a half after having been diagnosed with intolerance based on a stool test as well as genetic testing which says I have the celiac gene and a gluten intolerance gene. Since stopping gluten any time I have ingested it accidentally or through cross contamination i had a violent reaction.

I too just returned from the GI doctor who suggested I eat gluten for the next three weeks so we can determine if I have celiac. But I wonder if it is worth it just to feel legit and get a diagnosis. I have come so far and I love gluten more than anything in this world. It is my version of crack cocaine and I will crave it and dream about donuts and what not. Life without gluten has been so much better and I wonder if I start up again if I will be able to function.

What is the benefit of saying I have celiac vs. gluten intolerance and is 3 weeks enough time to give me an actual celiac diagnosis and show damage? Thanks.

Melissa

 

Melissa - it is a personal choice that everyone has to make for themselves. If you feel comfortable being gluten free without a diagnosis then by all means continue to eat gluten free. I personally wanted to see what shape my intestines were in because I was recently diagnosed in late August via blood test. I think it is a good idea to get a baseline for me. And since I have only been gluten free for a month or so it wasn't a huge hardship to do a trial.

 

http://www.cureceliacdisease.org/archives/faq/what-is-a-gluten-challenge

 

My doctor recommended 3 weeks at 2 pieces of bread a day. I don't have my biopsy results yet but the gross changes he saw (mucosal atrophy) were enough to indicate there is a problem. Hope that helps. Good luck with whatever you choose.

0

Share this post


Link to post
Share on other sites

My doctor (Celiac Center at BIDMC here in Boston) said 3-6 MONTHS for a gluten challenge.  It is different for everyone, some will show a measurable reaction before that, some won't.  If you get a negative result don't assume it is because you DON'T have celiac disease.

 

I gave up after 6 weeks and just decided to be gluten free.  

 

Cara

0

Share this post


Link to post
Share on other sites

The think blood test and the biopsy are different for the length of time for gluten challenge. I had already had my blood drawn prior going gluten free and then had to re-challenge for the biopsy because my PCP told me to go gluten free after serology results. I think the standard for blood test is 3 months of gluten and for biopsy its 2 weeks.

 

http://www.cureceliacdisease.org/archives/faq/what-is-a-gluten-challenge

0

Share this post


Link to post
Share on other sites

Biopsy results are in. My doctor called me today and said that I was definitely celiac. I didn't have completely 'flat" villi but they were damaged and also there was an increase in WBC. He said with the serology and the biopsy along with my resolution of symptoms on a gluten-free diet I am celiac. So nothing surprising but I am glad that I had it done. It was worth the knowledge of recognizing my glutening symptoms clearly and for the farewell to the old diet and lifestyle. I am over a week out gluten free and I feel so much better. Still getting headaches, still get tired easily and my brain is still kinda befuddled but every day is a better day. Psyllium husk has helped my diarrhea so much I cannot advocate it more.

0

Share this post


Link to post
Share on other sites

Good for you for finding out what it is!! I know some just change thier diet and good for them!! I like to get a DX. Thank goodness you got yours!! Bless you!

0

Share this post


Link to post
Share on other sites

Good for you for finding out what it is!! I know some just change thier diet and good for them!! I like to get a DX. Thank goodness you got yours!! Bless you!

Thank you!! Yes I feel the same way. If its not someone else's plan that's fine with me but I wanted a diagnosis for my own peace of mind. :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,462
    • Total Posts
      930,688
  • Member Statistics

    • Total Members
      63,887
    • Most Online
      3,093

    Newest Member
    GenieBelle
    Joined
  • Popular Now

  • Topics

  • Posts

    • Ok, so I have another question for all of you professional Celiacs. I read an article recently that talked about a study that was done on people with Celiac's disease, which said that some of them (a small number) had high levels of arsenic in their systems because of all of the rice products that they eat. Now, I don't eat a ton of rice, but we do have gluten-free pasta a couple times a week, my son and I like rice Chex, and I know there's brown rice flour in the pizza crusts I use and in the gluten-free bread that I eat. How worried about arsenic poisoning do we need to be? I'm not downing rice at every meal but I do eat it daily, I'm sure. I rarely eat rice, rice. Usually it's the rice flour that's in things. Is this one more thing to keep me up at night? Because now I'm like, "Oh this is great. I'm trading gluten for arsenic." I need to eat carbs. If I just eat fruits and veggies and meat I'll lose weight which stresses me out. I want to be able to eat toast with peanut butter and eggs but I worry my toast is killing me. Am I being a little dramatic.
    • So I've been gluten free for 6 months. I gave it up the day of my endoscopy and never looked back. I was a fairly silent Celiac. My blood work was always normal (never anemic, malnourished), I didn't have all the horrible symptoms that others do. I think I caught it early and that those things were definitely coming. Since going gluten-free I notice that my belly is better. I still have days where it's not great, but in the last month I've noticed that it's consistently pretty good. I don't hardly ever get stomach aches. I've lost 16 lbs and I'm never bloated. Those things are good. But, aside from that, I don't feel much different than I did before. I'm still tired a lot. But I have two kids under 4 and I run a non-profit. I have horrible anxiety and that's only increased since finding out about my Celiac (it's health anxiety and it freaked me out big time that I have an AI disorder). I feel like my complexion looks the same (never had an issue with that).  I just read stories on here that talk about how the brain fog lifted quickly, or how people don't feel tired anymore, etc. I'm still a zombie sometimes. Has anyone else has this experience? Maybe my body was doing such a good job compensating for my Celiac that I wasn't really very symptomatic to begin with - and that the tiredness I feel isn't due to gluten.  Oh, FYI, I had a full thyroid panel done in December and it was all normal. 
    • Your daughter could have non celiac gluten sensitivity. That would correspond to negative celiac tests coupled with positive reaction to the gluten free diet. Whilst there are similarities to celiac presentation it appears that neuro symptoms are more common in ncgs patients.  That seems to be the case for me anyway!  The condition is as yet poorly understood but there is progress being made, check out a topic I just started on the pre diagnosis thread with some info and links.  The remarks by umberto Volta in particular are just about the best summation I've yet seen on where the research is at.  I will post a link later.
    • The gi may be able to see some signs of celiac visually but the chances are you will have to wait a couple of weeks for the biopsies before there's any confirmation. The damage to the villi is too small to detect with naked eye I think. as long as your eating some gluten each day you will have done all you can for a diagnosis. Not long now so go ahead and treat yourself to a nice cheesecake, fish and chips etc.  
    • check out CoQ10, not related to celiac (as far as I know) but for balance issues.
  • Upcoming Events