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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Trying To Start A Group
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4 posts in this topic

There is no support group within reasonable driving distance, so I thought I would try to start a group. I have heard from a few people who are interested. Is there a regional of National group that I need to contact, or are we just on our own? Right now, the plan is to just get together to meet each other and discuss what we would want from a support group. I seem to be heading this up, so I would welcome any advise (or warnings) that I can use.

This group will be in Jackson, MS, so if you are in the area and are interested, please contact me.

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The local group in my area is part of GIG. http://www.gfutah.org/

 

While a lot of groups are probably a part of larger organizations, it doesn't mean a group has to be. If you get information from national organizations and find out more about what it would mean to have a support group tied to one of them you can decide if you would want to be involved with something like that. There could be financial obligations, rules on what you can and can't do, and paperwork and administrative tasks that someone would have to take on. That is stuff you would want to know ahead of time before getting yourself in over your head. You could also discuss the different organizations you could be part of with your group and decide amongst yourselves if you want to be part of one of them or just on your own.

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I'd try to find a national organization.  I belonged for years to a mother's group which was national.  At least we had access to liability waivers, etc. which is critical if you meet at someone's home.   On the other hand, we started a school foundation from scratch and it was difficult setting up everything for the first time (bi-laws, banks, taxes, etc.)  I wish you the best of luck!

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