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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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I've been gluten free since diagnosis in July. The last month or so I've been getting unexplained bruising, not easy bruising, they literally come from nowhere. I have one the size of a baseball on the back of my leg. With this I get bulging veins in my arms and hands, and rashes appear that look like hickies. It looks like the blood coming to the surface.

Blood work for iron is good and platelets are in the middle range. Tested for factor v Leiden which was negative.

Any thoughts?

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I know your saying iron is ok, but it does sound like iron....I have low iron, need infusions every couple months and I get bruising out of no where, but not that severe.

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My iron is 82 and ferritin is 31

Kaiser considers this normal ranges even if its on the low side of normal. They don't test for vit K defiency either but the vein thing is weird that shouldn't be related to iron or vit k?

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Just wondering, are the bruises painful? What about the rashes?

 

Also, are you on any meds?  Some are notorious for causing spontaneous bruises.  

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The rashes are clusters of red spots looks like when you pinch your skin. No pain

The bruises don't hurt, I don't even know they are there until I see them usually in the shower.

I take Advair for my asthma that's it and was on prednisone in June

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Prednisone is one of the meds that can cause bruising. Since they don't hurt, the bruises might be because of the effect prednisone has on the skin, somehow it thins and weakens it.  If you've stopped taking prednisone, the bruising should lessen and you'll go back to normal.  Otherwise you and your doctor will have to see if your dose can be adjusted, if he/she thinks that might be the problem.

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I'm not on it now. I was on it through my IV in the hospital in June. So it should be out of my system by now? My Dr is going to refer me to hematology for further testing

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There is a type of anemia that causes the red blood cells to be very large (macroblastic?)  I think you can be at a normal count, but the bloods cells are not mormal and proper functioning.

 

There is also an auto-immune disorder ITP, Idiopathic Thrombosis Purpura (spelling is probably not accurate and I believe there has been a change to the name.  If you google search ITP that should get you some information)  ITP is when the immune system attacks the red blood cells.  An acute attack can be life threatening anemia.  Definately go to an emergency room if you start feeling extremely weak/ rash spreads / more sudden bruising.

 

Good luck with testing and keep us updated for your speedy recovery!

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There is a type of anemia that causes the red blood cells to be very large (macroblastic?)  I think you can be at a normal count, but the bloods cells are not mormal and proper functioning.

 

There is also an auto-immune disorder ITP, Idiopathic Thrombosis Purpura (spelling is probably not accurate and I believe there has been a change to the name.  If you google search ITP that should get you some information)  ITP is when the immune system attacks the red blood cells.  An acute attack can be life threatening anemia.  Definately go to an emergency room if you start feeling extremely weak/ rash spreads / more sudden bruising.

 

Good luck with testing and keep us updated for your speedy recovery!

 

I will mention it to my Dr. my MCV was 99 which is borderline high, but like I said Kaiser doesn't consider borderline or even slightly high labs problamatic. When I looked up the macrolastic anemia it said MCV over 95 may point to that.

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I had my dermatology appointment yesterday and he took a biopsy to test for DH because he thinks its that.

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    • Diagnosed at 57
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