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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What's The Gluten Summit?
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16 posts in this topic

Saw something about this Gluten Summit, here's the link:

 

http://theglutensummit.com/registration/

 

There sure are some big names listed.  Anyone know about it?  Looks interesting.

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I'm surprised at that line-up. Some real experts and some of the high profile quacks. Interesting.

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I counted  7 actual noted celiac specialists, authors and researchers.. I am stunned to see them there with these other "experts", but I guess they know what they are doing.

Maybe they are there to help create better understanding of celiac and the gluten spectrum.

I have a lot of respect for those doctors and Melinda Dennis.

 

I also see a bunch of people who think everyone has a gluten sensitivity ( and some who can diagnose you with it for lots of $$$$.!) --even though there is no such thing at this time as a "gluten sensitivity test"--according to celiac experts!

 

I see people with lots of letters after their names, but it does not make me believe they are celiac or gluten experts.I have read several of their books and was not impressed at all. 

This all IMHO, of course.

 

I even read a  press release where the people at GIG  are now touting Cyrex lab tests as "valid".

So, how can that be--when the celiac experts say they are not?

 

Save your bucks and go to the ICDS next year. 

 

http://www.icds2013.org/

 

Edited to say: I did not realize the summit was free. thanks, Karen for enlightening me.

Edited by IrishHeart
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I

Save your bucks and go to the ICDS next year.

http://www.icds2013.org/

Actually, the next ICDS is in 2 years in Prague and the one after that is in New Delhi. So save your money! The reps from Prague are doing a lot of planning! I noticed none of these self- proclaimed Internet experts presented at ICDS.
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Now that I read the advertising more carefully, it does say that it's the world's first summit like this so I guess it's new to all of us.  

 

I enrolled in it and so far it has cost nothing.  It say the event dates are Nov. 11 to 17, 2013 when several interviews will be on-line each day.  I have no experience with events like this, perhaps they'll be wanting to sell stuff by the end.

 

They say their goal is to "move the conversation about gluten-related disorders forward".  That seems reasonable enough.  It's not directed just at people with celiac disease I take it.  

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I signed up to. It is free. I know a lot of the speakers do have products and books to sell, some good and some bad.

I think we need to remember that, just because someone calls the self a doctor, they aren't necessarily an MD. Also, research done by a company and not presented to other research peers to review and critique, may not be valid. Also, watch for a lot of odd logic or taking you in circles to get to " proof" of a theory or test.

One of these presenters has been "proving" their point in a way that will make you dizzy - them - A does x in your body. Me- how is that even possible? Them - it's not really A you are reacting to. It is the gluten added to A that your body is reacting to. Me - then A isn't doing what you just said it was! it's the gluten instead! Them - no, because that test wasn't valid. It was in a test tube. therefore A does x in the body.

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Should be interesting to see if there are discussions with a mix of these folks or simply each participant presenting their take.

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This does look interesting. There are at least a few people listed that I would pay actual real money to hear speak, and if someone is (or starts sounding like) a kook I can just stop listening. No one is going to force any of us to listen to every one of these "experts" but some of them are the best of the best and we would all benefit from hearing what they have to say.

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I saw that Dr. Daniel Amen is one of the presenters.  I have met him personally.  He is a crusader of the S.P.E.C.T. imaging process of the Brain.  I was fortunate to be a client at his Newport Beach, CA clinic.  I HIGHLY recommend watching his presentation.

 

Colleen

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I saw that Dr. Daniel Amen is one of the presenters.  I have met him personally.  He is a crusader of the S.P.E.C.T. imaging process of the Brain.  I was fortunate to be a client at his Newport Beach, CA clinic.  I HIGHLY recommend watching his presentation.

 

Colleen

 

yes, he's one of the ones I hold with high regard. I read that he is

 

" the lead researcher on the world’s largest brain imaging and rehabilitation study on professional football players."

 

Marios Hadjivassiliou, MD

 

is one of the doctors who has linked gluten to neurological symptoms, particularly gluten ataxia.

It was by reading his PUB MED articles that I started to figure out what the heck was going on with me. 

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yes, he's one of the ones I hold with high regard. I read that he is

 

" the lead researcher on the world’s largest brain imaging and rehabilitation study on professional football players."

 

Marios Hadjivassiliou, MD

 

is one of the doctors who has linked gluten to neurological symptoms, particularly gluten ataxia.

It was by reading his PUB MED articles that I started to figure out what the heck was going on with me. 

Wow Irish, that is great.  I was at his clinic about 3 years ago.  They have extensive archived images of not only football players but every imaginable traumatic brain injury, mental health disorders, toxin effects, etc.  And yes, my brain scan is in there too :) 

 

He runs presentations on PBS regularly.  His wife Tana is also accomplished in the nutrition area and just released a book. 

 

Colleen

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ok... here is one of the presenters. I saw her in an infommercial today as I flipped through the channels.

 

Not sure what it has to do with celiac or medically necessary gluten free diet

 

http://thevirgindiet.com/

 

and out of curiosity, I looked up this guy Dave and found

 

The Financial Times described Dave as a “bio-hacker who takes self-quantification to the extreme of self-experimentation” after he upgraded his brain by 20 IQ points, lowered his biological age, and lost 100 lbs without using calorie-control or exercise.

 

 

 

HOLY SMOKES.

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and out of curiosity, I looked up this guy Dave and found

The Financial Times described Dave as a “bio-hacker who takes self-quantification to the extreme of self-experimentation” after he upgraded his brain by 20 IQ points, lowered his biological age, and lost 100 lbs without using calorie-control or exercise.

HOLY SMOKES.

Nice...we can get a scientific celiac update along with a map to the fountain of youth ;)

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Nice...we can get a scientific celiac update along with a map to the fountain of youth ;)

 

 

:lol: seriously, how do you "lower your biological age" exactly? 

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:lol: seriously, how do you "lower your biological age" exactly? 

 

 

I guess fake IDs can go both ways?

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and furthermore, I lost nearly 100 lbs. without "calorie counting or exercise". It's called malabsorption.

 

He calls it "self-quantification"?

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