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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Opinions Please On Stopping Gluten And Biopsy
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3 posts in this topic

Hello,

 

I had a biopsy yesterday for Celiac.  The doctor said my duodenum appeared normal.  I could still have Celiac though, right?   I had a negative blood panel last week.

 

However, from mid August to mid September (for 21 days) I was on the ketogenic diet.  So no gluten.

 

Then a few weeks ago, blood work via my oncologist indicated I have iron deficiency anemia.  Ferritin was 6 and they say that's pretty low.

 

So far there are no other reasons for the anemia (no bone marrow issues, no gastro bleeding, no girl issues).  I have been tested for those over the past week.

 

So what do you think?  Is 21 days of no gluten then 1 month of gluten good for a positive result if Celiac?

 

Thank you in advance!

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Did your doctor take six or seven tissue samples during your endo (biopsy)?  A visual means nothing!  My only symptom was anemia besides having been diagnosed with thyroiditis some 15 years ago.  But, I do have Thalassemia too which is another type of anemia and causes low hemoglobin too.  My ferritin levels have been as low as a 2.  

 

I can't answer your question about being gluten-free for 21 days and then eating it for a month before the blood test, but my blood test was barely positive.  My biopsy though showed moderate to severe damage.  

 

I hope this helps!

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Hi Michiganlynn,

 

If you are concerned it may not be a long enough time on gluten, you might be able to delay your doctor appointment for a couple weeks more.  It used to be the standard time for a gluten challenge was 3 months.  There is no guarantee it will be be a positive test of course.   Have you noticed any change in symptoms from stopping gluten before?  If symptoms changed on stopping gluten previously, that is  good indicator something is going wrong in your body when you eat gluten.

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