• Ads by Google:

    Get email alerts Celiac.com E-Newsletter

    Ads by Google:

       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Skin Help - May Be Dh, May Not, Not Sure

5 posts in this topic

Recommended Posts

I know that others have posted pictures in here, and I'm just looking for some help.


I've had these intensely itchy spots on my hands for about 18 years (I'm 36 now). Whenever I get them, I can wash my hands, use hand cream, cortisone ointment, hand sanitizer - nothing will stop the itch. The itch is stopped only by scratching, and it's a conscious thing - to scratch so much that the topmost layer of skin comes off. Once that happens, the spot goes numb. Day 2 is the most painful. Day 3 on, the wound is scabbed and healing.


The bad part (you know, other than tearing my skin off) is that it looks like a burn.


Here's a pic of my hand 3 days after the itchiness started: http://www.flickr.com/photos/8376303@N02/10354205753/


My "doctor" today told me it was "eczema" and "ringworm" and prescribed me a steroid cream from looking at my hand from 5 feet away. 


Has anyone else ever had something like this? I know it doesn't look like the typical DH and I realize it might not be DH (if not, mods feel free to delete). I'm just looking for some help because I've also had these spots on my ankles, wrists, arms and legs.

Share this post

Link to post
Share on other sites
Ads by Google:
Ads by Google:

kareng    1,992

I don't know a lot about Dh but I think the question would be - what do they look like before you scratch them?

Also, I do know about ringworm and that is nothing like ringworm!

Share this post

Link to post
Share on other sites

I don't know a lot about Dh but I think the question would be - what do they look like before you scratch them?

Also, I do know about ringworm and that is nothing like ringworm!

Before I scratch, they get really red and inflamed. As I scratch the skin acts like it's blistering - it seems to get "loose" and I can pull the top layer away. Once the "blister pop" there is clear fluid, the skin turn whitish and red around it.


I also have 2 little spots on my left palm, here's a small example of what they look like before it get scratched:


Share this post

Link to post
Share on other sites
ItchyAbby    33

I cannot say for sure if it is Dh, but I will say this: don't get too hung up on what "typical" Dh looks like. If you look at the photo bank here you will see a fair amount of variation in rashes and locations. Mine is considered "atypical" according to common medical knowledge and that was enough to make multiple derms and docs decide it wasn't Dh. (Common medical knowledge says that Dh occurs mostly in males and on the elbows, knees and back of the neck. I am female and have it all over the front and sides of my torso and across my lower back.)


You may need to be "pushy" with you docs and ask to see a dermatologist. Then you may need to be pushy with them to get them to test for Dh (and then you need to make sure that they know how to properly take a biopsy for Dh) It's frustrating, I know.

  • Upvote 1

Share this post

Link to post
Share on other sites
Ads by Google:

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


  • Forum Statistics

    • Total Topics
    • Total Posts
  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
  • Popular Now

  • Topics

  • Posts

    • As cycling lady said. Does your Public school district have a homebound program/ coordinator you can speak with. Perhaps as you proceed with diagnosis for celiac and work on getting the 504 in place inquire if they are willing to send a homebound instructor out. In the meantime I would try to arrange to get the books from the teachers to pick up and work on at home. sometimes a homebound educator obtains all these materials and visits the home. lots of water, sleep, and I always find baths soothing and relaxing. For her and I suggest one for you after you get her to sleep as well. best wishes she is lucky to have a mom advocate for her during this difficult time .
    • I have read that article.  While, true, testing for antibodies seems to be better than nothing.  I have read the DGP may be better for monitoring the gluten free diet, but who knows if that is still true or not?  Endoscopies are invasive and not cost effective for constant follow-up care.   I would like to see more studies about healing outcomes for celiac disease.  Most information is based on clinical observation and just plain guessing.  While my hubby can take a hit that lasts a week, I go down for months!  I am assuming that there are variations of celiac disease, like diabetes.  You just have to find what works for you as an individual.  Follow the basic gluten free diet, but modify it for your personal level of sensitivity and accompanying food intolerances.  I wish there was a meter for my sensitivity.  I can sure identify which carbohydrates can spike my blood sugar.  Those carbohydrates that affect me do not necessarily affect other diabetics.   I am approaching five years of being gluten free.   I am constantly debating on whether I should get another endoscopy.  (My GI just said to email him directly and he'll squeeze me in within days).   But what will the results reveal?  That I keep making mistakes, am getting cross contamination from hidden sources, that I have refractory celiac disease or lymphoma or I am doing a good job?  I have chosen to move forward, stick to the diet and just simply live and enjoy my life.    Of course I say this after coming down from a six month bad stretch (tooth infection, flu, colds, daily hives, antibodies raised for both Hashi's and DGP).  Life has been good for the past month despite my family's crazy schedule.  I am going to take it!  
    • I'm glad the team found a way for the subject of the article to remain involved with the team as a manager. The young man has been through a lot in life. "Developed celiac" one wonders based on his early life medical challenges if celiac may be present in utero. And complications could have occurred as a mom would eat  a regular gluten containing diet . I was undiagnosed during my Family birthing years.  I have wondered if being undiagnosed and unknowingly consuming gluten negatively impacted my pregnancies, labors, deliveries, and the other issues my children experienced. I was not typical/average OB/Gyn  patient.  I believe I know the answer and I try to accept -with cliches of  it is what it is- and hindsight is 20/20 etc.  I'm glad he is thriving and not missing a beat as he ages and follows his gluten-free diet.
    • This sounds so much like my daughter's behavior before she was diagnosed with Celiac's in 2nd grade. My heart breaks for you...it is not easy. However, if it is the extreme stomach discomfort that is causing her behavior issues, there is a prescription drug for intestinal cramping called Dicyclomine. It can be given as needed for such emergencies.  We have also found that probiotics given regularly lessen the symptoms when she is accidentally glutened. Good news: Our daughter is 18 now, and succeeding very well in college.  A word of warning though if your daughter is that sensitive (from factory contamination): Be aware of all of the prescription and OTC drugs, make-up, shampoos, hairspray, lotions, etc.. that contain gluten, since they are not required to label products. I just recently discovered that some retainers given out by orthodontist leech gluten too. 
    • Yes I know you are correct I just think I'm in denial and that it could lead to worse issues.  In my head I keep thinking if I never went to the doctor for the mysterious rash I never would have known I had celiacs to begin with and would still be eating those Foods.  Stupid I know I'm just having a hard time with this especially since I don't like a lot of foods that are gluten-free naturally
  • Upcoming Events