• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long Till He Starts To Feel Better? (Anemia Goes Away, Etc.)
0

13 posts in this topic

Hi,

 

My 4 year old son was just diagnosed with celiac disease. We had blood work done twice, endoscopy with biopsy, etc. He has been on a strict gluten free diet for about a week. He is very anemic, has had very slow growth the last 2 years, has the typical "pot belly", etc.  His stomach aches have already stopped...but I was curious when the anemia, pot belly, and growth, etc. might start to resolve. What was your experience?

 

Thanks so much.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi,

 

My 4 year old son was just diagnosed with celiac disease. We had blood work done twice, endoscopy with biopsy, etc. He has been on a strict gluten free diet for about a week. He is very anemic, has had very slow growth the last 2 years, has the typical "pot belly", etc.  His stomach aches have already stopped...but I was curious when the anemia, pot belly, and growth, etc. might start to resolve. What was your experience?

 

Thanks so much.

It can take a while. A few months to maybe a year or so.

0

Share this post


Link to post
Share on other sites

It took me about six months to stop being anemic and I was taking iron supplements.  Has the doctor suggested iron?  Has he been tested for other vitamin and mineral deficiencies?  

0

Share this post


Link to post
Share on other sites

Yes - the doctor has him on an iron supplement - adult dose.He is also taking a multivitamin. I just was curious -  as I know it takes time for the gut to heal for him to even be able to absorb his nutrients/vitamins/iron. I was hoping he would start to feel better in weeks vs months.  :/  But I understand this may be a long process.

0

Share this post


Link to post
Share on other sites

Welcome Lynn!

Your son may feel better within weeks rather than months. Young kids tend to improve quickly once all gluten is removed. Learn all you can about how to keep him gluten-free and preventing cross-contamination. Take a look at the "newbie 101" thread:

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

It will take some time to correct nutritional deficiencies, but you will likely see symptom improvement in the coming weeks.

Hang in there Mom!

0

Share this post


Link to post
Share on other sites
Ads by Google:


Thank you so much!  We are trying to be strictly gluten free but there is def. a learning curve. I didn't realize his gummy flint stone vitamins had it....so I replaced those last weekend....and then today he got a nibble off another child's cracker at school. He is still learning too - that he can't take bites off other people's food they offer, the snack table, can't have foods he used to have, etc. It's just so hard - as you want them to heal ASAP but there is this long learning curve too! We have removed all items with gluten in our house....but have to replace the toaster this weekend. 

 

I'm so happy we found out what was making him ill...and making the change to gluten free wasn't too hard (as I already cook/don't' eat out much, etc.) but the lifestyle change for him is hard. I've bought children's books about being gluten free, etc. to try to help him understand...but he just turned 4 last month...so the truth is the maturity of remembering not to eat other food without asking mommy first or given to him by the teacher (for snack) is tough.

 

I just can't wait for him to feel better. My stomach just drops every time I find out he's been glutened a little bit either because I made a mistake or he did (learning curve). I know it just slows the healing down. Frustrating.

 

 

Welcome Lynn!

Your son may feel better within weeks rather than months. Young kids tend to improve quickly once all gluten is removed. Learn all you can about how to keep him gluten-free and preventing cross-contamination. Take a look at the "newbie 101" thread:

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

It will take some time to correct nutritional deficiencies, but you will likely see symptom improvement in the coming weeks.

Hang in there Mom!

0

Share this post


Link to post
Share on other sites

It is indeed frustrating! I can tell you it gets better with time. For now try not to be too hard on yourself --- mistakes will happen, but they will become fewer and farther between as time goes on.

Often the reactions to small amounts of gluten become worse...which is no fun, but does help to reinforce the need to be completely gluten-free ... 4 year olds learn very quickly...he'll become a more confident celiac...again with time.

Sounds like you are off to a great start...keep up the great work and let us know if we can help :)

0

Share this post


Link to post
Share on other sites




PS....if you are going gluten free with him you should have a complete celiac antibody panel before removing gluten as celiac disease is genetic.

0

Share this post


Link to post
Share on other sites

PS....if you are going gluten free with him you should have a complete celiac antibody panel before removing gluten as celiac disease is genetic.

 

Yes - I was going to talk to my childrens pediatrician about this (or gastro) as he has a 2.5 year old sister. She isn't showing any signs like he was even at that age (looking back now - pot belly, loose poop issues, etc.) but I worry about it as the house is gluten free now. She is getting gluten containing snacks at school though...so I think I can get her tested anyway. My husband was diagnosed with IBS 10 years ago. They tested him for celiac at the time and he came back "borderline" on the blood results. They told him he could try a gluten free trial to see if it helped...he did for a short stint and said it didn't....so that was that and he just took the IBS diagnosis and moved on. But - now that our child has been positivly diagnosed...I'm thinking he should consider being retested.

0

Share this post


Link to post
Share on other sites

Yes - I was going to talk to my childrens pediatrician about this (or gastro) as he has a 2.5 year old sister. She isn't showing any signs like he was even at that age (looking back now - pot belly, loose poop issues, etc.) but I worry about it as the house is gluten free now. She is getting gluten containing snacks at school though...so I think I can get her tested anyway. My husband was diagnosed with IBS 10 years ago. They tested him for celiac at the time and he came back "borderline" on the blood results. They told him he could try a gluten free trial to see if it helped...he did for a short stint and said it didn't....so that was that and he just took the IBS diagnosis and moved on. But - now that our child has been positivly diagnosed...I'm thinking he should consider being retested.

I agree....once gluten is reduced significantly it can affect the antibody tests. If everyone feels better gluten-free - great - except you lose this data and may need to perform a gluten challenge if a diagnosis is needed in the future - which can be extremely difficult.

I'd vote for complete antibody panels all around. Your primary can order these tests.

0

Share this post


Link to post
Share on other sites




It sounds like you're doing a great job! My daughter (11) also had mild anemia, osteoporosis and slow growth. It's been 6-1/2 months since she was diagnosed, and her tTG went from 99 down to 6, her anemia is gone, and she grew 1-1/2 inches and gained 7 pounds! She also has so much more energy and we saw that difference within the first month. I've definitely read that kids heal faster, and I asked the Peds GI at our 6 month check-up if her low tTG meant that her small intestines are healed. He said yes. So keep up the good work and I bet you start noticing big changes in him soon!

 

(As a side note, the bone density doesn't respond as quickly, but hopefully at 4 that isn't too much of an issue for him. She had her first 2 fractures - in the same arm at the same time - at age 3-1/2 - so we definitely trace her Celiac back to a 3 week bout of diarrhea when she was about 6 months old.)

0

Share this post


Link to post
Share on other sites

It sounds like you're doing a great job! My daughter (11) also had mild anemia, osteoporosis and slow growth. It's been 6-1/2 months since she was diagnosed, and her tTG went from 99 down to 6, her anemia is gone, and she grew 1-1/2 inches and gained 7 pounds! She also has so much more energy and we saw that difference within the first month. I've definitely read that kids heal faster, and I asked the Peds GI at our 6 month check-up if her low tTG meant that her small intestines are healed. He said yes. So keep up the good work and I bet you start noticing big changes in him soon!

 

(As a side note, the bone density doesn't respond as quickly, but hopefully at 4 that isn't too much of an issue for him. She had her first 2 fractures - in the same arm at the same time - at age 3-1/2 - so we definitely trace her Celiac back to a 3 week bout of diarrhea when she was about 6 months old.)

That's great news!  I'm so happy for your daughter!  Good job, Mom!

0

Share this post


Link to post
Share on other sites

Good news! We went for his 2 week followup with the gastro (from last visit when he had the endoscopy)...and he's gained 4lbs! Still stomach distension (belly) but she thinks as he heals up and there is more food being absorbed the  belly will decrease! Wants to rerun blood work in 3 months to verify anemia has resolved and other numbers have normalized.

 

He is eating like a horse lately....I guess because the stomach aches are gone...so I'm not surprised he put on some weight - but 4lbs! sheesh!  :o)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,375
    • Total Posts
      935,756
  • Member Statistics

    • Total Members
      65,059
    • Most Online
      3,093

    Newest Member
    ShaneGrimes
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi Everyone!  Thank you for all your responses!  This site is so helpful and I appreciate everyone who replied to my post.   I was able to get an earlier appt with Maureen Leonard who was absolutely wonderful like you all said and after more testing and even a genetics test, my son now has a diagnosis of celiac disease.  He's been gluten free now for a few weeks.  He is doing very well on the diet so far.  He does seem to be sleeping better which was always a problem since he was an infant, so that is a good sign!  We test in 3 months and I hope that his iron levels go up. 
    • Are you substituting something for the PPI?    I'm not sure what meds will mix well with it, but you could ask the pharmacy or Dr. for advice on what might work.   I'm thinking you stopped something that may be helping in some ways, and are now allowing your symptoms to return.   If so, it makes sense to find something else to help with symptom control.   I don't know what products you have there.   We have Tums (calcium carbonate), Gaviscon (aluminum hydroxide with magnesium carbonate), Pepto and Kaopectate (same product), and Gas-X (simethicone).    I believe all of these can be taken with PPIs, but do check.    I don't know that Pepcid (Famotidine) can be mixed, but you could check that, too.   The Gas X really helps with the bloating and odd pains, as it breaks up the gas.  The Tums seems to help neutralize the acid and upset stomach / stomach pain.  These two are my mainstays.  You may have other products that could be as effective. Have you tried mixing bone broth with cornstarch or gluten-free flour to make a gravy?  Mix in some ground beef, chicken, or turkey, add some gentle veggies (carrots, or maybe a can of Chinese veggies?), a little bit of gentle spices for taste, and then put over gluten-free pasta or white rice.  Make a chicken sandwich with gluten-free bread.   Can you tolerate mayo?   Put a sprinkle of salt, pepper, and lemon juice on salmon, then coat with mayo and microwave.   Or mix some mayo with chicken or tuna for a chicken salad / tuna salad sandwich;  or eat just a scoop of it.   If you can tolerate dairy, Schar's newest version of table crackers are like saltines and are tasty.   If no dairy, try their breadsticks.  You could have either with soup or bone broth.   Schar's has enough fat to give you calories to help stave off weight loss, and you can add more by brushing a little butter on the crackers. You could try other casseroles with tuna or some lean ground hamburger.  Have you also looked at a possible new food intolerance?   I suffered for a few weeks before I figured out it was dairy for me.   Eliminating dairy wasn't enough.   I had to get rid of anything that might upset my stomach in order to start getting better.  I printed lists of low FODMAP, low acid foods, and low lectin foods, then selected only those foods that were on all 3 lists.   You might consider doing this with food lists that are right for you.  Hope this might spark some ideas!    
    •  I have a friend with MS, another with breast cancer and a third with RA.  At the same age my only problem is I cannot eat gluten!  So when I start getting frustrated about food I think about that and how lucky I truly am.  Once you get in the swing of it it gets easier and then you start to feel better which makes it all worth it.    Also when I first went gluten-free I read on this group about Mark's daily Apple and the Paleo community. I turned to that which was extremely motivating.  I've never seen so many people so excited about not eating gluten. It was a very positive energy and motivated me to find other foods to eat. Also, they love bacon! 
    • I know I needed the confirmation.  My hubby went gluten free per the very poor advice from my allergist and his GP.   It worked, but we really do not know if he has celiac disease.  He refuses to do a gluten challenge and I do not blame him.  We do know that gluten makes him sick.  He has been gluten free for 16 years.   So, when my GI suspected celiac disease, I could not believe it.  I had no tummy issues at the time, but was anemic.  Had been my whole life and it was blamed on a genetic anemia and menstruation.  I knew what being gluten free meant and I did not want to have celiac disease.  But,   I got positives  on the DGP and my biopsy.    Nothing like seeing something in writing.  I showed that to my extended family who was in denial as well.   I had a shared household with hubby all those years.  But after my diagnosis and the fact my kid started making things in the kitchen, we all went Gluten Free.  Great kid, but I could not trust her with my health!  If you DD has small siblings, consider all going gluten free.  They can eat gluten outside of the house.  That is what my kid does.  
  • Upcoming Events