• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long Till He Starts To Feel Better? (Anemia Goes Away, Etc.)
0

13 posts in this topic

Recommended Posts

lynnedays    0

Hi,

 

My 4 year old son was just diagnosed with celiac disease. We had blood work done twice, endoscopy with biopsy, etc. He has been on a strict gluten free diet for about a week. He is very anemic, has had very slow growth the last 2 years, has the typical "pot belly", etc.  His stomach aches have already stopped...but I was curious when the anemia, pot belly, and growth, etc. might start to resolve. What was your experience?

 

Thanks so much.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


shadowicewolf    166

Hi,

 

My 4 year old son was just diagnosed with celiac disease. We had blood work done twice, endoscopy with biopsy, etc. He has been on a strict gluten free diet for about a week. He is very anemic, has had very slow growth the last 2 years, has the typical "pot belly", etc.  His stomach aches have already stopped...but I was curious when the anemia, pot belly, and growth, etc. might start to resolve. What was your experience?

 

Thanks so much.

It can take a while. A few months to maybe a year or so.

Share this post


Link to post
Share on other sites
cyclinglady    723

It took me about six months to stop being anemic and I was taking iron supplements.  Has the doctor suggested iron?  Has he been tested for other vitamin and mineral deficiencies?  

Share this post


Link to post
Share on other sites
lynnedays    0

Yes - the doctor has him on an iron supplement - adult dose.He is also taking a multivitamin. I just was curious -  as I know it takes time for the gut to heal for him to even be able to absorb his nutrients/vitamins/iron. I was hoping he would start to feel better in weeks vs months.  :/  But I understand this may be a long process.

Share this post


Link to post
Share on other sites
GottaSki    459

Welcome Lynn!

Your son may feel better within weeks rather than months. Young kids tend to improve quickly once all gluten is removed. Learn all you can about how to keep him gluten-free and preventing cross-contamination. Take a look at the "newbie 101" thread:

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

It will take some time to correct nutritional deficiencies, but you will likely see symptom improvement in the coming weeks.

Hang in there Mom!

Share this post


Link to post
Share on other sites
Ads by Google:


lynnedays    0

Thank you so much!  We are trying to be strictly gluten free but there is def. a learning curve. I didn't realize his gummy flint stone vitamins had it....so I replaced those last weekend....and then today he got a nibble off another child's cracker at school. He is still learning too - that he can't take bites off other people's food they offer, the snack table, can't have foods he used to have, etc. It's just so hard - as you want them to heal ASAP but there is this long learning curve too! We have removed all items with gluten in our house....but have to replace the toaster this weekend. 

 

I'm so happy we found out what was making him ill...and making the change to gluten free wasn't too hard (as I already cook/don't' eat out much, etc.) but the lifestyle change for him is hard. I've bought children's books about being gluten free, etc. to try to help him understand...but he just turned 4 last month...so the truth is the maturity of remembering not to eat other food without asking mommy first or given to him by the teacher (for snack) is tough.

 

I just can't wait for him to feel better. My stomach just drops every time I find out he's been glutened a little bit either because I made a mistake or he did (learning curve). I know it just slows the healing down. Frustrating.

 

 

Welcome Lynn!

Your son may feel better within weeks rather than months. Young kids tend to improve quickly once all gluten is removed. Learn all you can about how to keep him gluten-free and preventing cross-contamination. Take a look at the "newbie 101" thread:

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

It will take some time to correct nutritional deficiencies, but you will likely see symptom improvement in the coming weeks.

Hang in there Mom!

Share this post


Link to post
Share on other sites
GottaSki    459

It is indeed frustrating! I can tell you it gets better with time. For now try not to be too hard on yourself --- mistakes will happen, but they will become fewer and farther between as time goes on.

Often the reactions to small amounts of gluten become worse...which is no fun, but does help to reinforce the need to be completely gluten-free ... 4 year olds learn very quickly...he'll become a more confident celiac...again with time.

Sounds like you are off to a great start...keep up the great work and let us know if we can help :)

Share this post


Link to post
Share on other sites


Ads by Google:


GottaSki    459

PS....if you are going gluten free with him you should have a complete celiac antibody panel before removing gluten as celiac disease is genetic.

Share this post


Link to post
Share on other sites
lynnedays    0

PS....if you are going gluten free with him you should have a complete celiac antibody panel before removing gluten as celiac disease is genetic.

 

Yes - I was going to talk to my childrens pediatrician about this (or gastro) as he has a 2.5 year old sister. She isn't showing any signs like he was even at that age (looking back now - pot belly, loose poop issues, etc.) but I worry about it as the house is gluten free now. She is getting gluten containing snacks at school though...so I think I can get her tested anyway. My husband was diagnosed with IBS 10 years ago. They tested him for celiac at the time and he came back "borderline" on the blood results. They told him he could try a gluten free trial to see if it helped...he did for a short stint and said it didn't....so that was that and he just took the IBS diagnosis and moved on. But - now that our child has been positivly diagnosed...I'm thinking he should consider being retested.

Share this post


Link to post
Share on other sites
GottaSki    459

Yes - I was going to talk to my childrens pediatrician about this (or gastro) as he has a 2.5 year old sister. She isn't showing any signs like he was even at that age (looking back now - pot belly, loose poop issues, etc.) but I worry about it as the house is gluten free now. She is getting gluten containing snacks at school though...so I think I can get her tested anyway. My husband was diagnosed with IBS 10 years ago. They tested him for celiac at the time and he came back "borderline" on the blood results. They told him he could try a gluten free trial to see if it helped...he did for a short stint and said it didn't....so that was that and he just took the IBS diagnosis and moved on. But - now that our child has been positivly diagnosed...I'm thinking he should consider being retested.

I agree....once gluten is reduced significantly it can affect the antibody tests. If everyone feels better gluten-free - great - except you lose this data and may need to perform a gluten challenge if a diagnosis is needed in the future - which can be extremely difficult.

I'd vote for complete antibody panels all around. Your primary can order these tests.

Share this post


Link to post
Share on other sites


Ads by Google:


blmoreschi    1

It sounds like you're doing a great job! My daughter (11) also had mild anemia, osteoporosis and slow growth. It's been 6-1/2 months since she was diagnosed, and her tTG went from 99 down to 6, her anemia is gone, and she grew 1-1/2 inches and gained 7 pounds! She also has so much more energy and we saw that difference within the first month. I've definitely read that kids heal faster, and I asked the Peds GI at our 6 month check-up if her low tTG meant that her small intestines are healed. He said yes. So keep up the good work and I bet you start noticing big changes in him soon!

 

(As a side note, the bone density doesn't respond as quickly, but hopefully at 4 that isn't too much of an issue for him. She had her first 2 fractures - in the same arm at the same time - at age 3-1/2 - so we definitely trace her Celiac back to a 3 week bout of diarrhea when she was about 6 months old.)

Share this post


Link to post
Share on other sites
cyclinglady    723

It sounds like you're doing a great job! My daughter (11) also had mild anemia, osteoporosis and slow growth. It's been 6-1/2 months since she was diagnosed, and her tTG went from 99 down to 6, her anemia is gone, and she grew 1-1/2 inches and gained 7 pounds! She also has so much more energy and we saw that difference within the first month. I've definitely read that kids heal faster, and I asked the Peds GI at our 6 month check-up if her low tTG meant that her small intestines are healed. He said yes. So keep up the good work and I bet you start noticing big changes in him soon!

 

(As a side note, the bone density doesn't respond as quickly, but hopefully at 4 that isn't too much of an issue for him. She had her first 2 fractures - in the same arm at the same time - at age 3-1/2 - so we definitely trace her Celiac back to a 3 week bout of diarrhea when she was about 6 months old.)

That's great news!  I'm so happy for your daughter!  Good job, Mom!

Share this post


Link to post
Share on other sites
lynnedays    0

Good news! We went for his 2 week followup with the gastro (from last visit when he had the endoscopy)...and he's gained 4lbs! Still stomach distension (belly) but she thinks as he heals up and there is more food being absorbed the  belly will decrease! Wants to rerun blood work in 3 months to verify anemia has resolved and other numbers have normalized.

 

He is eating like a horse lately....I guess because the stomach aches are gone...so I'm not surprised he put on some weight - but 4lbs! sheesh!  :o)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,903
    • Total Posts
      938,576
  • Member Statistics

    • Total Members
      65,813
    • Most Online
      3,093

    Newest Member
    lunasea
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi everyone! I'm obviously new to the forums, but I'm also new to the idea of celiac/gluten free/etc.  Lemme give you the Cliff Notes version of my journey: 1992: I'm diagnosed with CFS/ME. It sucks and I'm tired and sick all the time. 2014: I'm still tired and sick all the time, so I decide to become a vegetarian. Maybe that'll help, right? I began getting deathly ill when I ate. Vomiting and diarrhea, everything I eat seems to be a problem.  I go to a doctor who runs a million tests. Nothing turns up. In among those tests is a celiac panel which has this result: no antibody detected and no serological evidence of celiac disease. No cause is ever found. I continue to suffer. Later in 2014: I notice that my stomach issues are triggered every time I eat a raw vegetable. I can eat bread or pasta no problem. Fake chicken? Great. Have a salad? I'm dying. This is a problem, as I'm a vegetarian. I nix the fresh veggies and continue to live my life. 2015: I'm diagnosed with Fibromyalgia. I realize that the problem with vegetables is worse than I thought. I can no longer eat cooked spinach, can't have lettuce on my sandwich, and stealing a single slice of cucumber set my stomach on edge for days. I'm becoming hypersensitive to veggies in food and protecting myself from their evil influence; my stomach thanks me. 2017: After a relative peaceful period, the stomach issues are back, worse. So I go to a new doctor (I've moved) and he recommends a colonoscopy and EGD (no labs). This was done yesterday. The full results will of course have to wait for the biopsies to be examined, but apparently there is scalloping "through the entire duodenum".  Doc told my partner that he believes I have celiac and discharged me with orders to go gluten free. Now I'm sitting here alternately considering drinking alone in the dark and throwing things--I guess I'm wavering between the stages of depression and anger on my trip through grief for my lost favorite foods. But here's where the confusion comes in...everything I'm seeing says that I should give up bread and eat more veggies, but veggies make me sick. Does anyone else have this reaction to vegetables? Meanwhile I'm thinking back to the labs done in 2014 and wondering if its possible to have a negative test and still be positive for celiac? Also, what actually happens if you DON'T go gluten free?
    • Hi Guys, I just thought of giving update on my case. I finally got my EGD done and unfortunately, the conclusion is I have Celiac. There was Villus atrophy and presence of Inflammatory Cells, looks like the atrophy of Villi isn't that worse yet, but of course, I need to get on strict gluten free diet right away. I am planning to see a Dietitian next week to have a healthy gluten free diet plan. Any suggestions from the experts in here are most welcome and appreciated. Thanks  
    • Hi this is my first time commenting but I just had to. I too get chest tightness. I have had it flare up several times with no answers. I was diagnosed with celiac about 6 months ago and am pretty confident this is a glutening symptom for me. Last month it was so bad... Started with random chest pains for a couple days then chest tightness that last for two weeks. I ended up going to the emergency room ( again) because I started worrying about my heart. Felt like my bra was so tight, bloated belly, trapped gas like pain in chest, swollen lump under sternum and no relief. EKG, chest xray and blood tests showed heart was fine. GI said he didn't think it was GI related. I give up on doctors. I've had this before and I'm sure I will again. It's like inflammation in there or something but it makes you anxious and uncomfortable. I truly hope you are okay and I hope it will give you some comfort to know you aren't the only one with this.
    • While I agree that getting more sleep when ill or stressed is a must, many people can easily get by on 6 hours of sleep a night.  Not everyone needs 8 hours of sleep.  Sleep needs, like the gluten-free diet, is different for everyone.  Nursing school can be very tough so it may be hard to get 8 hours every night.  I think the most important thing is to make sure no gluten is getting into your diet at all so you feel well and can manage your schedule better.  Good luck to you!
    • What does this result mean exactly?   Endomysial Abs, IgA Negative   Negative Transglutaminase IgA <2 U/mL 0 - 3 U/mL Negative 0 - 3
      Weak Positive 4 - 10
      Positive >10
      Tissue Transglutaminase (tTG) has been identified
      as the endomysial antigen. Studies have demonstr-
      ated that endomysial IgA antibodies have over 99%
      specificity for gluten sensitive enteropathy. Immunoglobulin A (IgA) 518 mg/dL 87 - 352 mg/dL
  • Upcoming Events