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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Help With Endo Results
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2 posts in this topic

My 7yo had her endoscopy yesterday and the doc mentioned seeing "possible some mild blunting of the duodenum", but her biopsies came back negative today.

She had a weak positive TTG-IgA, low iron and low Vit D.

 

We are still planning on a long trial of gluten-free to see if her symptoms improve...but it is frustrating not having a definitive answer!

 

Can anyone theorize about the "damage" being caused by someone else?  The GI still won't say it is Celiac, but she 'may" have gluten intolerance and to go ahead and try diet.

 

Thanks

 

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Did your daughter have a complete celiac antibody panel or just the tTG?

Do you have a copy of the pathology report from the procedure? The early stages of celiac have cellular changes that are sometimes noted in the report, but are not conclusive for diagnosis.

How many samples were taken? Many doctors do not take enough as damage can be spotty and can not be seen by the doctor except in the most advanced cases.

It is time to remove ALL gluten for at least three months - if her symptoms improve request a retest of both Celiac Panel and nutrients. If symptoms and serology improve perhaps the doctor will review diagnosis.

I do think that a positive antibody test, low nutrient levels and the doctor's observation of possible minor blunting are reason enough to not completely dismiss Celiac Disease.

For now make sure you have written or electronic copies of all blood work along with both the procedural and pathology reports for the endo.

Hang in there :)

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