• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Email From Ups My Care Package Is On Its Way!
0

20 posts in this topic

I've been feeling a little down these last couple weeks because I feel like I'm still sick. The joint and muscle pain has made it hard to sleep and my fall allergies are out of control.

So this morning I wake up to an email from ups with tracking that my care package from the u of c is on its way. It's so cool that they do this, I hope they know how much it could really brighten a celiac's day, especially when we are having gloomy ones :-)

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Let us know what you get.  I love getting little random things like that in the mail.  I'll sign up for a sample of something and get so excited when it arrives.  Just getting something that's not a bill makes me happy.  :D

 

Hope you start feeling better soon.

0

Share this post


Link to post
Share on other sites

I wish I had known about that care package program when I was diagnosed! Enjoy your gluten-free goodies!! :)

0

Share this post


Link to post
Share on other sites

Wasn't Karen the one who suggested this particular offering from U of C to you?

 

I have recommended it myself to some people, too and you are the first to tell us" it's coming!"  

 

and I hope you will share what's in it. ( we are all easily amused and excited and take pleasure in these things...LOL) 

 

It's so exciting to get a package, isn't it!! whoohooo! :D

0

Share this post


Link to post
Share on other sites

Wasn't Karen the one who suggested this particular offering from U of C to you?

 

I have recommended it myself to some people, too and you are the first to tell us" it's coming!"  

 

and I hope you will share what's in it. ( we are all easily amused and excited and take pleasure in these things...LOL) 

 

It's so exciting to get a package, isn't it!! whoohooo! :D

I think it may have been Karen, I think she posted a link about something I posted. I can't remember.

Yes it's very exciting!

Karen just posted the other day that the u of c is seeing people apply for these but not diagnosed Celiac.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I received the U of C gift basket a couple of months after diagnosis. It was awesome -- an enormous basket filled with lots of different foods, plus magazines and coupons -- all with a bow on top:-)

It was so generous that I immediately made a donation to them.

0

Share this post


Link to post
Share on other sites

Yep I plan on making a donation. It's such an awesome thing that they do

0

Share this post


Link to post
Share on other sites

People will do anything for free stuff, it did not surprise me at all that I had to give them my Dr.'s info so they could confirm my diagnosis before they sent mine. But that way they only help people who actually need it, and you also get another pair of eyeballs on your test results maybe.  I saw a post about the care packages on a freebie/coupon type website and people were complaining that they had everyone in their family try to get one to give to them and they were denied.  Really people?  LOL  I have been wanting to make a donation but I have been so broke lately being unable to work, some day I want to pay it forward and donate a good amount to them, they really help the celiac community a lot.

0

Share this post


Link to post
Share on other sites

I think it may have been Karen, I think she posted a link about something I posted. I can't remember.

Yes it's very exciting!

Karen just posted the other day that the u of c is seeing people apply for these but not diagnosed Celiac.

Dr. G mentioned that, by requiring " proof" of Celiac disease before you receive a box, they have found many people who don't have Celiac. He seemed to be saying that people were diagnosed incorrectly. But I supposed people will try to get free stuff if they can get away with it.
0

Share this post


Link to post
Share on other sites

Dr. G mentioned that, by requiring " proof" of Celiac disease before you receive a box, they have found many people who don't have Celiac. He seemed to be saying that people were diagnosed incorrectly. But I supposed people will try to get free stuff if they can get away with it.

so maybe people who were told they have a gluten sensitivity but not celiac? I didn't want to put any words in your mouth I was hoping you would elaborate on it :D

0

Share this post


Link to post
Share on other sites

so maybe people who were told they have a gluten sensitivity but not celiac? I didn't want to put any words in your mouth I was hoping you would elaborate on it :D

It was just mentioned in passing. It seemed that some doctors maybe diagnose people incorrectly?

0

Share this post


Link to post
Share on other sites

It was just mentioned in passing. It seemed that some doctors maybe diagnose people incorrectly?

After reading some peoples experiences on here, Id say "Oh Yeah!"

0

Share this post


Link to post
Share on other sites

Thank you for posting this thread! I just emailed a care package inquiry to them. I'm newly diagnosed (three months in) and I think this would help immensely. It's been a lot of stress and worrying about every single thing I put in my mouth or even on my skin. I'm so glad I found this site!

0

Share this post


Link to post
Share on other sites

it came yesterday! ok here's what it had:

 

box of rice chex

Betty Crocker brownie mix (I looooove these and they are addicting)

Bisquick

bag of Plentils in parmeasean and garlic

bag of pasta from Schar

Schar deli style bread

Enjoy Life soft baked cookies

can of Progresso cream of mushroom. lunch today!!!

Larabar

Bakery on Main packet of oatmeal

sample bag of Crunchmaster crackers

3 issues of Gluten Free Living magazine

Coupons!!!!!

 

 

I could have just had the coupons and be happy lol. See told you guys I would post :D

1

Share this post


Link to post
Share on other sites

Wow, that's a very generous gift package.

ENJOY!! (now, please pass me a cookie.) Got any tea? ;)

0

Share this post


Link to post
Share on other sites

Wow...  I bet that cheered you up some :D I'm addicted to the brownies too :ph34r:

 

Colleen

0

Share this post


Link to post
Share on other sites

Wow, that's a very generous gift package.

ENJOY!! (now, please pass me a cookie.) Got any tea? ;)

* passes Irish a cookie* I have tea every afternoon so these cookies will be opened at 3:00 tea time hehe. I love their crunchy sugar cookies with tea mmmmmm

I need the comfort food. I have 2 stitches in my bum from a skin biopsy yesterday. Derm suspects DH. He said it wouldn't hurt and he lied! It's right on the top of the tailbone and it hurts!

0

Share this post


Link to post
Share on other sites

Wow... I bet that cheered you up some :D I'm addicted to the brownies too :ph34r:

Colleen

It did! And it came after my derm appointment which included a skin biopsy. After the numbness wore off my bum was sore so it did cheer me up

0

Share this post


Link to post
Share on other sites

Sorry about the sore backside.  Use Aquaphor healing ointment on the biopsy site.  It will speed the healing time.

 

Colleen

0

Share this post


Link to post
Share on other sites

Sorry about the sore backside. Use Aquaphor healing ointment on the biopsy site. It will speed the healing time.

Colleen

Thanks for the tip. I love that stuff I use it on my kids anytime they get an owie

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,433
    • Total Posts
      930,545
  • Member Statistics

    • Total Members
      63,864
    • Most Online
      3,093

    Newest Member
    Shanna
    Joined
  • Popular Now

  • Topics

  • Posts

    • I've been seeing my dr for a few weeks now about my stomach issues. We've ruled out the gallbladder and h-pylori and today I had the celiac blood tests done. From the reading I've done the past two days, it seems to me that it's highly likely that I have it. I've had digestive issues for years, but they've gotten progressively worse over the past 6 months or so. Pain and nausea when eating, bloat, eternal constipation, dh rash, at it's worse, tight cramp-like pain in a fist under my sternum, radiating through my back and around my right side keeping me up at night. Also heartburn/reflux and trouble swallowing, etc. 

      Anyway, about 2 months ago, I needed a change. I didn't go to the dr immediately because it seemed pointless. (I've mentioned stomach ache when eating to drs before and been blown off.) So, I started the Whole30 elimination diet (takes out soy, grains, dairy, peanuts, and leaves you basically eating meat & veggies). Figured it would show me what I needed to take out of my diet and hopefully feel better. It worked- I felt great! And it seems that grains and gluten are my biggest offenders. But, now I've been off gluten prior to celiac testing. It's been 7 weeks. After 4 weeks I tested steal cut oats, that I later found out were probably glutened. And then nothing until yesterday. Yesterday I had 2 pieces of bread and a muffin and today I had two pieces of bread and then the blood test. Is this going to be enough to show up on the tests? My dr said that it would probably show up, since I had some yesterday and today and was currently having symptoms. But, google seems to say that I should be glutened for 2 wks straight before testing. Has anyone tested positive after just a little gluten? If it's negative should I insist on doing it again after weeks back on gluten? I feel awful, but do want clear answers. Obviously, gluten's not going to be a part of my life any more either way. 
    • So just to clarify  had not consumed any gluten for about 4 days before testing. I was assured by my allergist that it wouldn't affect the test. But what was alarming was that she retested my food allergies (my most recent reaction was two weeks ago) and every food allergy I have came back negative. I don't understand how that is possible. These food allergies developed when I was 20 and I am almost 24 now.
    • Thanks! You too! I have learned from this experience to take charge of my own health. It's nice at least that we can try the gluten-free treatment without a firm diagnosis or a doctor confirming the disease. I've also felt some of the gluten withdrawal symptoms, and my stomach pain ebbs and flows, but I'm determined to stick with the gluten-free diet to see what a difference it makes. Gemini, thank you! This was really validating and useful for me to hear. I've felt so confused through this process and just want some answers. If the biopsy results do come back negative, I'm going to follow your advice and do the gluten-free diet with repeat blood testing after a while. If they come back positive, well, then I'll have my answer. I'm supposed to get them back next week.
    • I have celiac and eosinaphalic esophagitis.  I was put on a steroid inhaler recently.  I use it like an inhaler but swallow the air instead of breathing it in.  You may want to look into EOE and it's relationship to celiac.  Just a thought. My swallowing and celiac seem to be related.
    • You have eat gluten every single day until after testing. And the celiac blood test is supposed to be done as well.  
  • Upcoming Events