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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Both Celiac/gluten Intolerance And Ibs Or Leaky Gut?
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6 posts in this topic

After my inconclusive celiac test, I desied to go totally glutenfree. That worked wonders, and for a month I felt better hvat ever. Then out of the blue, eggs started giving me the same symptoms as gluten did. So I stopped having eggs. Then oats startet making me vomit and soy gave me stomace ace. So I stopped having that as well. Now, someting is slightly upsetting my stomace again, and I can't figure out what. It's not bad now, but I have loos stools and some gas, but the joint pain, anxiety, hormone problems and so on are all pretty much gone.

Why do I keep getting all these intoleranses? Is there anything I can do to keep from getting any more or even get some of the foods back? Could this be IBS or leaky gut in addition to celiac/glutenintolerance? If so, how can I know which one? Is there anything to be done about IBs or leaky gut?

I am so feed up with this crap, and doctors dosen't seem to be intrested if its not something they can test for...

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Try rotating your foods.  Per my doctor, it helps prevent/slow future allergies/intolerances from developing.  At least until your system calms down.  I did a four day rotation years ago when my allergies and intolerances were identified.  I managed to do it for about 8 months to a year.  It was worth it.  I got healthy, had a baby and years later while going through menopause I developed celiac disease!  

 

It might work for you.  

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How do I do that? (I know, I could google it and spend the night reading articles on food rotation, but I really don't feel up to it...)

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Daughter and I have food intolerances and they do keep changing.  Alas for me, they just keep getting more and more.  For her they are lessening!  But we were told by a Dr. never to eat the same thing two days in a row and preferably not the same things more than twice a week.  That makes it insanely hard for us to eat!  I also have gastroparesis so that further limits what I can eat.

 

But the weird thing for me is that the new intolerances for me were not even things I ate a lot of.  Like oats.  I used gluten-free oats in meatloaf.  I made this perhaps twice a year.  I did make a lot at once so enough for at least three meals.  And a few times a year I made an apple crisp.  That was it for me and oats and yet, now if I eat them, I itch all over and get sick to my stomach.

 

The best thing to do is to get some sort of notebook, or I suppose you could do this on your computer if you wanted to.  Make a list of what you ate each day and your reaction (if any).  This may help you to determine what is causing your problem.  Or not, if it is more than one thing.

 

You should also try to plan your meals in advance so that you are not eating the same thing too often.  And remember that your problem food could be one that you never thought of!  I can't have chicken, lamb, or any kind of fish or seafood.  And what was I eating when my stomach was upset?  Chicken broth with a little rice in it.  No wonder it wasn't making me feel better.  I have switched to vegetable broth and have no problems with that.

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Thank you! I did some rotation diet-googleing afterall, and it seemd very overwhelming, but the way you put it it seems alot more do-able :)

That is strange, with your intoleranse to oats...!

 

Do you know how your daughter went about to reintroduce the foods? And did she do something first, like a month of probiotics og some suplements or wait a really long time or something?

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It's not hard.  Make a list of all the things you can safely eat.  Or....(thinking) put each food on a 5 x 7 card and then group them into four columns on your kitchen table.  Group items you like together.  Make a list.  Post in in your kitchen, carry it in your purse, etc.  Here's a sample:

 

Day 1 -- beef, potatoes, green beans, lettuce, tomato, pears, cantaloupe, oranges, almonds, peas

Day 2 -- pork, apples (applesauce!), sweet potatoes, cabbage, apricots, pineapple, eggs, peanuts, 

Day 3 -- fish, rice, broccoli, bell peppers, kale, zucchini, strawberries, plums, grapes/raisins, kidney beans

Day 4 -- chicken, butternut squash, corn, kiwi, turnips, dates, taro root, mango, walnuts, sunflower seeds, 

 

I think you get the picture.  I started my "day" in the evening. Then I had my dinner for my breakfast or lunch the next day.    Stick to whole foods and you can expand:  pork = bacon, ham, etc.  But in the beginning stick with more simple less processed foods (save the bacon on pork days in a month or two).  Think out-side-the-box for breakfast. 

 

I ended up eating tons of what I once thought were "weird" foods.  It was pretty fun going into ethnic markets and trying new veggies.  Later you might find that you should group food families together (e.g. tomatoes, peppers, potatoes).  But just start taking baby steps for now.  

 

Going on a rotational diet (even with cheating) did help calm down my "fire" (inflammation) and helped my recovery.  I had twelve more years of good health (triathlons and even a baby) before old menopause caught up with me and possibly triggered my celiac disease. 

 

Keep a food journal and record any reactions (remember, many are delayed up to 48 hours).

 

Hang in there!

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