• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Waitingindreams

Support Groups In Ct?

Rate this topic

Recommended Posts

Ads by Google:
Ads by Google:


I bet there are.  I found one by googling something like "Celiac support group Kansas city".  Of course you might want to substitiute something for the "KC".  :D

 

 

This is from the main page but I'm not sure how up-to-date it is:

 

http://www.celiac.com/categories/Celiac-Disease-Support-Groups%2C-Organizations-%26amp%3B-Contacts/

Share this post


Link to post
Share on other sites

If you ever visit NYC there is a great meet up group and a few of us who live nearby :)

Share this post


Link to post
Share on other sites
Ads by Google:


That's actually good to know! I have a friend that moved to NYC for a job, so my friends and I will probably be visiting him soon! Whenever I go on vacation I look up restaurants in the area using 'findmeglutenfree' it's been very helpful. Do you have any recommendations for restaurants in NYC? We could be visiting him as early as next month.

Share this post


Link to post
Share on other sites

You asked the right person! My friend and I made this gluten-free map of restaurants in NYC. However, when I give it out to people, I let them know that I have not tried or contacted all of the restaurants myself, so I don't know about their individual precautions for cross-contamination. When you pick one of them, definitely give them a call and ask :)

Personally my favorite is Bistango. Pala is great as well. It all depends on what neighborhood you're it. Let me know if you have any questions! :)

https://maps.google.com/maps/ms?ie=UTF8&hl=en&oe=UTF8&msa=0&msid=216570287516990318997.0004bf01007d2efc14c13

Share this post


Link to post
Share on other sites

Whoa! You weren't kidding! I clicked on it and a bunch of restaurants came up. This is awesome, thank you! Hmm, I don't know NYC very well at all. I couldn't even tell you where we were, really. I know last time we were there we hit Central Park and the museum of Natural History. (both were awesome!) so I guess restaurants around that vicinity, and nearby the train station would be the most helpful. Are there any IN the train station? That would be awesome too. I haven't been to NYC since my diagnosis. 

 

I'm at work now, (teehee) so I'll probably have to wait until I get home to really dig into all of these restaurants. If I can't find a gluten free menu, I usually email them for the menu/more information. Thanks for the help!

Share this post


Link to post
Share on other sites

Oh no, when you go to NYC do not eat at the train station - there are waaaayyyy too many amazing restaurants in the city!

 

I know of a few good restaurants on the Upper West Side, but they may be a little pricey. Depends on what you're looking for. But if there's a restaurant you really want to try, it would only be a subway ride away. Good (& safe) food is worth it  ;)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,932
    • Total Posts
      943,579
  • Member Statistics

    • Total Members
      67,230
    • Most Online
      3,093

    Newest Member
    Lydiac
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi there I have this exact same thing.. however I don’t have celiac that I know of.. I found this when google searching for what the heck is wrong with my face.  I was wondering if you ever found out.. or if it just went away. Thanks
    • I have read the newbie 101 and have been careful about reading labels. I'm the only one that's gluten free in my household, so they could be contaminating me. I was eating gluten for 6 weeks after my blood test because it took that long to get an official diagnosis and my GP told me to still be eating it for the tests to be accurate. It was probably too soon to retest, but the test was accidentally ordered by the lab. I have been having an increase in joint pain over the last couple months and my rheumatologist ordered lab work. The lab saw the celiac panel had been ordered, but didn't see results so they added it on because they thought it still needed done.  My gut issues are starting to get better, but I'm thinking the joint pain might have been from the celiacs because all of the rheumatoid tests came back normal for the first time in twenty years.
    • Hi and Welcome to the Forum.  I am glad that you are here! As with a lot of things in life, try not to compare yourself to other people. You are trying to be the best version of yourself - not Jill, Annie, or Maya.  People make a lot of foolish decisions in the world and it does not mean that you should do it too.  Also, many people are gluten free for a lot of reasons that aren't celiac. One of my best friends has gluten sensitivity but not celiac.  He eats a lot of food that I won't touch due to possible cross contamination which he doesn't worry about too much.  Be true to yourself and keep your self healthy.  It is so hard, but it's better than getting sick! I hate not being able to partake in yummy food at parties, but I have learned what junk food I can eat.  I will make sure to buy some tortilla chips or Fritos for picnics.  I freeze gluten-free cupcakes to eat when we celebrate birthday parties (I can just take one out of the freezer and go).  I make sure to take a dish to share to potlucks.  I ask permission at restaurants and parties to bring my own food - no one has ever said no, and when there is a time to celebrate, I splurge on something I really like.  Fortunately, there are a lot of gluten-free foods that I really like. Do i miss pizza and really good burger? YES! And sometimes, I still feel awkward, but life is so much more than food.
    • If Small was going to get rid of anything in a takeaway meal, it would be the bread with all its dreaded gluten. However, many scientists and nutritionists argue gluten is not a problem for people who do not have celiac disease or who are not "gluten-sensitive". Massey University senior lecturer in food ... View the full article
    • Holy cow! You people are all angels! I have been suffering unbearably with these hot, itchy, and painful bumps on my scalp for a year now. Two doctors had no idea what it was, so I was sent to see a "dermatologist." To my utter shock, he told me I WAS DIRTY! HE TOLD ME TO WASH MY HAIR EVERY DAY with a shampoo called Nizoral, that it would take the itch away. He also prescribed a Vaseline based salve with a steroid in it. Guess what? It did nothing nor did the shampoo, and the more I washed my hair, the worse it gets. It's like torture, and I just can't stop scratching holes into my scalp. Then they scab over, then itch again. I was almost ready to shave my head, until I found this forum. I knew nothing about celiac disease, sensitivity to gluten... I knew nothing. Just so happened that my daughter found a paper talking about celiac during her visit to her GI yesterday. She brought it home for me, and demanded that I read it!  WHAM- a light come on, and I said to her... That IS what I have. I am going to my GP tomorrow to demand that I be tested for ciliac. I am rather terrified, as I am already a type 1 diabetic and have been on insulin for 52 years! I was blaming my diabetes the whole time. I have had a lower left leg amputation, and the last thing I need is to start getting this ungodly rash on my stump!!! Thank you everyone for all of the useful information you have provided in this blog. Maybe I'm not going to die after all! 😉
  • Upcoming Events