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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Skin Biopsy For Dh
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30 posts in this topic

I agree with the others. She HAS to keep eating gluten until the biopsy & Prickly said it right. 

 

Some info. on the dh biopsy & you should print it out & take it to the derm especially if you insist on seeing the derm you just saw who gave you bad information.

 

http://www.celiac.ni...Dermatitis.aspx  forget what they say about it's location on the body --- that's bunk --- we who have it can tell you it appears anywhere it darn well pleases & while it does appear where they say that's not the ONLY places it appears & not necessarily the first or most frequent places. You might want to print a copy & take it to the derm.
 
 
 
 
 
 
 
And the rash does not ALWAYS present as water filled blisters --- that happens when you've got it BAD. 
 
The use of either topical or oral steroids within 2 months prior to the biopsy will make the biopsy negative whether it truly is negative or not.
 
Also, one MUST be have been & continue to be eating a full gluten diet or outhe biopsy will turn up negative. If one is "gluten light" the biopsy will turn up negative. You can't just eat a few crackers the day or for a few days before the biopsy --- that will not work. YOU MUST BE EATING A FULL GLUTEN DIET.
 
 
These types of skin samples are collected by performing a biopsy, which involves incising tiny portions of unaffected skin positioned immediately next to reddened or blistered areas.
 
 
 
Dermatitis herpetiformis is only
diagnosed and confirmed by a
dermatologist obtaining a slight
skin biopsy from uninvolved
skin adjacent to blisters or
erosions (1, 3). Other forms of
dermatitis can mimic dermatitis
herpetiformis necessitating
skin biopsy for correct
diagnosis (4).
 
 
 
A skin sample is taken from the area next to a lesion and a fluorescent dye is used to look for the presence of Immunoglobulin A (IgA) deposits that appear in a granular pattern. or  Skin biopsies of people with DH are almost always positive for this granular IgA pattern.
 
 
 
DH is diagnosed by a skin biopsy, which involves removing a tiny piece of skin near the rash and testing it for the IgA antibody
 
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Hi there!

I was diagnosed with DH in the fall of 2010.

I just woke up with it one day.

I have been on 100 mg of Dapsone daily, since that time.  It controlled the painful rashes beautifully.

As of 1/1/14; I have stopped taking Dapsone (cold turkey) and began a gluten-free diet.

I do not suffer any of the GI symptoms associated with Celiac.

My dermatologist & primary care physician told me I had to make the change, as my red blood cells were damaged resuling in a low oxygen level as a result of taking the medication.

I know I have a long painful road ahead of me; which is why I prolonged changing my diet and getting off the Rx.

Any suggestions like the above would be greatly appreciated!  Eating on the go, meal ideas, safe costmetics, soaps and lotions, etc.

I am a very busy homemaker, wife and mother of three very active children.

I am not taking any other Rx medications and do not have any other known allergies.

I do take a daily low dose aspirin.

Looking for support in tackling this lifestyle change.  :)

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Hi there!

I was diagnosed with DH in the fall of 2010.

I just woke up with it one day.

I have been on 100 mg of Dapsone daily, since that time. It controlled the painful rashes beautifully.

As of 1/1/14; I have stopped taking Dapsone (cold turkey) and began a gluten-free diet.

I do not suffer any of the GI symptoms associated with Celiac.

My dermatologist & primary care physician told me I had to make the change, as my red blood cells were damaged resuling in a low oxygen level as a result of taking the medication.

I know I have a long painful road ahead of me; which is why I prolonged changing my diet and getting off the Rx.

Any suggestions like the above would be greatly appreciated! Eating on the go, meal ideas, safe costmetics, soaps and lotions, etc.

I am a very busy homemaker, wife and mother of three very active children.

I am not taking any other Rx medications and do not have any other known allergies.

I do take a daily low dose aspirin.

Looking for support in tackling this lifestyle change. :)

That's horrible! You were diagnosed with Celiac Disease in 2010 but no one told you the only cure is to go gluten-free until now? Sounds like malpractice to me.

Anyway, read around the forum . In the coping section is a Newbie thread that could be helpful.

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

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That's horrible! You were diagnosed with Celiac Disease in 2010 but no one told you the only cure is to go gluten-free until now? Sounds like malpractice to me.

Anyway, read around the forum . In the coping section is a Newbie thread that could be helpful.

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

My apologies!

From day 1, I knew that the only cure for DH was to go gluten free.

I simply did not want to make the change and took the Dapsone, using it as a band-aid.

It worked like a dream for me!

I have just been prompted to pursue the gluten free diet due to side effects of the Dapsone.

Thanks for you thoughts.

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