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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Waitingindreams

Sleep Paralysis?

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I've had a semi-frequent issue with sleep paralysis for years now. That, mixed with my chronic fatigue and inability to stay awake even when struggling - led me to believe I had narcolepsy. I was tested for narcolepsy and diagnosed with Idiopathic Central Nervous System Hypersomnia..which is close to narcolepsy. This was in August of 2012.

 

I was prescribed a drug called Nuvigil, which I was paranoid about taking because of the side effects - not to mention it was very expensive. Now that I have been diagnosed with celiac disease, the sleep/fatigue issues are still there, but to a lesser extent.

 

I haven't noticed the sleep paralysis for awhile, but just today when I was napping (I'm sick, so I missed work) it happened a few times. It's terrifying, and I was wondering if anyone else has experienced this. Is there any connection to celiac disease/gluten at all? It's really, really scary - because sometimes I stop breathing in my sleep and I have to force myself awake. It's unsettling. (And no, I don't have sleep apnea or any other issues, I've been tested)

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I would get it every so often before i went gluten free. So far, I think i've only had it once in about two years or so.

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That's certainly good to hear. It hasn't happened with me in awhile either - this is the first time since I've been diagnosed, I think. It was happening pretty frequently before. What is scary is that sometimes I toss and turn and end up on my stomach with my face in the pillow..and then the paralysis would set in and I was suffocating, I couldn't breathe -- and I had to force myself awake so that I could move my face and breathe. This happened multiple times...but I sometimes stop breathing even when my face ISN'T in the pillow...like if I'm having a dream where I'm underwater or something. Ridiculous. The sleep specialist gave me no help or insight on this at all, so i do hope it will go away with time/a healthier diet.

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I used to have all sorts of issues when I was in my 20s, before I figured out all my problems.  I had serious constipation before the Celiac was ever discovered, and I therefore don't know if I always had Celiac or the Celiac only popped up after my gallbladder surgery.  But I always had headaches, migraines, insomnia, daytime falling asleep (even standing up), malaise, low weight, couldn't gain weight, skin problems, Raynaud's, and on and on. 

 

I noticed a problem with peanuts causing headaches when I was little, although family members scoffed over this. 

 

I also had some improvement with phlegm and maybe some other things by stopping dairy. 

 

Since having my gallbladder out and having the surgeon tell me I had Celiac disease and stopping gluten, I stopped having Raynaud's.  My insomnia seems more linked to constipation, but I supplement all my deficiencies, and that seems to be helping the insomnia also.  My pain issues (aching bones) is resolved now.  I take magnesium in the morning, calcium and vitamin D (2000 IU) at night, and 25 of zinc. 

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