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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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worriedseattlemom

New Here And Need Help! 8-Year-Old Daughter So Many Symptoms Even Though We Stopped Gluten Five Days Ago

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That's what I wasn't sure of, but I just found out that anything over .05 is positive, so....yah....she's tested very high.

thanks, and...geesh!

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Hi Worried Seattle Mom

 

I know that you are focused on your daughter at the moment, and that going gluten free is scary(!) but please consider putting your son on a gluten free diet also. I say this because I have had a lot of food intolerances - Dairy, Egg, fruit, fizzy drink, etc, but after going gluten free for 4 months, I now can eat these things - and I feel better. Even if he does not have Celiac, there is a strong possibility that he is gluten sensitive, (keeping your daughters journey in mind also) and that this is causing his other intolerances. I understand that it can take a year or more for the gut to heal enough to be able to eat these previously not tolerated foods (and it depends on the reaction that he has to them whether you want to risk them) In my experience being Gluten free is a lot more liberating than the other intolerances, and although a bit of a learning curve - if you are already doing this for you daughter, then maybe try for your son too?

 

Also - I completely understand your position with regards to the biopsy and having to continue the gluten with your daughter. However... this is the best chance you will have to have the definitive result that many people with Celiac find helps them stay completely gluten free for the rest of their life. Two more weeks of pain now, could prevent 3 months or more in the future, and even then the result will never be as strong. 

 

Best of luck with your journey - is is horrible when family members are ill:(

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Whew.

So what are they doing for her thyroid? As someone with both celiac and hashis I can attest that the symptoms overlap greatly, and the hashis can make her more miserable than the celiac (after she's gluten-free).

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