• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Help For A Family Of New Intolerances
0

7 posts in this topic

One of the guys I work with just had his 10yr old daughter tested and it turns out she is intolerant to just about everything.  Now I don't always think that the bloodtests for sensitivities are 100% accurate, but he was told they need to cut out gluten, eggs, dairy, peanuts (and other tree nuts), and most likely soy.  This leaves them with very little IMO to eat.  I'm gluten free and semi-dairy free so I'm only a little bit of help to him.  I gave him this web address as a starting off point, but right now, their heads are swimming.  He has 3 other kids and they are trying to decide if they whole family should follow some of the guidelines or just the daughter.  They are seeing a dietician soon, but thought maybe I could get some other great resources from this group - this is always my first stop for questions since you all are so super helpful all the time.  I'm really just looking for ideas on what a 10yr old can eat with all this.

 

Sidenote - he didn't say whether or not the Dr. did a celiac panel.  I told him about it (had never heard of celiac disease before) and asked that he call the Dr prior to pulling gluten out of her diet.  The sheer number of intolerances suggests to me that there is something else going on.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


One of the guys I work with just had his 10yr old daughter tested and it turns out she is intolerant to just about everything.  Now I don't always think that the bloodtests for sensitivities are 100% accurate, but he was told they need to cut out gluten, eggs, dairy, peanuts (and other tree nuts), and most likely soy.  This leaves them with very little IMO to eat.  I'm gluten free and semi-dairy free so I'm only a little bit of help to him.  I gave him this web address as a starting off point, but right now, their heads are swimming.  He has 3 other kids and they are trying to decide if they whole family should follow some of the guidelines or just the daughter.  They are seeing a dietician soon, but thought maybe I could get some other great resources from this group - this is always my first stop for questions since you all are so super helpful all the time.  I'm really just looking for ideas on what a 10yr old can eat with all this.

 

Sidenote - he didn't say whether or not the Dr. did a celiac panel.  I told him about it (had never heard of celiac disease before) and asked that he call the Dr prior to pulling gluten out of her diet.  The sheer number of intolerances suggests to me that there is something else going on.

Meat, veggies, fruit, rice, quinoa, corn is a short list. You can do quite a bit with those.

0

Share this post


Link to post
Share on other sites

From experience I can say that with gluten and soy together that it is pretty restrictive, nearly to the point of whole foods or ridiculously expensive crap no one can afford. Dairy adds a whole other layer to that because what isn't whey in?

 

I'm going to agree though that there is quite a lot you can do with meat, vegetables and the available grains. You can suggest coconut aminos as a substitute for soy sauce for stir fries and after that I really can't think of any reason she'll be lacking.

 

And yes, I would prod him to push for that celiac panel and follow up endoscopy quickly. We all know the test won't be accurate if she's already gluten free so there probably isn't a whole lot of time for them to mess around with that and if they can get the blood draw done immediately that would be super.

0

Share this post


Link to post
Share on other sites

Intolerance testing leaves much to be desired.

 

Why did they test to begin with?

 

That diet is what we have followed with a few more. It's about cooking a lot at home but its manageable for sure.  Again, without knowing why they tested though, I would bet a few/most of them aren't an issue really.

0

Share this post


Link to post
Share on other sites

She has had behavioral problems for years - at one point he said they had her on Abilify, but decided that was a bit strong for a 9 yr old.  They are coming at this from a good place - don't continue to mask the problem...get to the root of it.  She has been very tired and almost depressed for awhile, which is why they had the tests done.  They went through standard pediatrician who specializes in dietary restrictions (which is why I was surprised she didn't run a celiac panel or blood vitamin/mineral tests).  Apparently this Dr is very in demand (they had the blood draw in August and couldn't get a follow up appt to go over results until this past Friday 11/8 - crazy!!)  I of course did not discount the Dr's opinion, but I did explain to him that a lot of this information is subjective and it would be in their best interest to get the celiac panel done now before they make radical changes to her diet (that way they can have the other kids tested if it comes back positive as well).  I was trying my best to help with recipes and food ideas, but I'm allowed dairy (in small amounts) and all my good recipes contain something she can't have.  Mostly need lunch ideas to take to school - poor kid.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Desperate parents will try anything, I know :(  I just hate to see people restricting diets so much without a clear reason and scientific testing first to rule things out.  It's hard to get people to comply with these diets with no back up (from the patient to the families to the schools).  
 

 

Soy is going to be the big one. If they do decide to pull everything, that would be the one I would try to add back first as it will open up a lot.  Hummus with veggies, soups and stuff like that would be where I would start with for lunches.

0

Share this post


Link to post
Share on other sites

My daughter had all of those intolerances and more.  There is plenty to eat.  Can use coconut oil instead of butter.  Can pop pocorn in it.  Can eat sunseed butter on a rice cake, rice crackers, corn tortilla, gluten-free bread, etc.  There are all kinds of fruit.  Meat.  Now there is great dairy free and soy free cheeses.  Daiya is one such brand.  In a restaurant, safe choices would be a hamburger patty,fruit, plain baked potato, sometimes fries.  In a Mexican restaurant, beans, rice and corn tortillas are usually safe.  Often the meat is safe but you have to ask.  Have to concentrate on what can be eaten and not on what can't.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,802
    • Total Posts
      932,552
  • Member Statistics

    • Total Members
      64,292
    • Most Online
      3,093

    Newest Member
    Jabreu81
    Joined
  • Popular Now

  • Topics

  • Posts

    • Ok guys, I messed up. I ate a bag of marshmallows the same day... low and behold, with wheat starch. I did not expect that. Sneaky sneaky marshmallows with with wheat starch. fml
    • The L-Glutamine may have gluten in it.  Try drinking bone broth daily instead.
    • I would suggest a certified gluten free soy sauce, just to be safe.  Test that and if you react, you'll be able to rule out a gluten reaction from La Choy.  
    • I second cycling lady here, you should not go gluten free unless your doctor confirms you have celiac disease via the blood test and a biopsy. You need to be eating gluten for the testing to be accurate so a 30 day trial based on the gene is a REALLY bad idea, getting back on gluten for the testing is a nightmare once out of your system. Also going gluten free, what are you eating? If your eating just a bunch of gluten-free foods that are processed like the pre made breads, foods etc. your on the wrong path. Those are normally non enriched and more like junk food/comfort food. You need to eat a whole foods diet, of various greens, meats, nuts, seeds, (fruit if you can have it and sweet potatoes). etc. Doing this will boost your healing and you and introduce some of those processed foods later on sometimes. If you have celiac disease then your intestines are probably damaged and you will need to supplement some nutrients, we all have common ones like magnesium, iron, b-vitamins, folate, potassium, D etc. and you should talk to a good doctor about what your missing. The whole out of it things sounds like b-vitamins to me. Another point is going gluten free, you have to be careful for CC if your a celiac, after removing gluten re exposure to gluten makes your symptoms MUCH worse, and the tend to change and evolve in addition. Be sure to check the Newbie 101, your pretty much have to replace most of your cookware, condiments, etc. https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/  
    • Do you still consume gluten and/or dairy? If so, I highly recommend that you eliminate both entirely. That includes anything with the ingredients; whey powder, casein, "lactose free" can be misleading as well. I also recommend taking a good probiotic regularly.  http://mentalhealthdaily.com/2016/03/01/10-best-probiotics-for-depression-anxiety-gut-brain-axis-modification/  I use Garden of Life brand for Mood. I buy it in the refrigerated section at Whole Foods. I also recommend double doses of B vitamin for a stint. However, you should have a full work up done by a neurologist, if you haven't already. Assuming everything comes  back negative then I highly recommend trying these few things.  I hope you can find answers and start feeling healthy again.
  • Upcoming Events