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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Amazing Lectures At The Gluten Summit
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Please do go online now and have a listen.  This guy has brought together so many seminars from the world's big brains on Celiac and the related conditions.  Free and lectures only available for 24 hours from the initial broadcast of the lecture... so get online now!  http://theglutensummit.com/day-1/

Let me know what you think of it.!

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Some of this looks interesting but I was disappointed that they included Perlmutter as a speaker.  He is over the top on some of his stuff and promotes a no grain diet as the best way to go...even if many people have no sensitivities to gluten free grains.  And then there is that ridiculous cross reactivity nonsense.  This is why Celiac myths persist.

 

Thanks for posting though......I will have a look at some of them!

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I have been enjoying the summit thus far.

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Some of this looks interesting but I was disappointed that they included Perlmutter as a speaker.  He is over the top on some of his stuff and promotes a no grain diet as the best way to go...even if many people have no sensitivities to gluten free grains.  And then there is that ridiculous cross reactivity nonsense.  This is why Celiac myths persist.

 

Thanks for posting though......I will have a look at some of them!

 

I knew when I looked at the list of people that some are complete whackjobs, while some are the best of the best. The only reason I signed up to get the email was because we can pick and choose who to listen to so I can weed out the nuts and just listen to the people who are the kind of people ICDS would let speak. If ICDS would tell them to go walk their ideas off a short pier, well nobody is making me listen.

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Dr. Fasano's information about leaky gut is intriguing. I never understood it before. He explains it well.

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OK.. Dr. Ford's lecture is fascinating. The gluten-zero approach versus the gluten-free approach (less than 20ppm) makes sense. We are not talking about just gut damage.  But can you truly be gluten-zero?

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I knew when I looked at the list of people that some are complete whackjobs, while some are the best of the best. The only reason I signed up to get the email was because we can pick and choose who to listen to so I can weed out the nuts and just listen to the people who are the kind of people ICDS would let speak. If ICDS would tell them to go walk their ideas off a short pier, well nobody is making me listen.

I like the way you think, Addy!  ;)

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OK.. Dr. Ford's lecture is fascinating. The gluten-zero approach versus the gluten-free approach (less than 20ppm) makes sense. We are not talking about just gut damage.  But can you truly be gluten-zero?

I am not a fan of Ford, either.  These people are fear mongers. Gluten free can very well mean gluten free.  I am one of those extremely sensitive ones, who presented with classic Celiac Disease and nearly died from it. Really....no BS in that statement.  If I can come back from having one foot in the grave and heal well, anyone can.....unless you have added intolerances that no one can figure out or another underlying condition that no one can figure out.  Most of these issues can be figured out, though, and many have nothing to do with gluten.

 

The problem I have with their pseudo logic is that no one can prove there is 1 ppm of gluten in any given product so why instill fear that there could be and if you eat it, you will remain sick?  Most reputable companies test down to around 5 ppm's but that does not mean there is 5 ppm's, or less, of gluten in the product. It could very well be zero. But instilling fear with regards to gluten-free products makes money for these people. Plus, the testing required to prove minute amounts of gluten would price these products right out of the ballpark.

I think Ford is a fan of the idea of banning gluten altogether...yeah, that will work!  Everything I have read by him smacks of kooky..... :rolleyes:

 

I guess if you ate only protein and carby and non-carby veggies, that might qualify as cutting out all risk but then again, someone will try and tell you that there is gluten in veggies. It could get very boring eating like that also and very hard for gluten free kids.

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I am not a fan of Ford, either.  These people are fear mongers. Gluten free can very well mean gluten free.  I am one of those extremely sensitive ones, who presented with classic Celiac Disease and nearly died from it. Really....no BS in that statement.  If I can come back from having one foot in the grave and heal well, anyone can.....unless you have added intolerances that no one can figure out or another underlying condition that no one can figure out.  Most of these issues can be figured out, though, and many have nothing to do with gluten.

 

The problem I have with their pseudo logic is that no one can prove there is 1 ppm of gluten in any given product so why instill fear that there could be and if you eat it, you will remain sick?  Most reputable companies test down to around 5 ppm's but that does not mean there is 5 ppm's, or less, of gluten in the product. It could very well be zero. But instilling fear with regards to gluten-free products makes money for these people. Plus, the testing required to prove minute amounts of gluten would price these products right out of the ballpark.

I think Ford is a fan of the idea of banning gluten altogether...yeah, that will work!  Everything I have read by him smacks of kooky..... :rolleyes:

 

I guess if you ate only protein and carby and non-carby veggies, that might qualify as cutting out all risk but then again, someone will try and tell you that there is gluten in veggies. It could get very boring eating like that also and very hard for gluten free kids.

 

 

I get where you are coming from completely. I do think there is a bit of fear mongering but honestly I don't have any previous exposure to him. So I have no bias one way or the other...

 

In regards to a diet of protein and vegetables being boring... I am a bodybuilder so I eat lots of veggies, meat, sweet potatoes and brown rice and eggs. I don't eat much carbs or dairy. I don't think it is that boring but I guess I'm not the average person. I'm also not a child so I can see how hard it would be to do that with a child... Thanks for your input. It's a very interesting subject for all of us.

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What are your guys thoughts on the whole case study regarding microwaved food? I think that was a bit of fear mongering...

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I get where you are coming from completely. I do think there is a bit of fear mongering but honestly I don't have any previous exposure to him. So I have no bias one way or the other...

 

In regards to a diet of protein and vegetables being boring... I am a bodybuilder so I eat lots of veggies, meat, sweet potatoes and brown rice and eggs. I don't eat much carbs or dairy. I don't think it is that boring but I guess I'm not the average person. I'm also not a child so I can see how hard it would be to do that with a child... Thanks for your input. It's a very interesting subject for all of us.

I also do weight training (which is a bit different than body building) in a gym with a trainer and I have to eat carbs because I need the sugar or I lose weight.  I don't have the weight to lose.  I eat much of what you do and love that kind of food but every once in awhile...like last night......I need a brownie!  :P   So I ate a whole row from the pan...I am so bad sometimes.  Ha, ha!  Luckily, I have a thin husband who eats most of the rest of them.

 

I haven't looked at the whole series but what is the deal with microwaved food?  I can only imagine what their take is on it......if you listen to what they say, none of us should have survived this long.

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I also do weight training (which is a bit different than body building) in a gym with a trainer and I have to eat carbs because I need the sugar or I lose weight.  I don't have the weight to lose.  I eat much of what you do and love that kind of food but every once in awhile...like last night......I need a brownie!  :P   So I ate a whole row from the pan...I am so bad sometimes.  Ha, ha!  Luckily, I have a thin husband who eats most of the rest of them.

 

I haven't looked at the whole series but what is the deal with microwaved food?  I can only imagine what their take is on it......if you listen to what they say, none of us should have survived this long.

 

I do love a treat meal occasionally! I am trying to lose fat and maintain lean body mass so my diet is a over 50% carbs (don't let me fool you otherwise - carbs are not the devil!). I try to stay away from processed food. I do treat myself occasionally though. I like to make coconut milk ice cream and the occasional baked good. I also experimented with gluten free pizza since my boyfriend is not NCGS or Celiac so he misses the 'gluten' food so I indulge him on occasion. But 90% of the time I'm pretty good.

 

Dr. Lipski was presenting a case study of a man that ate all his meals microwaved and how he had leaky gut and food sensitivities. Once he stopped microwaving his food they narrowed down his food sensitivity to like only 2 versus the myriad he had prior. It seemed kinda sweeping though how it was presented. Like you should never use the microwave. I was a little perturbed.

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While I am no MD, I really think that leaky gut is most likely not caused by microwave ovens.  The jury is still out on whether microwaved foods can actually cause a problem BUT they have been around for awhile now and people aren't falling over in droves.  I would think, after having leaky gut myself for years from undiagnosed Celiac, that it is caused by what people are eating and/or bacteria, viruses or the usual things that can tip the balance to the bad side in your gut. Definitely food allergies and intolerances would be the leading cause.  If this guy was microwaving all of his food then he probably wasn't eating healthy food to begin with because there are certain things that you just can't do well in a microwave. Microwave food tends to be processed food. Good healthy eating generally originates from a real oven! ;)  I would totally believe that eating all processed food could cause leaky gut.

 

What makes me annoyed and angry are all these people selling this line of pooh to the general public who may be desperate for answers to their health problems. They need real information, not nonsense that microwave ovens cause leaky gut. And wheat isn't dangerous for everyone, either. They are jumping on the bandwagon to make money and selling nonsense to vulnerable people.

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While I am no MD, I really think that leaky gut is most likely not caused by microwave ovens.  The jury is still out on whether microwaved foods can actually cause a problem BUT they have been around for awhile now and people aren't falling over in droves.  I would think, after having leaky gut myself for years from undiagnosed Celiac, that it is caused by what people are eating and/or bacteria, viruses or the usual things that can tip the balance to the bad side in your gut. Definitely food allergies and intolerances would be the leading cause.  If this guy was microwaving all of his food then he probably wasn't eating healthy food to begin with because there are certain things that you just can't do well in a microwave. Microwave food tends to be processed food. Good healthy eating generally originates from a real oven! ;)  I would totally believe that eating all processed food could cause leaky gut.

 

What makes me annoyed and angry are all these people selling this line of pooh to the general public who may be desperate for answers to their health problems. They need real information, not nonsense that microwave ovens cause leaky gut. And wheat isn't dangerous for everyone, either. They are jumping on the bandwagon to make money and selling nonsense to vulnerable people.

 

Yeah the microwave bit was too much for me. I lost interest in the lecture. Dr. Marsh apparently allows his patients to drink English beer. He says that he has had a Celiac practice for over 25 years with over 300 patients with no issue. I never liked beer so I don't really care to drink it... but others have said the day before that beer was to be avoided. How interesting..

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Wow, some great conversations going on here!  I think we have to all pick and choose who we listen to and look at the published peer reviewed papers each of them have had and in what medical journals.  There are definitely some who are more quacky than others.  It might be worth having a read of some of their research papers to get a better insight.  It is difficult in interview to cover every technical detail.  I don't think that these speakers would be presenting on just what they 'think' is right, they will be saying things based on research and also patient experience.  They get to see a lot more gluten intolerant/celiac patients than we do.  There is a lot to learn from here though!

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Yeah the microwave bit was too much for me. I lost interest in the lecture. Dr. Marsh apparently allows his patients to drink English beer. He says that he has had a Celiac practice for over 25 years with over 300 patients with no issue. I never liked beer so I don't really care to drink it... but others have said the day before that beer was to be avoided. How interesting..

 

I saw that and was astonished! I don't know what to think of that. Then the very next speaker I watched was against fully against beer. Very confusing. I really really want to follow Dr. Marsh's advice on beer but...  :ph34r:

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Dr. Marsh (You know the Marsh scale?) spoke and I had a chance to listen to part of it.  He made the statement that if one is positive for antibodies, but has a negative endoscopy they should be told to do a gluten free diet.  He has an interesting accent and it was fun to listen.

 

D

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There shouldn't even be any discussion about beer, whether English or American or whatever.  Anyone who thinks that a diagnosed Celiac can drink any beer at all safely, other than gluten-free beer, is not credible.  That is basic, Celiac Disease 101.  The gluten-free diet is not rocket science.  It's basic nutrition education and common sense.  There is some fine tuning for everyone involved because some of us react more violently to small amounts and some do not have a problem with shared lines but some of the information here is just plain dumb.  I don't care how many papers someone has published or how long they have practiced medicine...beer is not allowed on the gluten-free diet...unless you want to stay sick. 

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There shouldn't even be any discussion about beer, whether English or American or whatever.  Anyone who thinks that a diagnosed Celiac can drink any beer at all safely, other than gluten-free beer, is not credible.  That is basic, Celiac Disease 101.  The gluten-free diet is not rocket science.  It's basic nutrition education and common sense.  There is some fine tuning for everyone involved because some of us react more violently to small amounts and some do not have a problem with shared lines but some of the information here is just plain dumb.  I don't care how many papers someone has published or how long they have practiced medicine...beer is not allowed on the gluten-free diet...unless you want to stay sick. 

gem is right.  i'm so glad these idiots are so educated.........................

 

how many of these 'speakers' are celiac and have to walk the walk.  looks like a bunch of snake oil salesmen mixed in with just enough credibility to part a fool and his money.  i am sad.

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 I don't care how many papers someone has published or how long they have practiced medicine...beer is not allowed on the gluten-free diet...unless you want to stay sick. 

 

Yes, hearing Dr. Marsh talk about beer really shocked me. I had to replay what he said to be sure I heard it correctly. Dr. O'Bryan posted this in response on FB....

.

https://www.facebook.com/thedr.com.english

 

"Q: Dear Dr. O'Bryan, in his interview Dr. Marsh said it is ok for celiacs to drink English beer. Does that mean I can go ahead and order a beer?

A: All Right Folks, I have to intervene now. Dr. Marsh is truly the 'Godfather of Celiac Diagnosis' but he would be the first to tell you he is not an expert in WHICH foods work and do not work on a GFD. I have to urge caution before breaking a GFD with gluten-containing beer. If someone wants to do this, it's early in the week, I'll talk about this in detail at the end of this Summit, but I can not have people thinking I am endorsing gluten-containing beer. The only way to do this would be to do a panel looking at multiple peptides of gluten, confirm that there are no elevated antibodies to any of the peptides of gluten (whether in wheat, rye or barley). If all are negative, then doing a beer challenge will tell you if it's ok for you. Read my paper on this topic of gluten challenges

'Do I have to Re-introduce Gluten in Order to have an Accurate Gluten Sensitivity Test Done?'

Once again, NOT recommended to do, but if you are going to, this is the safest protocol. 

Take care of yourselves folks. 

Tom O'Bryan, DC, CCN, DACBN"

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Of the speakers, who do you consider credible?

 

I believe the following are/we worthwhile:

 

Alessio Fasano

Marios Hadjivassiliou

Umberto Volta

 

Please let me know of any others! :)

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I found this to be the most erroneous and disturbing blatant piece of unscientific baloney I have heard thus far. Suggesting a young man committed suicide because he was depressed because he drank too much milk ?

How can this man get away with saying this?.

 

GLUTEN SUMMIT: DAY 3 REPORT

 

"Why didn't our Doctors consider this?” she asked.

 

Today, I received a thank you from a mother whose 21-year-old son with celiac disease recently committed suicide. “He loved his milk,” she said.  “1+ quarts per day.” Because of The Gluten Summit she now understands that cross-reactivity may have been a possible contributor to his ongoing depression. "Why didn't our Doctors consider this?” she asked me.

 

“Your Doctors didn’t know,” I replied.

 

We are only a few days into the summit and I am hearing this time and time again.

 

But, we are learning and we are changing the world.

Together.

 

 

that Gagged me.

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I drink 2+ gallons of milk a week, usually +. Not depressed. I also eat grains, almost as if consuming them is a religion in and of itself. Also, if it weren't actually against my religion I'd drink coffee like it's a religion. That's seriously not a joke either. (Quitting coffee was harder than quitting smoking!) Pretty sure, being coffee-less, a former smoker who hates being around people, and someone who consumes vast amounts of grains and milk I should be their poster child of depression. Happy as a clam. Who thinks up this psychobabble bullshit? (I'd censor myself, but that is censored.)

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I'm getting lots of research-based information listening to the presentations at theglutensummit.com this week. Mostly doctors and researchers presenting, rather than website sponsors.

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I have been disappointed thus far with the summit except for Fasano.  There are to many "could be" might be" "I think" and "it's possible".  I call that stuff bull shite.  I worry about a whole new group of "Myths" coming from this summit.  

 

Colleen

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